mcc0523
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Latest Celiac Disease News & Research:
Everything posted by mcc0523
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I wish I could tell you... I'm in the same boat myself right now. My last GI doctor dx'ed me with Barrett's esophagus 10 months ago, and refused to check me for celiac when I asked, sticking with her IBS diagnosis. The IBS pamphlet in her office basically included a line stating that patients who have IBS might think they have other things and requested...
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Like the header for the title says, my test results came back with a normal tTC IgA and a slightly elevated tTC IgG. As my labwork says, I have "none detected" niacin, almost no Vitamin D, and I'm on the "low normal" ranges of the other vitamins I was tested for. Even with a little over a week of going gluten free, the nausea that has been a constant in...
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ARCHIVED Anxiety Relief From Going Gluten Free?
mcc0523 replied to carecare's topic in Parents, Friends and Loved Ones of Celiacs
When I was undiagnosed, I ended up in mental hospitals 12 different times. The majority of the hospitalizations were after a gluten binge (cookies, crackers, bread... any commercial wheat based product). My two suicide attempts were after eating pretty much nothing but wheat the week or two preceding. I've been gluten free for a week now. The past few... -
ARCHIVED How Many People Are Actually Self-diagnosed?
mcc0523 replied to no-more-muffins's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Like many of the illnesses in my signature, I diagnosed myself with celiac first. Actually, I'm not "official" right now, but a high IgG from recent lab work (I only got it after I called a month later and made them fax it to me... ) and symptom relief from avoiding gluten pretty much speaks for itself. After many years of "IBS", depression, nerve pain... -
ARCHIVED Can Celiac Do This?
mcc0523 replied to sforce's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
In addition to Ehlers-danlos syndrome, perhaps you should look into autonomic dysfunction (or dysautonomia). My particular brand is something called Postural Orthostatic Tachycardia Syndrome. Postprandal fluctuations in bp and pulse are not uncommon. Dysautonomia is common with us who have EDS (I can't remember exact percentages right now, but MUCH higher... -
ARCHIVED Actually Praying That I Have Celiacs...please Read!
mcc0523 replied to zebaldwin's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am so new to this that I cannot even say that it "sounds like" celiac. I just wanted to let you know that I completely understand that you wish you have celiac. As you can tell by my signature, I have many health issues that have been diagnosed. The majority of them (especially the POTS, EDS, and osteoporosis) were just diagnosed within this past year... -
I attend a Byzantine Catholic (or Unitiate) church, where the Divine Liturgy of St. Basil is prayed every Sunday. There are two other individuals in the parish who do not consume gluten, so Father has a separate chalice, with ONLY the blood in it, that is consecrated along side everything else. When they are in line to receive, Father trades out the "traditional...
