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milkmommy

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Latest Celiac Disease News & Research:

Everything posted by milkmommy

  1. milkmommy
    Depite being gluten free for 2.5 months I am still unwell. I'm hoping to get some advice for what I can take to get my body healing better/faster. The only nutrient deficiency i have been tested for is ferritin which is low at 10 and is dropping my hgb abit to 112. But the dr says there is no point taking supplements because I won't absorb them till I'm...
  2. milkmommy
    I have been gluten free for 2 months. The first month I was sicker than I ever had been which I think was for the endoscopy irritating my inside. Then for 1 week I felt better than ever. Following that I have been as I was before going gluten free but with more problems. Huge weight gain, low blood sugar,( I'm not diabetic), short term memory loss, dizzy...
  3. milkmommy
    I have been diagnosed for with celiac for a few months now but just got my biopsy results in. When I saw the gi for the first time since diagnosis he didn't say much and I didn't see the results until I left the office so I didn't get a chance to ask questions. He seemed like it was an open shut case of celiac and thought the reason I wasn't getting much...
  4. milkmommy
    Thank for responding How can I get more info on the "Whole food diet" that is mentioned? Maybe I need to do it because I am getting worse despite a gluten free diet.
  5. milkmommy
    HI Everyone, Im am wondering if anyone knows if there is a correlation between what is seen on an endoscopy and recovery time or marsh score? I havent seen my GI for the biopsy results however my family dr gave me a printout of the endoscopy procedure. It stated "loss of folds, nodular mucosa and scalloping in the first and second portion of the...
  6. milkmommy
    Thank you for the information NYCceliacmom!!!!
  7. milkmommy
    Thank you for responding I have still been eating dairy in the form of yogurt and cheese. I also have tried some gluten free products. In particular I eat an 'enjoy life sunbutter bar everyday'. I have been eating a fair amount of rice and corn chips too. I already knew msg, aspartame and any vegetable with a skin( peas,corn,etc) cause me great pain...
  8. milkmommy
    HI, I am not sure if this is normal or if anyone has a similar experience but I am I would love to figure out whats going on. I went gluten free 13 days ago after an endoscopy. For the last 9 days I have had worse abdominal pain than I have ever had!!! It seems to be in the same place as it has been for 18 years - my upper left side, and radiates to...
  9. milkmommy
    Hi fellow Canadians Im excited to see other from Hamilton Ontario!!!!!!! Definitely going to check out the food places recommended. I've only been diagnosed for 1 week.
  10. milkmommy
    All I know about your positive test is that is indicative of an inflammatory bowel disease. It could be celiac, crohns or colitis. Sorry I cant be more helpful. The endoscopy should be helpful in diagnosis. make sure they take plenty of biopsy's
  11. milkmommy
    I am day 5 gluten free and am wondering if I should be taking vitamins. Pre diagnoses vitamins made me feel sick,( maybe they had gluten, not sure). I have low ferritin but again get sick from the iron supplements and they don't seem to improve my levels anyway. I also had low b12 and vit d 3 yrs ago when I was pregnant but never have been rechecked. Do...
  12. milkmommy
    Just wondering if you ever found out about coverage??
  13. milkmommy
    Lisa, thank you for sharing and taking the time to make the list!!!! As a new celiac I find it very informative
  14. milkmommy
    I just bought and ate some amy's cheese pizza last night. It was my first time buying a gluten free product and have only been gluten free for 5 days since my endoscopy. I didn't mind the taste and was excited to be able to eat pizza. Big mistake!!! An hour later my stomach started hurting and hasn't stopped for 18 hrs!!
  15. milkmommy
    Here is a link to a reputable article. It outlines everything about celiac and includes information about causing cancer. Open Original Shared Link
  16. milkmommy
    Thats really good advice!! I am going to try and make my house gluten free for a while, (as best I can). It wouldnt hurt to try my 2 yr old gluten free anyway based on her symptoms and hopefully my husband remains supportive.
  17. milkmommy
    Wow. This is going to be difficult ( but worth it) My husband said he will be partially gluten free to support me and I will limit the gluten products in my home. Are there any research studies or foundations that outline how careful I have to be. Everyone I talk to including my family don't take me seriously when I tell them.
  18. milkmommy
    I'm newly diagnOsed with celiac. This might seem silly but I need to ask Can I touch gluten products?? For example when I make someone a sandwich or other gluten containing foods?? What about holding my child after she eats with her hands? Or kissing her? Sorry if it's silly but I want to know how strict I have to be. I want to live a long healthy...
  19. milkmommy
    Thank you for all your responses!! It's nice to know I'm not alone in all this!! I hope all my symptoms go away. Even if just75% I would be thrilled. It's so sad to hear of all the others that have suffered from misdiagnosed celiac. I am so grateful to this forum and everyone here. It's a very confuses time and I'm sure I will be posting many questions...
  20. milkmommy
    I just got off the phone with my gi doctor and I now am filled with anger about how things have gone. To recap.... I was diagnosed with ibs 18 years ago and have been told all my symptoms all this time have been related to ibs. I have been in pain and multiple life altering symptoms. I've been told so many times that it's all in my head or I'm exagerating...
  21. milkmommy
    Just wanted to let you know they did my endo today even though I am a breastfeeding mom. They gave me fentanyl and midazolam with no problems. I even spoke to an organization called mother risk who informed my I could breastfeed 4 hours after my endo with no risk to baby. Here is their website and I recommend calling them. Open Original Shared Link ...
  22. milkmommy
    Following up on my post yesterday.... Had endo today because of elevated ttg last month. The nurse said I have scalloped folds in my duodenum and that it usually means celiac but will need to see what the biopsy shows? Anyone with high ttg and scalloped folds but not celiac disease?? What is the significance of "scalloped folds"? I was pretty...
  23. milkmommy
    I am a breastfeeding mom and they are doing my endoscopy with no concerns. There are sedatives that have little to no risk for baby through your milk. Some may require you wait 4 hrs at most. I'm in Ontario Canada so maybe that's the difference.
  24. milkmommy
    I'm 31 an have been diagnosed with ibs since I was 14. Recently my symptoms have been worse so my gi dr ordered some tests. My ttg came back positive and my iron low. Everything else was normal. The dr said I might have celiac but probably not. I have my endoscopy in the morning and am alittle confused. Reading many posts on here that say endo has many false...
  25. milkmommy
    Thanks for responding. I am very confused at all this. I am not sure of the range for the lab where the test was performed but from what I can find online it is 0-20. I am continuing to consume gluten and actually have increased my intake quite a bit. Before the test results came back the doctor told me increasing my fiber would help my abdominal...
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