Satori

I know this was a year ago but did you ever find anything? Were moving there in Feb and go up there all the time. I found Whole Foods to be really disappointing, the one down in Santa Clarita has way more gluten-free foods and flours.

After 6 yrs of being gluten-free I can say most of those no longer apply to me:) My bread is fantastic and reminds me of wheat bread (Thank you Tom!) I do like my food and don't miss the old stuff one bit since I got a good bread recipe:) Tom says it came from God, what ever, I just know its wonderful and you can make wonderful things like fig newtons from...

Can you see another Dr?

I started on the enzymes about a month ago and I've seen a lot of improvement in a number of areas, from better memory, less brain fog, more energy, more milk (breastfeeding). Enzymes never occurred to me, it was my GI who suggested it, especially after seeing how wasted the inside of my stomach was (he said it looked like what they see in geriatric patients...

I took a lot of Phergran while I was prego, it knocked me out at first but after a couple days of taking it around the clock I was able to function on it just fine, couldn't eat or drink but I was able to get off the bathroom floor:)

I was not gluten-free pregs #1 &2, got severe hyperemesis, lost baby #1 at 5 months gestation due to severe dehydration. Was gluten-free for next 2 pregs, still got it, baby went into distress and died due to my dehydration stressing the fetus, this last preg I raised hell and was given a PICC line at 8 weeks along when it started and it was a life saver...

Allergy/intolerance to dairy protein can cause constipation, lactose intolernace will cause diarrhea.

Sarah now tolerates a lot of foods but it took 4+ years to figure it out. There were NO formulas she tolerated until she was around age 2 and then we found Vivonex Pediatric which is an elemental formula. Up to that point she was breastmilk only. She tolerated the formula but didn't like the taste so it was hard to get her to drink it. She finally started...

Not that I know of, I know a lot of parents with kids on Neocate/Elecare add the Nestle Chocolate or Strawberry (our GI suggested adding it). I don't think there's a single natural thing in those, just pure chemicals. We don't have EE but another lovely condition called systemic mastocytosis with the mast cells all parked in dd's GI tract so it acts like...

I've subbed the Spectrum for butter without a problem, I just usually add a bit of artificial butter flavoring to get that butter flavor.

Were soy and dairy free and you really just have to change the way you think about eating/cooking. For milk it depends on what its going to be used for. For cereal we use rice milk or Dari-Free, for baking I find coconut milk works good and really bumps up the calories which I need since my dd doesn't gain very easily. For butter I haven't found any dairy...

You can get it covered with a fight, check out www.kidswithfoodallergies.org and check the forums. Lots of parents who won insurance battles for formula coverage.

For one thing which would really upset me as a fellow BF mom is you can't BF an EE/EG kid although I do know of 1 mom who went Neocate only herself to be able to BF but she's the only one I have ever known to do it. These kids are in a lot of pain and can only take Neocate or Elecare for food and are often on g-tubes because they refuse to drink the formula...

I would refuse to do it, you've seen the improvement and it could take several months to see the damage in the intestines again. Why put her through that misery just for the GI's benefit? She will surely rebel in her teens and you can test her then.

I'm skipping a lot of replies but the reflux will get worse with an empty stomach and cause retching and she sounds like an EE/EG kid. Have you had the ruled out?