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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by cszymanski12
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Thank you, and I agree completely with you on the idea that I dont want to put myself through it all again. I had a grocery list of symptoms and systems that were affected and I was so sick. I have the diagnosis of gluten intolerance by my GI right now which is still better than not having the doc diagnose me at all and having to self-diagnose. However, I...
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I have been fighting this journey for a couple years now and after all the numerous doctors the one I have finally has a brain (at least one that comprehends this disease).... However, it took my allergist to push him to get to me getting currently diagnosed with Gluten Intolerance. Well my doctor is not the smartest, because why wouldnt he have just done...
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ARCHIVED Cat Food And Gluten
cszymanski12 replied to IrishHeart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
OH!! Speaking of you mentioning the test and being gluten-free for 5 weeks and then getting tested. Well I have been gluten-free of course but they are going to do the blood test or again for celiac and then he wants to do the one for the genetic thing. But I know that it will affect my test so how soon before do i have to eat gluten again before it??? My... -
ARCHIVED Cat Food And Gluten
cszymanski12 replied to IrishHeart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Book sounds great I just looked it up I have come to learn that books, others such as many of us on here, and friends or family that have it are our best choices. I too had the help from a friend that has celiac and a instructor I had on clinicals in school that I still keep in contact with. I completely agree, they were the ones telling me no screw the doctors... -
ARCHIVED Cat Food And Gluten
cszymanski12 replied to IrishHeart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I couldnt agree more I think that the rest of the house needs to be free of gluten as well. Not for the temptation but more the sneaky little things that get into our food and things we use that make us feel icky. I have thrown away almost everything, still working on accepting that I have to make a new life. But it is well worth it because its not worth... -
ARCHIVED Cat Food And Gluten
cszymanski12 replied to IrishHeart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks so much!. Oh my I just looked and yes this Aveeno has the oats no wonder why Im feeling twice as bad using it. Im stopping it immediately and im going look into that lotion you mentioned. I get so angry when I realize things like this. Its hard maybe because im so new at it. But I am making the little mistakes with things that are small but are... -
ARCHIVED Cat Food And Gluten
cszymanski12 replied to IrishHeart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am familiar with food its a good one that you do not have to get a prescription for in order to have your kitty on it. I am still in the process with getting used to everything myself and I have realized so many little things can cause a fork in the road for complete recovery. I am going for a biopsy of the rashes i have in the next 2 weeks to find out... -
ARCHIVED Cat Food And Gluten
cszymanski12 replied to IrishHeart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
i read your little story and I have a suggestion that can be of help. Im a veterinary professional so I myself had to pay attn to my cat's food and treats. There is a diet call d/d venison and sweet pea both dry and canned cat food by Hills. Its prescription so you will have to see your local veterinarian to be able to get it. My one cat actually after I... -
ARCHIVED Biopsy Negative...crying
cszymanski12 replied to Stellar003's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I actually have a question regarding eating gluten again before you are going to get tested which for me will be the second time. I am non-celiac gluten intolerant but my GI wants to do the tests at his office so he is comfortable with my diagnosis. I dont quite understand why he didnt just do them and then have me get the other tests but he seems to do everything... -
ARCHIVED Biopsy Negative...crying
cszymanski12 replied to Stellar003's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I just read your comment and this book sounds like a great one. Do you have any suggestions where I would have the best luck to find it like amazon or any stores?? This would be a huge help for me since I too am non-celiac gluten intolerant. I have become very fond of reading these books and they are also very comforting. The one that I also have that I love... -
ARCHIVED Biopsy Negative...crying
cszymanski12 replied to Stellar003's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
There is both the biopsy which so many doctors love to call the "gold standard" which it can be and there is the blood test which will test for the antibodies in the blood. Yes you can have neg results and still be a celiac, however there are different variations to that. My post above yours explains partially about testing and I know many of the more experienced... -
ARCHIVED Biopsy Negative...crying
cszymanski12 replied to Stellar003's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Reading your post brought me back to not too long ago how I felt/still do feel. It is something that many don't understand besides those who may be going through it. The most unfortunate thing is that the patients (us) know more than alot of these doctors. There is so much research continually being done to try to help those who are fighting for their diagnosis... -
ARCHIVED Overwhelmed With Going Gluten-Free And Shopping!
cszymanski12 replied to cszymanski12's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you! I will have to try Kroger, I am more than open to go wherever I can. I feel like it is different with each and every one of us what we can tolerate. We all at least have in common that gluten is an absolute poison. I feel it is just super hard to get a grasp when buying something because Ill see its gluten free and want to get it but then I realize... -
ARCHIVED Overwhelmed With Going Gluten-Free And Shopping!
cszymanski12 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hey everyone just an update here. I went to the grocery store and got my start on strict gluten-free foods. I got rid of everything that I had that I knew was going to be tempting. This I mean in the sense of just the foods all being in my pantry and missing being able to eat those things. I wont go back now because feeling like your going to die is not worth... -
I am going to the store with my friend who is a celiac tomorrow! Thank you everyone. I feel like I have a extensive network of family on here almost. It honestly would top anything a doctor could ever present compassion upon. I additionally send out prayers and hope for anyone else who is going through this beginning stage, and those who have been fighting...
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I appreciate that! I would your judgement especially because Im sure that you went through many more years of tears, frustration and pain. I honestly cant say now that in hearing it over and over I dont agree the diet is the best idea strict diet. Because this is the treatment for it either way. Why not save myself the money time and suffering. Im very sorry...
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In regards to the whole Provera thing I completely agree. My gynecologist had absolutely no idea what he was even thinking in regards to that. I have the issue of cysts on my ovaries and my gynecologist has continued to monitor my reproductive region my grandma (mom's side) had to have one of hers removed and my mother has PCOS so they are making sure that...
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I was going to ask about the idea about a prescription for my nausea. I was on another anti nausea medicine but I cant remember the name and my mother who is a nurse just for my well being wanted me to try hollistic based approaches and try the teas my friend recommended. They of course help however I think I really could use an anti nausea medicine again...
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Thank you so much for giving me that site to help with the DH diagnosis. I will start to get that looked into asap so that whatever it is I can start to get on my way for diagnosis and begin to heal as everyone has said. I didn't think about the parallel between celiac and MS thank you for pointing that out. My family is becoming more aware of celiac...
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Thank You! That would explain why when Ive been eating ice cream and cheese with my gluten-free stuff and the sour cream that Im having issues still and feeling bad. I did not know that. Like you said the biopsy will tell if its DH and I know that it comes and goes and there are other rash type things associated with this whole disease. I will def fight to...
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Thanks for the helpful advice. Im sorry for ranting and babbling. I just need to vent about all this because its so frustrating when the doctors are just wasting time picking off one thing at a time for your diagnosis. I have started completely on gluten-free now and I feel much better. Im still feeling sick still sometimes and I think that might just be...
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So I am fairly new to this all and I am slowly learning day by day the extensive detail and such of celiac disease. I honestly feel like I know more than these doctors do! I had a colonoscopy and endoscopy with biopsies. No blood test was done and has not still been done or skin biopsy of my rashes. The GI found hemorrhoids and a few areas of concern so he...
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ARCHIVED Newbie !
cszymanski12 replied to honeypie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you so much for the comfort and helpful information. I have to say it is exceedingly helpful to just see everyone's thoughts and what they have to say. It just is so helpful knowing that your not alone and your not "crazy." I literally have just dug as deep as i can regarding my symptoms and such just to figure out what is going on. It feels like everyday... -
ARCHIVED Newbie !
cszymanski12 replied to honeypie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi! I am a newbie as well. Im almost 21 years old and I have been fighting to figure out what is wrong with me for quite some time. I was experiencing intermittent symptoms that are now almost chronic for the longest time. I said nothing to my doctor or anyone else because I knew they would think I was crazy. Who would believe that literally everything...