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jesimae

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by jesimae

  1. jesimae
    I’ve been gluten free now for eight years. I have had two separate biopsies confirming celiac disease. I’ve had scopes since diagnosis that showed regrowth of microvilli. The diet has worked and I gained back all the weight that I lost before diagnosis. Lately, I’ve had some alarming symptoms. I’m having trouble making certain expressions with my face...
  2. jesimae
    I went through the same stuff at work. Fortunately, my husband has a great job, and I was able to come home. It's hard to deal with. I have a degree I'm not using. I feel non-productive at times, but my kids need their mother, and my body simply would not cooperate with me working. People do not understand. They do not understand no gluten, ever. I have Lupus...
  3. jesimae
    Hey guys! A year after being diagnosed with Celiac (3 years ago), I was diagnosed with lupus. Most of the time I can tell which one is bothering me by my symptoms (and I usually automatically know when I've been glutened). For the last 6 days I have been exhausted, diarrhea, headaches, dizziness, facial rash, vomiting, body aches, and hot flashes. I have...
  4. jesimae
    Saw my GI doc yesterday, and he wants me to see a surgeon for fundoplication. I am doing very well with my diet. Scope was good. Markers down, but I still have horrible reflux! I sleep almost straight up, take 60 mg of prilosec and many tums throughout the day. I've tried prevacid, nexium, and carafate. They either did nothing or had really bad side effects...
  5. jesimae
    flowerqueen I've been wondering about that. I am not sure how to find out which drugs have gluten???
  6. jesimae
    Went to doc today. He put me on carafate and set up a GI consult. I have not seen a specialist since we moved here 2 years ago. He fussed at me about not going to see GI doc. He said I should be having an EGD every 6 mos to a year. He said esp since I have Barrett's esophagus. Waiting on scheduling. However, I took the carafate and was waiting an hour...
  7. jesimae
    I have been gluten-free for 2 years now. I'm careful, but have glutened myself a couple of times. The last time was just before Christmas, when I had to get IV fluids from dehydration. I was vomiting and having diarrhea so much in only 4 hrs that I needed 2 bags of fluids just to get my blood pressure back up to somewhat normal. First off, it seems that...
  8. jesimae
    Please help me! Been gluten free for 18 months since diagnosis. Wendy's website says their frosties are gluten free. Lots of stress going on. My daughter didn't eat hers. I looked it up (didnt think myself very sensitive). Yay, gluten free! Gobbled it up. Sick within the hour. My mom checked the ingredients: malt. That was Wednesday night. It's Sunday morning...
  9. jesimae
    All labs normal. What the heck? No anemia. B12 normal. Still waiting on porfyria. What is wrong with me?
  10. jesimae
    Oh and suicide crosses my mind a lot, but I shake it off and press on. I don't want to die at my own hands.
  11. jesimae
    Yes. I am very angry. I hate the inconvenience, the texture of most gluten free products, that I'm starving, the effect this illness has on my family, the tendency to blame every symptom on celiac, the questions people ask, the nightmares I have about eating pizza on purpose because I'm sick of the diet, and most of all, the lack of support of my husband...
  12. jesimae
    No oats. No brm. Had a come to Jesus meeting with my husband. I think he will be more understanding and supportive now. The past 2 days my blood pressure's been low, and I'm urinating all the time. I stopped taking the steroids. I had those symptoms before when the doc thought I had Addison's. Hmm... Just waiting on test results...
  13. jesimae
    Steroids help with the joint pain and the rash. I have gotten this rash periodically since I had mono in high school. Doc just started treating with steroids last year.
  14. jesimae
    Hillside is supposed to be biopsies. Stupid smart phone! Lol
  15. jesimae
    Interesting u should bring this up. One doc I was seeing when I first got sick, swore I had Addison's. I had low blood pressure, low aldosterone, craving salt, low sodium and potassium, fainting spells, low adh, dry skin, brittle hair, other things. However when my tests and hillside from the GI doc came back showing celiac and barretts esophagus, all those...
  16. jesimae
    Got a Rx for prednisone. Forgot to mention the rash on my face. I have tested positive for lupus twice in the past but saw a rheumatologist that said I don't have it. Today he drew a cbc, bmp, tsh, b12, and some type of screen for porphyria, a genetic autoimmune skin condition that is affected by sunlight. He thinks all of my symptoms are caused by...
  17. jesimae
    Thanks guys. I'm in the waiting room now. With my list.
  18. jesimae
    At home I eat meat and veggies. I don't appear to have any probs with milk, so I eat milk and cheese. We have a totally gluten free deli/bakery down town, so I get a lot of stuff from there. My husband, however, insists that I eat out with him once or twice a week and that gets tricky. I try to steer him to places with a gluten free menu, but that's not...
  19. jesimae
    I'm starting to think I have something in addition to celiac. I am steadily losing weight. Went from a size 10 at diagnosis to a 2. My hair is falling out, I'm pale, I have no energy, headaches, dizziness, blurred vision, nystagmus, and just look and feel terrible! Any ideas? Anyone else experience this? Not really having any GI symptoms...
  20. jesimae
    HAHAHA! I shall showeth thy commandment unto mine husband, who shalt hide it in his heart, lest he tempt me beyond that which I am able to withstand!
  21. jesimae

    Funerals, lay offs, moving, and Celiac...can I get a breath, please?

  22. jesimae
  23. jesimae
    I'm feeling better, other than a headache that refuses to go away. My husband's ignorant suggestion after we left the restaurant was, "So go take a benadryl." Ugh! I have explained and re-explained til I'm blue in the face! He's been here the entire time while I wasted away 40 lbs, saw me sick, took me to the ER, AND paid the bills! Why can't he see how serious...
  24. jesimae
    Thank you for posting this. I wanted to try this the other day, but decided to try it later. Definitely gonna try it now!
  25. jesimae
    This morning my husband (who refuses to see the importance of me not eating any amount of gluten), begged me to go out for breakfast. I thought about what I could order before we got there. Eggs, some bacon, maybe an omelet, some fruit... Well, while I was trying to order, we had one of those waitresses who changes your order for you to save money, and...
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