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Kquad

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Kquad

  1. Kquad
    OK, so I got a hold of someone who actually know something. The info on the company email was wrong. They are in the process of switching over to gluten free gravy. It seems to be a little messy. She advised me not to eat the gravy yet, but that it appears I got one of the new ones. I told her that, was good. I also said it is dangerous to place...
  2. Kquad
    I got the email back from them. The gravy does contain gluten. The email stated that they mark their product as containing gluten and that I should check their website for updates. I save the packaging and it is in front of me. No where, including on the gravy does it state it contains gluten. So be aware Kquad
  3. Kquad
    I hope so, I tossed it rather than risk it. We had already opened it for Christmas dinner and they were not open. As sick as I get, I would never risk it! Kept the receipt, and plan on a refund. Kind of messed up Christmas. I only bought it because it said gluten free. It was much more expensive than other alternatives.
  4. Kquad
    states contains "in big letter "NO GLUTEN. Under ingredients for gravy. only possible mention is modified food starch. No where including inside, does it states contain gluten. To top it off, the ingredients are first listed for the turkey, then the gravy and right below the gravy is the no gluten indication. Turkey.......... Gravy........ contains...
  5. Kquad
    I could not find this in a search, so I wanted to warn people. I bought Jennie O oven ready turkey breast, because it states "no Gluten". No where on the package does it states that the gravy contains gluten, which it does. It does state modified food starch in the ingredients. Fortunately, My wife is not trusting. She check the website, which warns...
  6. Kquad

    ARCHIVED Biopsy

    Kquad replied to Kquad's topic in Dermatitis Herpetiformis

    Open Original Shared Link IgA antibodies must be present in the skin biopsy for a definite diagnosis (4). It is important the person continues to eat gluten as the gluten-free diet can cause false negative results. Open Original Shared Link Diagnosis is confirmed by a simple blood test for IgA antibodies,[17] and by a skin biopsy in which the pattern...
  7. Kquad

    ARCHIVED Biopsy

    Kquad replied to Kquad's topic in Dermatitis Herpetiformis

    Pricklypear, I checked lots of websites again, many state the skin biopsy must be done while on gluten ( maybe another grey area in this disease). However, i have been on dapsone 2 days, seems to be really helping. They seem smaller and have taken on a purple tint in many areas. The improvement is not uniform and is most noted on the back
  8. Kquad

    ARCHIVED Biopsy

    Kquad replied to Kquad's topic in Dermatitis Herpetiformis

    I am confused, are you saying being gluten free can not give you a false negative on a DH biopsy? I swear I read that in multiple places.
  9. Kquad

    ARCHIVED Biopsy

    Kquad replied to Kquad's topic in Dermatitis Herpetiformis

    sent links with info about gluten free diet having false negatives and proper biopsy technique. He emailed me back and offered a trial dapsone. Stuff sounds scary a bit. Rash is a bit lighter this week after months. I know it can vary and has, but I may hold off a week. Feel good having a MD reconsider.
  10. Kquad

    ARCHIVED Biopsy

    Kquad posted a topic in Dermatitis Herpetiformis

    I went and had a biopsy. I mentioned to the dermatologist, I had been gluten free since march. I said I heard that could give a false negative. He said that was wrong. Also, he seemed to take the 2 biopsies from directly on a lesion. I know have the results back. One was negative. The other could not be read. Should I really take this as a true negative...
  11. Kquad
    I was positive blood and negative biopsy also. Time has proven the blood test correct, because other things popped up and pretty much proved it. The test, as I understand measures damage indirectly, so if it is early or your symptoms are mainly neuro, the blood test can be wrong
  12. Kquad
    Thanks, reading as I am eating a tunafish sandwich. Avoid fish. Starting next meal and the areas not covered with cortisone are really starting to itch!
  13. Kquad
    Thanks, Cromolyn is an awesome mast cell stabilizer. I will try it if needed. As I am not off steroids yet, the itching is tolerable. Is there a place to get info on avoiding iodine, beside being careful with table salt?
  14. Kquad
    Thanks, it does look like some of the early pics of DH and some are starting to blister. I will try the low iodine. Is there any symptom of celiac I have missed? I do not want any symptom to feel left out. I am so turned off to doctors now, I just can't see another.
  15. Kquad
    I was diagnosed with celiac in march. Almost immediately, I also cam down with bronchitis and was on prednisone for a month. When I came off, I developed what I thought was hot tub rash ( folliculitis) around my trunk from the nipple line to the belt line. I then got glutened an became very sick, found I had gluten ataxia ( MRI showed cerebellar damage)....
  16. Kquad
    Well, the response from my doctors leads me to believe we are in this alone, if you have neuro symtpoms! I was presented at the neurology board. They decided that I should be on a strict gluten free diet ( Thank you for the obvious). However, they will not treat me unless I come back with positive anti-gliaden bodies. There is no way I am going back on gluten...
  17. Kquad
    A little upset I was misdiagnosed for so long. Hopeful to get more function back. Also slightly relieved that the next time a Doctor looks at me like I am crazy, I have proof.
  18. Kquad
    I just got my final MRI reading. showed cerebellar atrophy, consistent with gluten caused ataxia in some papers. I am 42 y/o old with no other risk factors for atrophy that I can find.
  19. Kquad
    Sorry, In a warped way, it is funny having people with neurological symptoms trying to make coherent posts or ( as now for me ) read them coherently.
  20. Kquad
    That may work for some, but the super sensitive among us, not so much. Even an unwashed hand with a trace of gluten means days of sickness or worse weeks of ataxia. I even try to limit my processed gluten free food, as it has trace ( less than 20 ppm) and seems to slow down my healing. Is there any place that I can reference who has only 5 ppm in their food...
  21. Kquad
    That is one of the truest statements of the day!!!!!!
  22. Kquad
    Thanks ravenwoodglass
  23. Kquad
    As i said in another post, mine ( neuro) lasted 6 weeks going off gluten and faded away. The only things now, is that when I get glutened, the neuro symptoms are much worse. The GI stuff only lasts for 2 weeks. I am now 7 weeks later and still having some neuro symptoms. I am beginning to think, that I may have some permanent damage now. The neurologist and...
  24. Kquad
    That may be true for some people, but i had very little damage to my villi. Although I get all of the classic GI symptoms with gluten and had then before being diagnosed, my worst symptoms are neuro. I know biopsies are hit and miss, but i had many done. The blood test was positive. I believe there is something in the immune system that is coming back stronger...
  25. Kquad
    I don't know why, but I know it is true. 7 weeks after being glutened, I am still having some effects. To top it off, it was only wheat starch! Unfortunately, I did eat a lot and even went back for seconds. I hear it only has about 200 ppm. Probably barely equaled a bite of bread. Darn gluten ataxia. I also get sick from people handling my food and...
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