Marie1976

I am dealing with neuropathy (I guess that's what it is) in my hands and arms. It is sometimes really painful. I used to think it was caused by accidental "glutening" but I am getting it more frequently. Does anyone else have this problem? Is this celiac-related or ... not? Just wondering about other celiacs' opinions/experiences on this.

Apologies if someone has posted this already. This article makes me so mad. It's on yahoo news and I'm just wondering what you all think about it. I have celiac disease so I'm not really who they are talking about here, but it still makes me mad.The last thing I need is people second guessing my need to be gluten free! Grrrr! Open Original Shared Link

LOL at all of these, I can totally relate. I've been vegetarian for over 20 years and vegan for 10+ so I'm totally used to people asking completely idiotic questions and making dumb remarks about what I can/can't eat. Maybe that was practice for being diagnosed with celiac because I get even more people who are clueless. And I hate when people say "I could...

I did have to replace the toaster and make our kitchen a gluten free kitchen. Maybe some people aren't that sensitive, but I am.

I have been a vegan for more than 10 years, and a vegetarian for more than 20 years. I was diagnosed with celiac a couple years ago, so that meant I had to give up most meat substitutes (like veggie dogs) as most of them are made from gluten. That leaves tofu, which I keep hearing is really not good to eat a lot of. :/ I never missed meat until I had to...

Thank you everyone for your responses. My doc that did the endo had me in a year after the endo and did a blood test and said it looks like I'm still getting glutened and that I need to make sure that I don't eat ANY gluten -- even stuff that says "made in a facility that processes wheat" blah blah blah. So I have been more careful since then. I am finding...

Does anyone know if celiac damage is linked to serotonin imbalance? I have heard that serotonin is produced in our intestines and I'm wondering if everything is supposed to get ironed out after eliminating gluten or does the lingering intestinal damage mess with serotonin levels? Am I making sense? My endo showed a lot of damage apparently. I have been...

Thanks for the suggestions and info everyone!! I don't have any B deficiencies, which is probably pretty amazing considering vegan diet/celiac. The best I have ever felt was right before i had kids, maybe they are just sapping my energy, haha! Seriously though, I wasn't eating very much food at that time, mostly salads and smoothies, so it may have been...

Hi Bee, I just wanted to say that I know how you feel, we've all been there. This is a great forum. I have been depressed about having celiac too. When I go somewhere I often bring my own food. I do think it makes people feel weird, but I would rather risk offending someone than chance getting sick by eating their food. I also still go to dinner with friends...

OK I have a couple of questions. (Background: I was diagnosed with celiac a couple years ago, and have been on a strict gluten-free diet ever since.) 1. Is corn masa gluten free? I bought a bag of it from Albertsons and made tamale pie. I was sick as a dog the next day. Was it the corn masa? I thought it was just made out of corn?? 2. My next question...

I read that Bulleye bbq sauce is gluten free, but I notice it says it has modified food starch? I thought modified food starch was questionable? We're going camping and my husband wants to bring this bottle of Bulleye sweet and tangy, is it OK for me to eat this stuff? Thanks in advance!

Thanks for the info, everyone.

I don't know if this is a related disorder (isn't everything related to celiac? ha ha) but I was wondering if anyone knows of a good TMJ forum/message board. By good, I mean like this one -- where people are posting all the time, and not like the TMJ boards that I've seen that nobody has posted on since 2003. I'm being driven nuts by TMJ issues lately......

I agree about certain things not needing "awareness" at this point. Really who the hell isn't aware of breast cancer? That's not to say it's not serious -- I have had several members of my family that had breast cancer. But it's the unknown ones that need awareness! If I had been aware of celiac disease (or bladder prolapse!) I would not have suffered as...

No. Pyroluria is a genetic condition involving an abnormality in hemoglobin synthesis.