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judy04

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Everything posted by judy04

  1. judy04
    Hi Deb, Sorry you are having so much pain. In the beginning I kept a journal which included everyting I ate, every day. By starting out very carefully by eating very simple meals I could pinpoint which foods were bothering me or causing pain. My pain was really severe and the bloating as well. Through a process of elimination I removed dairy, eggs...
  2. judy04
    Hi, Your brother could be in the early stages. Acid reflux is a common symptom among Celiacs. I had a negative biopsy, no damage to the villi, but they did find severe erosion of the esophagus, Barrett's Ring, which has to be examined every year because it can lead to cancer. I had one elevated antibody (IGA) . I react violently to wheat, oats, milk...
  3. judy04
    Hi, I don't know if this is the right forum, I just have to vent!!! This morning I received a phone call from my MD's nurse that the report came back on my blood work with an elevated blood sugar 227 and elevated triglycerides and sed rate. My brother and his wife are here visiting, my brother is looking really bad, has had 3 heart attacks and...
  4. judy04
    Hi, Just wanted to contribute. I had a neg biopsy, neg for celiac gene, no apparent damage to the villi, elevated IGA only but yet I react violently to a small speck of gluten and I am sick for almost 3-4 days. I know I'm not a "true celiac" but I have a definite gluten sensitivity. I think I am one of those "below the iceberg" and I think that perhaps...
  5. judy04
    Hi Mbigbee, Your daughter could also be casein intolerant. This is the protein found in milk. If this is the case then Lactaid tabs won't help. Have you checked to be sure the pills are gluten-free? I know the original Lactaid made by McNeil are gluten-free because I called them. They also make Tylenol and sent me a lot of coupons which was helpful...
  6. judy04
    Hi Karen, Last summer when I was having really bad diarrhea. My GI doc recommended fiber pills. I take Citracel which is gluten-free (pills).He explained that it works for both diarrhea and constipation by forming a gel that moves thru your bowels resulting in normal bowel movements. I also try to avoid heavy fruit juice or fruit with skin unless...
  7. judy04
    Hi, I have been taking a beta- blocker ( tenormin) for several reasons and for several years. I used to have a very rapid pulse at the same time I was developing a thyroid nodule which was later removed. Also I have suffered from migraine headaches since the age of 13 and beta blockers can sometimes prevent them and also for high blood pressure...
  8. judy04
    Hi celiac3270, I know that you are disappointed about the SIBO, but try to think that this is one less thing to worry about. I think you are on the right track but you need to give it more time. I noticed a big change when I gave up dairy completely. After 9 mos I am feeling pretty good, not quite "there yet", if you know what I mean. When I...
  9. judy04
    Hi Paul, I'm not sure if I can help you but my IGA was elevated @74 but my IGG was 16. I read somewhere that having 1 or more of these elevated antibodies means that you are reacting to Gluten. It may be that you don't have enough damage to cause both to rise. However, I had no damage to the villi and a neg biopsy??? My GI doc said he can't prove...
  10. judy04
    Hi Janine, Since going gluten-free I have developed pain in the inner aspects of both knees and the top of my feet. When I had an accident , after trying oatmeal , I swear the pain went from the right abdomen, down my right thigh, and into my right knee. It happened simultaneously like an irritated nerve, something like sciatic nerve. It only lasted...
  11. judy04
    Hi Paul, There are many,many Outback restaurants in New England. We are going to Boston for a wedding at the end of the month. I went to Outback.com and mapped out my itinerary so I know where to eat. It was really fun, just like mapquest, they showed me every restaurant along the way, directions to get there, and mileage. Hope you enjoy your trip...
  12. judy04
    Dear Marian, I'm sorry to hear about you not feeling well. You have been such a "rock" for me and others and I wish I could do something to help you. I went to excedrin.com and sent them a message asking about Gluten in their products. I will let you know when I hear something. They have a lot of tips about headaches, I did a search on Google...
  13. judy04
    Hi Theresa, Welcome, I'm so glad to hear you are feeling better! I too, have been sick for a long time with many unusual symptoms. I want to thank you for suggesting the idea of a journal especially for my children, who are in their thirties and are very much in denial that they might have the symptoms. My son gets bad migraines, frequent mouth ulcers...
  14. judy04
    Dear dmckeithen, Please don't get off this diet! When I first started on this diet I was depressed, frustated, confused, and mad at the world and everyone in it. Then I researched, and found out what could happen if I didn't stay on it. I have seen too many people with cancer, as a nurse, and I said to myself, I can do this, all i have to do is learn...
  15. judy04
    Dear Melissa, I'm sorry that you are having such a hard time. This condition is hard enough for an adult but it must be terrible for a mother of a sick child. I was wondering if she ever eats around other children, thats how I got my children to eat new things. Most children like milk and cereal before going to bed at night. My sister-in-law always...
  16. judy04
    Dear Niteyx13, I was reading your post and I wondered if you ever had an Endoscopy? When I had mine they found severe acid reflux, called Barrett's ring. I have to be "scoped" every year because it can turn into Cancer. I don't know if you know that Ibuprofen and other meds like that can be very hard on your stomach. My Dr. prescribed Prevacid and...
  17. judy04
    Dear Lesliew, You didn't say how long you have been on the diet, but I have been on for almost 8 mos and my stomach could not tolerate what you have listed. First of all I start breakfast with soluble fiber such as bananas, applesauce and herb tea(gluten-free). I try to stay away from most fried foods because I have been sick for a long time and my...
  18. judy04
    Dear Alex, Please don't give up on this diet! It took me 6mos to even start feeling better! I guess I had been so sick for so long, it just takes longer. I still can't tolerate dairy but soy milk seems ok, I just had a bowl of strawberries and blueberries with milk. I could not have done this a year ago. Hang on, it's worth it!!
  19. judy04
    Hi, If I were you I would also stop the barley because even if he doesn't react to it, some damage may be occurring. I agree about more testing, a whole celiac panel, or stool test thru Enterolab. Hope you find answers soon.
  20. judy04
    Hi, My name is Judy. I'm a little older than the rest. I'm 62 and a retired registered nurse. I'm so glad to have been diagnosed because I was so sick for so long. I have had environmental allergies but my symptoms worsened after I had thyroid surgery (autoimmune disease). After that my eyes started to burn, itch, had stabbing pains, and shimmering...
  21. judy04
    Missy, Not all of the drugs are on that list. Sometimes you have to call and ask the drug maker. My gastro doc , who is very Celiac savvy, couldn't tell me if Nexium is gluten-free so I use Prevacid instead.
  22. judy04
    Hi I have been taking One A Day vitamins by Bayer for quite a while, when I found the One-A-Day Active in the supermarket. I called the company, who gave me the usual speel (we don't add gluten to our product, but can't guarantee what our suppliers add) I decided to try. Today I have been quite sick, cramping, pain, etc. and everything I...
  23. judy04
    Gillian, I remember reading on the old board that this pharmacy in N.J. will make gluten free meds but I don't remember the name or what city it is in. Try doing a search, sorry I don't know more...
  24. judy04
    Hi, I used to have terrible pains and aches in my neck and shoulders. I saw an orthopedist, before going gluten-free, he said I had a little arthritis, but couldn't understand the pain in my shoulder. He wanted to diagnosis it as Fibromyalgia, but I didn't pass the test, you need to have several "pressure points" all over the body. To make...
  25. judy04
    HI Strack, I just wanted to let you know that an Endoscopy is not the same procedure as the ECRP. The ECRP is much more involved than the simple Endoscopy. Have you ever been diagnosed for acid reflux, are you taking medication for it? I was diagnosed with Barrett's Ring in the Esophagus and I must be scoped every year because it can become cancerous...
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