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jeslk

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Everything posted by jeslk

  1. jeslk

    ARCHIVED Vommitting

    jeslk posted a topic in Coping with Celiac Disease

    i would love any thoughts about some recent episodes I've had. Background is that I was diagnosed with celiac disease in 2011. It's always been described as "silent celiac" because I have never had symptoms and felt fine even at diagnosis. My doctor ran the test because of some vitamin deficiencies. I went strict gluten-free immediately and am very...
  2. jeslk
    Hi all! Any updates on this? I have been having the worst time since switching to levothroxine after Levoxyl was discontinued. Went from severely hyper to hypo within three weeks at same dosage. And the levothroxine itself doesn't seem to agree with me. I was on synthroid for a year w no problem but when I got the celiac dx my doctor moved me to Levoxyl...
  3. jeslk
    We just had my daughter (4) tested for celiac. The IgA came back <2 and the Immunoglobulin A, Qn, Serum came back as 119. So both negative. The genetic markers, on the other hand, are positive, Initially I thought it was two markers, DQ2 and DQ8, but the doctor explained that there are actually four variations on each, for a total of eight, and she...
  4. jeslk
    Thanks Stephanie! My daughter's doctor called this morning and said he strongly urges us to switch her to gluten free. Turns out she has all eight (when you count the sub-markers?) of the genetic markers and so he said there's a much higher likelihood of her developing celiac in her lifetime and that by the time there's a biopsy diagnosis damage will already...
  5. jeslk
    I was diagnosed with celiac two years ago. My primary doc did genetic and general celiac panel for the initial diagnosis, which was then confirmed by biopsy. I have silent celiac so I've have never had a physical symptom / reaction to gluten. I have had two types of cancer, though, and am not convinced there isn't a link. I've been entirely gluten free...
  6. jeslk
    Gemini - thank you SO much for such a detailed and thoughtful reply! I do feel happy with the results and will now just aim to keep plugging away. Thanks again! Jess
  7. jeslk
    Hi folks, I've been gluten-free since mid-February, after blood work and endoscopy confirmed Celiac. I never had symptoms (the diagnosis came accidentally), so it's been impossible to tell whether or not the gluten-free diet is working. Just had labs done, and here are the results: Deamidated Gliadin Abs, IgA 7 (previous 15) Deamidated Gliadin...
  8. jeslk
    Want a pep talk? Only read below if you are ok with it being a litle harsh . . . * * * * * * Look at my signature below. I can't prove that the two cancers are related to the celiac disease, but several docs think it is very likely. And I don't have any outward symptoms, so there is nothing to keep me on track every day but the fear of more...
  9. jeslk
    You've already gotten great advice and I'm a newbie myself, so I'll just add this: I was diagnosed with celiac last month and I felt fine. I didn't even know my doctor was running the test. As you can see from my signature below, though, I'm not exactly drama free when it comes to my health. Please feel free to have your wife email me if she's looking...
  10. jeslk
    He's one of the best things that has ever happened to me. In fact, I trust him with my celiac issues more than the GI . . . they aren't always easy to find, but if you can find an integrative and/or "functional" medicine doctor - DO IT.
  11. jeslk
    Actually, he did know about it. He's a great integrative physician and is the one who discovered the celiac even though I wasn't complaining of symptoms. He suggested waiting, though - said that until my blood tests for the celiac get to negative, it will be hard to tell what's causing what. So the plan is to revisit the idea in about 6-9 months.
  12. jeslk
    Thanks - never heard of that. Will ask doctor about it tomorrow.
  13. jeslk
    As far as I know, I don't have any symptoms at all. But I do have celiac, even without the symptoms. And my oh-so-bad health history (see below) leaves me not wanting to take chances. But gluten-free is a big adjustment in and of itself, so I don't want to force myself to cut anything else out unnecessarily.
  14. jeslk
    It has been recommended to me that I try and determine whether or not I also have allergies to dairy, soy and corn. But it isn't clear HOW to figure it out. One nutritionist suggested cutting them all out for several months and then reintroduce them one at a time. The gastro doc I saw said it isn't necessary at all, my pcp thinks it's a good idea but...
  15. jeslk
    I'm still new to this so all I know is that I need to do follow-up testing in 6 months. I plan to see a celiac specialist around that time and ask about continued testing.
  16. jeslk
    LOVE the dog idea! And while the second idea may be cruel, I did tell my cousin that I was happy she showed symptoms because it would help me know what to avoid. I really am not a horrible person - I swear!
  17. jeslk
    This is part of the confusion, though. My understanding from doctors and nutritionists is that EVERYONE is sensitive to cross contamination - some just don't have immediate outward symptoms (in my case, I'm really worried that the damage could be worse). I'm pretty sure I've read that the disease is equally sever for everyone, some of us just don't know...
  18. jeslk
    I don't think I do. The only thing I can point to is that I've been slightly depressed for a few years now - I've always attributed it to the stress of my first cancer diagnosis, plus the daily stresses of work, kids, etc. - now I'm wondering if maybe the celiac has something to do with it. Even if it does, though, it really is not much to speak of - a...
  19. jeslk
    For me, being diagnosed with two types of cancer makes it VERY easy to stick to it. I mean, I HATE it and soooo wish i could eat some of my old favorites, but i haven't considered cheating yet (im still new to this, though ) I can't prove that the cancers are related, but I'm not taking any chances. I think that's why I'm so paranoid about not...
  20. jeslk
    I don't react, and it has me stressed for two reasons: first, I'm worried that I won't know about cross-contamination and could be hurting myself without knowing it. And the second reason is that there are a few people in my life that insist that I shouldn't worry so much about cross-contamination since I don't have symptoms. They act as if I'm being paranoid...
  21. jeslk
    Looks like we are in the same boat. I am 8 days in, and have never had symptoms that I was aware of (as my signature shows, though, I've had my fair share of health issues). My husband and 2 year old still have some gluten, although not much. Thankfully, my husband is very supportive. I have to say, though, this sucks!!
  22. jeslk
    Yes, I meant immediate symptoms of being glutened. It's precisely because of the two cancers that I am concerned I won't know if I'm accidentally ingesting gluten and causing more damage.
  23. jeslk
    Wow, it really is crazy, huh? So I guess what I don't understand is whether or not gluten is effecting me the same way, even if I don't get the outward reaction . . . I keep get g mixed messages, since I see some people saying that you have to figure out what your tolerance is. Is there such a thing as gluten tolerance for someone with celiac?
  24. jeslk
    I've been doing a lot of reading on this forum over the past two days, and I'm starting to get really freaked out about getting "glutened.". At first I wasn't worried at all because I don't have any outward symptoms, but now I've come across several posts indicating that even a crumb can cause damage! I mean, is it really true that coming into contact...
  25. jeslk
    Thanks! I agree that I likely have different symptoms than most would associate with. Celiac. I tried the link but it didn't work - can you resend? Thanks!!!
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