jcgirl
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by jcgirl
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ARCHIVED Come And Rant!
jcgirl replied to fisharefriendsnotfood's topic in Coping with Celiac Disease
I love this thread. My birthday was 2 weeks ago and my son made me a Namaste gluten-free brownie (cake). He made it in 2 layers, added choc chips, choc frosting and crumpled up butterfinger on top. It was to die for. The entire family,) there are 7 of us here, my hubby, my son and four stepchildred) got a piece and everybody loved it. Well... -
ARCHIVED Lump On Back Near Shoulder Blade
jcgirl replied to Eliza13's topic in Related Issues & Disorders
I had a lump in the same area in 1984. It appeared a week after I broke out in hives all over my body and every single joint in my body was swollen. I literally could not walk to the bathroom without my mom helping me. I was in the worst pain in my life!!!! It has happened 2 other times sense then. However the lump was after the first episode. I had... -
ARCHIVED Namaste Blondie Mix
jcgirl replied to a topic in Gluten-Free Foods, Products, Shopping & Medications
Is Namaste the brownie mix that comes in a brown bag? I absolutly love them and so does one my co-workers who can eat whatever he wants whenever he wants. I will have to look for the blondie mix. Regarding food intolerance tests, how is that done, blood work, skin prick? -
Well the bloodwork from new GI is in. Everything is within normal ranges. Celiac panel-normal. In my humble opinion, it is a false negative as I have been gluten-free for 10 months. I am going to continue to be gluten-free based on enterolab, inprovement with diet and how I felt when ingesting gluten. No more cheating and having a beer or two. Time...
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ARCHIVED Gf Holiday Get Together
jcgirl replied to tammy's topic in Introduce Yourself / Share Stuff
I am from upstate NY, Binghamton area. I travel up and down the east coast to catch a few Bruce Springsteen concerts, hoping for another holiday show. Anyway, I would love a gluten-free holiday party. Don't know any celiacs personally, well other than my son's principals daughter. -
ARCHIVED Feet And Legs Fall Asleep After Bms.
jcgirl replied to Eliza13's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
My feet and hands do this too. It has become rather annoying, happens the most at night when going to sleep and/or sleeping. At first I thought that I was laying on my arm wrong but it happens when I'm awake as well. I also feel a tingling sensation on the side of my face and head sometimes. It is kidda scary. Anyone else have this feeling? -
ARCHIVED What Do I Have?
jcgirl replied to gagliat's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Wow, I believe this is the first time on this site that I read about being covered with a rash from head to toe. I am 41 now, back when I was 19 I woke up covered in hives and every single joint in my body was swellon. I could not even go to the bathroom without assistance, hurt to much to move. It happened again about 15 years later, but not as bad. ... -
ARCHIVED My Grandpa (elder Abuse?)
jcgirl replied to Smunkeemom's topic in Parents, Friends and Loved Ones of Celiacs
Smunkeemom, First off, sorry I put the wrong screen name in my reply. I am posting from work and someone must have walked in and messed me up (that's my story, I'm sticking to it) More importantly, that is absolutly great that your grandfather's doctor is going to talk to your family as a group and more specifically to your Aunt. I am also glad that... -
ARCHIVED My Grandpa (elder Abuse?)
jcgirl replied to Smunkeemom's topic in Parents, Friends and Loved Ones of Celiacs
bobcatgirl, I had to keep reading over your post, the part where you mention that you have to "SNEAK" him gluten-free food really troubles me. It seems as if there may be some control issues at the very least on your Aunt's part. My suggestion would be to have his doctor speak to her first. If that does not help, I know this may be harsh, but if the... -
Well I went to the new GI yesterday. What a horrid drive, 3 hours of constant rain with windshield wipers that need replacement (thanks hubby for letting me know The appointment went well, I guess. The doctor wants repeat all the tests that I have had done in the last 2 years, including to my HORROR another colonoscopy. He seemed puzzeled that my...
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I will mention the nuclear scan and hide a scan to the new doctor. Jen, I wanted to pop the doctor when he brought up antidepressant. For me it doesn't do a darn thing for my GI problems, on the brite side, I don't nag the kids as much about leaving their shoes in front of the door, must be the drugs (happy pills)
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Just an update, still getting the pains, they tend to come and go. Some days not as bad as others. I have been careful when eating so as not to get glutened. I will ask the new doctor to check out how my gullblatter is functioning. I have also been experiencing pain in my neck that radiates into my head, like a dull nagging headache and very very tired...
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I am wondering if maybe the pain is from getting glutened. Friday I know I got glutened and oh boy was the pains bad. I spent the entire day Saturday doubled over. I was ready to go to the ER however, I figured why bother. The doctors in my area have me soooooo discouraged!
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Jen, the doctor didn't bother to say anything other than not gullstones and called in a prescribtion for IBS, some anti-spasm med. Needless to say I did not bother to fill it. I have an appt October 13th with a GI in Rochester, NY. My son's pediatric GI recommeded him. I am so pleased with the pediatric GI, he did not blow off everything we said and...
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The pain is primarily on the right side just below and/or under rib cage and it radiates to the back. Also have some pain on left side in same area. Occasional pain in mid tummy area and feel like throwing up halfl the time. Any ideas?
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I can believe this and I swear if I hear this doctor say IBS one more time..... Please excuse my ranting and raving, I am just so frustrated!!!!!!!! I have been having sharp stabbing pains for about 4 weeks now, progressively getting worse so I made an appt with my GI locally. I have an appointment for 2nd opinion in October for gluten intolerance, etc...
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ARCHIVED Dairy Free Food Lists
jcgirl replied to jcgirl's topic in Gluten-Free Foods, Products, Shopping & Medications
Update: I went to Wegmans.com allergy section and they have printable lists of gluten-free, lactose free and Lactose/Gluten free Wegman's brand products. I printed them and put into an organized 3 ring binder. On the front I taped the ingrediants to watch out for that contain milk products. I figure this will give me a jump start when shopping. I... -
ARCHIVED Dairy Free Food Lists
jcgirl replied to jcgirl's topic in Gluten-Free Foods, Products, Shopping & Medications
Jen, Thank you for the list. Yes my son does have to be casein free. I am learning all the terms via trial and error as I did with my gluten free diet. If only there were courses at the local grocery stores, gluten-free 101, CF 101 it would make life easier I will check out the web sites now. Thanks again. -
ARCHIVED Son's Biopsy Results
jcgirl replied to jcgirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Carrie, I will take you up on your offer. Any name brand easy to cook type foods out there that a 12 year old can cook and/or mircrowave on his own. He is not big on veggies, etc. Loves the fries, lipton noodles, chix tenders. I also have to watch out for the acidy food due to his severe acid reflux and ulcers. I did find a great substitute for... -
ARCHIVED Dairy Free Food Lists
jcgirl posted a topic in Gluten-Free Foods, Products, Shopping & Medications
My son has to do a dairy challenge, same as the gluten challenge to see if that is a cause of his symptoms. I have been searching for mainstream food lists that are dairy free. This site has been so helpful with gluten free products and I am hoping that someone may know where to direct me. Shopping is so hard these days, I am gluten-free and now I have... -
ARCHIVED Son's Biopsy Results
jcgirl replied to jcgirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Carrie, I believe he was talking about swelling in the intestines. I spoke to the nutritionist yesterday and she said one diet at a time to start with. I also did not realize when I first posted that they were talking about all milk products and not just lactose. Grocery shopping will be difficult with my being gluten-free and my son being milk free... -
ARCHIVED Son's Biopsy Results
jcgirl posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My son finally had his biopsy 8-15-05. The poor kid has 4 ulcers in the esophogus and 1 in the stomach from severe GERD. The doctor called today and said that the results of the biopsy were negative for celiac but that he does have inflammation. He is also waiting for some other pathology tests results. He suggested a lactose free diet for two weeks... -
ARCHIVED Capsule Endoscopy?
jcgirl replied to whitelacegal's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sometimes I feel insane but not that time. It really was flashing! It stops once it hits water -
ARCHIVED Capsule Endoscopy?
jcgirl replied to whitelacegal's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had the capsule endscopy back in January. My doctor said that he didn't find anything wrong and that he only saw inflammation in the small intestine. So he said I had IBS. This is the same doctor that 5 years ago told me I had colitis. After the fact I find out that he has a grant to study IBS so I think he is stuck on that dx. I did the enterolab...