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Tyson Holly MD

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  1. Tyson Holly MD
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  2. Tyson Holly MD
    Wondering if you had any follow up for us on this. My serotonin and gastrin levels just came back elevated but have yet to hear from GI what the next step is going to be. My genetic test was also positive(first positive test other than chronically elevated lymphocytes, elevated esr and crp, and electrolyte abnormalities but no real "celiac" tests were positive...
  3. Tyson Holly MD
    Very interesting and makes a ton of sense!
  4. Tyson Holly MD
  5. Tyson Holly MD
    I just spoke to the lawyer who is among the group processing the huge case up in NJ right now with the actor from " A Few Good Men ". This actor has a diagnosis of celiac and IBD, not crohns or UC. The lawyer was VERY interested in my case and the research out of the University of Chicago, ironically where I did my residency. Go here to see the recent press...
  6. Tyson Holly MD
    Thanks for the warm welcome! I'm honored to be a part of such a smart, well informed, caring community and I know we can make this a well known disease! This is a tough question, and one that I'm currently grappling with. In the hospital, J ( my amazing fianc
  7. Tyson Holly MD

    Hi Tyson Holly MD... I posted a question for you on your original post. ;)

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  10. Tyson Holly MD
    I just called these guys. Sounded like a high school or college intern who answers and takes information. He had no idea what celiac was and kept asking over and over if I had crohns or colitis. I hung up. Ridiculous. Don't waste your time.
  11. Tyson Holly MD
    There is new research out of University of Chicago on 2/10/11 linking celiac and accutane. They were able to induce full blown disease in mice but only if they were ready susceptible. This happened to me, but I see it as a blessing. It forced my diagnosis. or else I could be like my dad, who's had miserable gi issues his whole life. Still mad at Roche (drug...
  12. Tyson Holly MD

    ARCHIVED Doctor Search

    Tyson Holly MD replied to gracie1's topic in Doctors

    I am a traditional western medicine doc who was treated so poorly by my colleagues that I went to a chiropractor who specialized in nutrition and homeopathic medicine. I was hella skeptical but he is brilliant and knew so much more about food intolerances than any of the THREE GI specialists I'd seen. You may give them a try. If not, I can highly recommend...
  13. Tyson Holly MD
    I am a doctor and had severe migraines since puberty, where I have to give myself injections and I've been hospitalized twice. I realized that both times before hospitalization, I had a GI bug that I thought I'd caught from work. Now I KNOW that it was a gluten flare. I too got headaches 4-5 times a week. And I thought they were related to insulin levels...
  14. Tyson Holly MD
    I had two small bowel aspirated while in the hospital. Both fine. It's an uneducated GI doctors go to diagnosis for celiac symptoms. The burning and white tongue are glossitis, which is well known in celiac. Make sure NOTHING is getting thru the diet. Maybe try allergy testing. It seems like you're still reacting. My tongue cleared up almost immediately and...
  15. Tyson Holly MD
    I'm so sad reading this. First of all, I'm new to the forums. But they may have saved my life. I am a doctor of emergency medicine at a well known "research" hospital. I just spent over a month in the hospital with every type of horrific test you can imagine. I was getting so much worse in the hospital that my Fiancee and I were forced to do our own research...
  16. Tyson Holly MD
    I strongly believe that it's the type of flour with all it's enrichment that is making everyone sick. The adding of non-natural vitamin states to the flour can trigger your body to remove it bc it sees the vitamins as invaders or artificial. If the gluten is attached to the wheat, then your body attacks it too bc it's not as specific as we'd like it go be...
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