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ruca55

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Everything posted by ruca55

  1. Neshema- I appreciate your concern and advice. Mine (like everyone else's story here) is a long one. To cut it short. For me, looking back my main symptom was headaches like no other in my life that started after the birth of my second child. (was also my secon c-section). I spent 2 years being bounced around from doc to doc trying to find the cause of...
  2. Hmmm. Interesting. My period was almost like clockwork until after my second pregnancy. I have always said something wasn't right after I had her. Every time I call my ob about issues with my period they blame it having a tubal and my age. I'm 35 now, but they've been claiming my age at 31!!! I fought it for four years but it's getting bad, apparently...
  3. Hello all- Sorry if this is to much info. About 2 years after the birth of my daughter I was still having a nipple discharge (I never breastfed). I just kept figuring it would stop sooner of later. Eventually I was sent to an endocrinologist, my prolactin levels were not high yet I still had a discharge. Looking back there were other sypmtoms as well, headaches...
  4. There are actually quote a few good gluten free vegan cookbooks. I mainly eat friut for breakfast. I make 3 or 4 recipes on a Sunday and use them for lunch and dinner with salads. Snack on raisins, nuts, Lara bars and fresh fruit. I do have an occasional Ice cream with the kids. Quinoa is a great protien source. At this point I was just trying to get away...
  5. I am beging to suspect Iay have a fructose intolerance. Had my biopsy a couple weeks ago (no follow up appt yet). Since the biopsy I have for the most part cut out gluten. I tried to have a pretzel the other day and I got an instant headache. I have also mostly cut all meat and dairy. Had my gallbladder out a couple of months ago, so it hard to tell what...
  6. Does anyone else get an immediate headache after consuming gluten? Almost a sinus type of headache as well as a tension type, up the back the and into shoulders? I struggled with these for years, I can now relate it to an almost immediate reaction to gluten. Is it normal to feel symptoms so fast? Would that be more of an allergy problem vs. a celiac problem...
  7. Does anyone know where I can find info on prescription medication? After my endo I stopped taking all meds. Yesterday, I couldn't take it anymore and had to take my allergy med. I also had to start provera yesterday (period problem which I am also hoping will regulate once gluten free for a while) Anyway, I now seem to have a sore throat, (almost a swollen...
  8. This is my 4th day officially gluten free. (Biopsy was Monday, no word yet) I already know I have some form of intolerance because I had surgery to have my gallbladder removed in April. After surgery it was a few days of no appetite and as I started to eat again "symptoms" (mainly headaches) that I struggled with for years I was able to link with the food...
  9. Wow, all good points. It's a little overwhelming. I spent so much time researching symptoms and worry about testing I thought I was a little bit better prepared for this phase, but apparently not. So here's another question. Yesterday, I was in the store looking at 2 different brands of quinoa, the ingredients seemed the same but one bag was labeled gluten...
  10. Can anyone sender for me what constitutes arms gluten free? I thought I was starting the diet a few days ago. I'm also going vegan at the dame time, so there's not a whole lot of processed stuff that I'm eating. However after dinner I am always looking for something sweet. I bought a bag of cinnimon cookies that said gluten free. I had 2 after dinner and...
  11. The way I see it, this "disease" is telling us there is something wrong with the way we are eating. Even if they made a vaccine, I don't think I would want it. I am eating way healthier than I ever have.
  12. Is genetic testing something ordered by a general doctor or a gi doctor? Or is it something people do out of pocket? What's involved, is it a blood draw?
  13. could be both. I just had my gallbladder out last month, I had many of those symptom almost all of the time. After my surgery, I seemed to have some of them some times. I suspect it is also food related / celiac. I had my endo on Monday. If they test your gallbladder, ask for a hida scan, not just an ultra sound. If they had done an ultra sound on me...
  14. I also was going to recommend you request the hida scan. I had no stones that showed up on an ultra sound and only one gallbladder attack. My ejection fraction was only 9%. While th removal helped with a lot of the symptoms, I am here because I also believe it's all related to celiac. Actually had my endo today and they found gastritis in my stomach...
  15. Hello everyone- Just had an endoscopy doctor said he noticed some inflammation on the stomach. He took a biopsy of that to see in an infection could be the cause, before I left he said preliminary no infection. So could just be gastritis, I just looked it up and it says some autoimmune disorders could cause that, but I didn't see which ones. None of the...
  16. I have a lot of sonus and allergy type issues that I believe are from dairy. I most definitely have the neck and head pain that you describe that I also believe comes from gluten
  17. Yes, regardless of the test results I will be going gluten free. A couple of weeks ago I had to have my gallbladder removed, as I started to get an appetite back after surgery I was able link symptoms (horrible sinus like headaches that also went up the back of my neck) to what I was eating. I spent 3 years "chasing my tail" trying to discover the cause...
  18. No, I'm not gluten free right now. My endoscopy is Monday.
  19. I've got an "ache" in my knees, shins, ankles and feet that seems to be getting progressively worse. In the winter, I recall waking up in the morning thinking oh no I must be getting the flu. It's only 11:00am and I feel like I've been standing all day. We just did Disney in December, there's no way I could walk that much right now. How could there be...
  20. I feel like I have a gluten hangover today. However there is light at the end of the tunnel, I saw the GI yesterday and I go Monday for my endo! I will be cutting out gluten regardless of the test results, I already know what it does to me. A couple of weeks ago I had to have my gallbladder removed, as I started to heal from surgery and be able to eat...
  21. I like that book! sb2178- thank you for that great explanation!
  22. Mushroom- Can I ask what the book is that you are referring to? Thanks
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