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JacobsMom

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Latest Celiac Disease News & Research:

Everything posted by JacobsMom

  1. JacobsMom
    Thank you both for the recommendations about the dairy...We are scheduled to go Wednesday to the allergiest...Jacob keeps grabbing his head and they want to look at his sinues....I am going to mention all of this to them...If I dont get there then I will try the elimination process....THANKS AGAIN... We just got in from vacation tonight and we overall...
  2. JacobsMom
    I posted last week all upset about the white blood cells...Well the nurse called today to tell me his results were GREAT...she said before he went gluten-free it was at 165...Not sure what was but whatever it is they tested...Dont remember the name...Well this time they were at 17...WOW that is alot lower...I asked her b/c she is alot nicer about the white...
  3. JacobsMom
    We didnt really notice anything until after we took Jacob off formula....People around us noticed how he looked before we did b/c we lived with him...By the time he turned 2 he was throwing up several times a day and the diapers were horrible....His belly too looked like the kids you see in Africa and you could really count and run your fingers along every...
  4. JacobsMom
    OKay that makes me feel alittle better...I know the nurse said she would be interested to see b/c he was at like 175 before...I didnt ask what was at 175...I should have...He told me if the numbers didnt look good he would call me back next week and tell me what he thinks is the reason for that and then test him in a month...But if everything looks good we...
  5. JacobsMom
    We went yesterday to the doctor for them to do the first set of blood test since Jacob has been gluten-free. I had all 5 of them written down to make sure this is what they were testing for...You know since they usually dont tell you anything...Well I asked him and he said he was only doing 2.. Anti-Endomysial EMA IgA Anti-tissue Transglutaminase I...
  6. JacobsMom
    Jacob was alittle over 2 when he had the biopsy..and I worried for NOTHING...The longest part of the procedure was waiting to get him in....He was groggy afterwards but did just fine...It was alitt funny to be honest...He wanted to get up and was like a DRUNK... You have nothing to worry about at all!!!
  7. JacobsMom
    Thanks alot...I am a newbie and have a 2 1/2 year old...This is GREAT!!!
  8. JacobsMom
    My little one is 2 1/2 and at first I freaked out b/c of the cost of foods but you learn what you can buy in the regular grocery that is regular foods that you just eat....I think my biggest was that I couldnt just go and buy cookies and snack cakes for him which isnt healthy for him anyway so I am glad that he doesnt get it....I do still buy SOME stuff from...
  9. JacobsMom
    I would talk to the doctor also before I did anything....You really need to take him to a Gastrologist...My son has a allergiest too and had been thru the skin test and when we found out he had Celiac I asked him why he didnt tell me and it is because it is not a skin allergy it has to do with his GI...I am so sorry your going thru so much...I know how much...
  10. JacobsMom
    Do yall know if the Garlic Power, salt and regular spices are gluten-free? I have noticed in Wild Oats and the places online that they sell spices but I didnt think that spices I would have to be worried about. I havent really lookes at the labels on any of them b/c being so new to the diet we havent gotten really brave to spice anything up with anything...
  11. JacobsMom
    Thanks...I guess if you look at the name you should know...LOL I just didnt think about it. But I am getting there...by trial and error
  12. JacobsMom
    I just read the post on the colorations playdough being gluten-free....Does playdough in Walmart and toy stores really have Gluten in it?? My child has never played with it but recently we had a friend tell me her little one loves it and I was thinking about getting him some. Gosh you just never know what Gluten is in....I am so new to this I focus on...
  13. JacobsMom
    My 2 year old is the one with Celiac...me and hubby havent been tested yet...I dont eat bread at all and never have...I do like Pizza thou....I have a 12 year old who has a locked cabinet with his snacks in them and he knows he must LOCK cabinet if he wants to keep it that way....Since I am cooking for a toddlar I use mainly 1 pan for his veggies and stuff...
  14. JacobsMom

    ARCHIVED Help

    JacobsMom replied to JacobsMom's topic in Traveling with Celiac Disease

    Oh great...My oldest is allergice to NUTS...so now I have to worry about that....We always ask but I am from Mississippi and they dont cook alot of stuff in Peanut oil...LOL Thanks for the comments....I told hubby last night we would just fix him a plate and take with us...Just to be on the safe side The people in resturants dont amaze me at all...
  15. JacobsMom

    ARCHIVED Help

    JacobsMom posted a topic in Traveling with Celiac Disease

    Has anyone been to Destin Florida and had to shop or try to eat out there? We are going there for vacation and plan on taking most of our stuff to cook at the condo but just in case...Anyone know anywhere to eat and the items...or anyone know anything about the stores there? Oh and I am feeding a 2 year old if that helps I contacted all the people...
  16. JacobsMom
    We are going for bloodwork soon...What do I need to look for? I was hoping that the Gastro doc would do bloodwork on Jacob every month but he says he wont but every 3 months... He has never said exactly what the blood work does so please tell me what to look for and what should be normal and exactly what they look for in the blood work... Thanks...
  17. JacobsMom
    Can you give me some suggestions....I feel like my poor baby eats the same stuff over and over!!! Jacob is 2-1/2 so his variety of foods is not that great:) It is so hard when you work to make alot of stuff and it scares me to buy stuff in the stores unless I know 100% that it is gluten-free....I feel alot of times that he is eating a full course meal...
  18. JacobsMom
    Hi everyone....We had Jacob's first doctor's visit on Thursday to see how he is doing...We have been gluten-free for a month...He gained 6 POUNDS...I was so happy. I think it finally hit us that going gluten-free IS working.....I would never take him off of the gluten-free diet even if I did have doubts but now that I SEE the results it makes it alittle...
  19. JacobsMom
    Hi, You can go to the website below and they have a list of ROCK ( Raising our Celiac Kids ) support goups in the US....Find your state and see if they have a group in your area.... There is a book by Danna Korn called Kids with Celiac that I have heard is a great book..I am new to the gluten-free diet myself with a 2 year old...I ordered the book last...
  20. JacobsMom
    Hi My 2 year old is the same way. We are newly diagnoised also about the same time as you. He has been gluten-free for about 3 weeks and his stomach is still huge also. Maybe it will just take time like everyone says...I also heard someone say they didnt see a difference for about 6 months... Good Luck to you I know exactly what your going thru. Sorry...
  21. JacobsMom
    Happy Easter everyone.... How many of you out there have to avoid dairy also??? Jacob has been gluten-free for about 3 weeks now and I can tell that he 99% better...I mean he is acting great and I can already tell he has put some weight on...We will find out on the 19th of April how much BUT his tummy is still swelling by the end of the day and he...
  22. JacobsMom
    Jacob's favorite snack has always been Honey Comb cereal so when all of this started I was like Oh Great....I have gotten some list and always on there is Kellogg's Corn Pops which he likes...I pick it up and look at the label and is says-- Contains wheat ingredients. Corn used in this product contains traces of soybeans. So I am confused as to why...
  23. JacobsMom
    Okay I dont think I will EVER take him back to the grocery with me. I left there all upset b/c he wanting everything he couldnt have. I had a better time with him at Wild Oats.... I am very confused....WHAT exactly am I looking for on the label?? I mean I know if it said Wheat Barley and Oats but are their KEY words to look for. I have the CSA book...
  24. JacobsMom
    Good Morning everyone....Well it has been almost a week since we started the Gluten Free diet and I am amazed at the changes in this kid. You wouldnt ever think that just by doing this it would help. I am so happy...I know have a normal little boy who is being a boy instead of a couch person... Does anyone out there give their children any special...
  25. JacobsMom
    I wish you all the luck...This is such a fustrating thing to have to go thru with little ones. My 2 year old was diagnosed with Celiac a week ago so we have been Gluten free for a week...I THINK:) STILL LEARNING....He had been sick for about 4 months and had lost alot of weight so I understand completely what your going thru...I felt like he was dying and...
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