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milkmommy

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Everything posted by milkmommy

  1. Forgot to mention meds like Imodium do not help although my dr told me to just use it multiple time a day. Potatoes dont bother me
  2. Hi all. I'm looking for some advice. I have been diagnosed with celiac for over a year now. Going gluten free has helped my constipation and nausea but now I have issues with diarrhea, urgency. I am very strict about gluten although I once had it unknowingly and my only symptom was the constipation which was a welcome change. It seems now if I eat fruit...
  3. Have you looked into other food intolerances such as dairy? Corn? Etc.
  4. I realize this thread is old but I was wondering if you found out what was wrong with your child? My 2 year old has the same symptoms and high igg
  5. Hi all Just wanted to let everyone know there has been an alert put out against Healthy Times brand Brown Rice Cereal for Baby. It has unclaimed gluten in it!!! Here is the link if you are curious Open Original Shared Link
  6. Thanks for the fast replies!! I've been trying to figure out if maybe there are other intolerances but have now gotten to the point were everytime I eat solid food I get nauseous, abdo pains. It doesn't seem to matter what it is, even plain white rice!! I've only been having liquids today but still have symptoms plus a headache from hunger. I called...
  7. I've been gluten free for almost 3 months but am still sicker than ever. After previously posting on here, I got many responses saying I was probably being contaminated by gluten. This seemed very likely given my situation but I just found out my ttg levels have dropped to normal range. They are 14 and <20 is normal. Can you have normal ttg with contamination...
  8. Haha. It's worth a try!! Ive talked to him everyday about this issue and even still he stood in the kitchen eating a sandwich spilling crumbs on the counter and floor. Then didn't wash his hands and opened the fridge, the bottle of pop and the baby gate. Then today he made a pizza and the leftovers have been sitting on the counter for 3 hrs with crumbs...
  9. I'm in the same situation. I don't have any advice but wanted to offer you support. I feel the same as you do and will post if I figure anything out. The people on here are so supportive, so post your questions and feel safe to vent!! A few things I have learned from here are 1) cross contamination is a huge issue and should be the first thing considered...
  10. Oh wow. Taking dairy away will be hard if she can't have cheese or yogurt. That's all she really eats. Are there any yogurts substitutes? I've seen tofu cheese I could try for her, ( used it as a treat for my dog who is allergic to dairy, all grains and common proteins sources) Is their casein in human milk?
  11. Hi, I have no advice but want to let you know I'm in a similar situation..... I'm 32 and just diagnosed with celiac. I also have ibs, hypoglycemia.....along with other things. I really wonder if they are all related too!! They must be. I also really question the ibs diagnoses. The drs are missing something.
  12. I have actually just started limiting both of our dairy a bit to see if it helps both of us. she still eats yogurt and cheddar which i here should be okay, and lactose free milk on cereal. And since she has to go for allergy testing for penicillin, (got hives last week), I convinced the dr to do food allergies too!!! YEAH!! SMALL VICTORY!! ...
  13. My daughter is now 30 months but has been having difficulty since birth. She was born with a distended abdomen and it's never gone away. She had very loose stools for the first 6 months and "colic". Then she switched to constipation and now has to take laxatives everyday. Her constipation gets so bad she bleeds when she goes and has completely stopped using...
  14. He seems to understand celiac disease in theory and why I can't be contaminated but when it comes to real life he doesn't think when he does things. I only cook gluten free meals because I'm refuse to make 2. sometimes I will make my daughter gluten food and I do buy things my hubby can quickly heat up like pizza pocket,etc because he tends to eat frequently...
  15. I can try the rice recipe, ill try anything at this point. I even tried a cereal that looks just like cheerios but she just wouldnt eat it. Im not on any supplements, i was told I wouldnt absorb them until I was healed. I am going to go and get some though because even if i only absorb a small amount its better than nothing. Despite eating lots of broccoli...
  16. oh if only Marilyn!! and they would have to decontaminate before coming in!!!
  17. I'm wondering the same thing and will be watching this post to find out!!! This happens to me alot with my little one!!
  18. Today I came down to the kitchen and my husband left a half eaten piece of bread on the counter surrounded by crumbs!!!! POISON. And that was the counter I asked to be gluten free!!! He knows better but I can't get him to comply. He just doesn't think of it when he does these things, I guess. I will try to get further testing done if the dr with go for...
  19. milkmommy

    ARCHIVED Frustrated With Drs

    Thank you for all the thoughts and suggestions. I'm so glad this site exists!! I will try the Supplements suggested. I will decrease the amount of gluten containing products in my home as much as my family will tolerate. I will attempt to contact my dr about further testing.
  20. milkmommy

    ARCHIVED Frustrated With Drs

    I forgot to mention I am iron deficient, and my b12 is normal. They did test those a month ago.
  21. milkmommy

    ARCHIVED Frustrated With Drs

    I am getting so frustrated with my dr. I was told and have read that, after being diagnosed with celiac, I should be thoroughly checked for vitamin/mineral deficiency and have a bonescan. Neither my family nor gi dr has ordered them. I haven't pushed the issue but am thinking I should. I have symptoms that Might fit ....horrible brain fog, vertigo, light...
  22. I'll try having another talk with him. My little girl won't eat smoothies or oatmeal. She has a hard time with textures and taste of different foods and will only eat cheerios, banana/rice baby cereal, broccoli, artichokes, bananas, pasta, rice, and cheese. She is still breastfed to help fill the nutritional gaps. Im beginning to wonder if I...
  23. I think you are right about the 2 year old. She puts her food everywhere. I tried making her gluten free but she only eats a few foods and she wasnt getting enough to eat. I am wondering if she has celiac - her ttg and iga came back normal but her igg was off the charts. about the contamination - she spills cheerios and pasta freequently and even puts it...
  24. thank you for responding. To Marilyn The last few days I have eaten enjoy life berry cereal with yogurt every morning, pineapple, plain bbq chicken, broccoli, ice cream, baked sweet potatoes, baked white potato, sour cream, chives, sunbutter snack bars, havarti cheese, orange juice, vitamin water, chex cereal, apples, homemade cheeseburger. To T...
  25. I will try cutting out some dairy. I have been eating ice-cream and milk. For some reason I have become addicted to sour cream an meat( never ate much of it before going gluten free) I think I might be getting contaminated from my 2 year old and my husband but can't seem to figure a way to not be. Both are careless with their gluten foods and there are crumbs...
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