atb913

I don't believe I have. I'm a bit of a label freak since my son has a soy intolerance. I cook from scratch for the most part, but the few commercially prepped foods I purchased I went online to doublecheck (ingredients such as modified food starch and the like). All were listed as gluten free. I don't eat gluten free bread, so the toaster isn't a culprit, and I use a glass cutting board.

If it isn't a release reaction, my main concern is nightshades. I'm already aware of a salicylate reaction, so I avoid those.

I was planning on being completely gluten free for a month before I went casein free too, but maybe I should bump that up.

I have been gluten free for 10 days now and initially the results were startling. I felt a thousand times better! I still feel better than I previously did, but some of my angioedema is trying to rear it's ugly head and I feel like the fatigue is creeping back up.

I haven't accidentally glutened, so I'm wondering if this is a result of the gluten leaving my gut tissues. Is this possible? Has anybody else dealt with this? Is there a way to detox quickly so that my villi can start to heal?

I had been off gluten for about 3 days when I noticed I could see things more clearly. Like the film in my eyes disappeared.

I've only been gluten-free for a week and a half but I'm NEVER going back!

AF started this week. Unlike every other month, I didn't have horrible PMS. My mood stayed somewhat stable, I didn't have insane bloat and my cramps were minimal.

And I've only been gluten-free for a week. I can't believe I'm feeling so much better so quickly. This is crazy!

I developed preeclampsia during my pregnancy and consistently spilled protein. They had to induce me at 37 weeks because my BP was unreal.

Could this be linked to gluten at all?

"You are describing a pretty classic intolerance to gluten. The fact that you tested negative for celiac disease does not alter this. You should, IMHO, stop eating gluten immediately. It is killing you.

You did not tell us about the rheumatologist, and are you still taking prednisone? Have you had a bone density scan and had your Vitamin D levels checked?

IBS is a diagnostic label given when the doctor does not know what you have; it is not a real diagnosis, just a description of symptoms. The most probable cause of all your symptoms is gluten. Can you get a new doctor, a real doctor, someone who knows something about celiac and gluten intolerance? If not, please do stop eating gluten. I think you will find immediate relief from most of your symptoms - well, not immediate, some of them take a while to respond, but at least you won't be getting worse."

I haven't been back to a rheumatologist in years. For a while, it seemed as if the angioedema went into remission. I didn't have any flare ups for close to 4 years (2004-2008) but shortly before becoming pregnant I had a severe case that lasted close to 3 months. I had to postpone my wedding.

Pregnancy seems to have been the kicker though. After giving birth is when the REAL exhaustion kicked in. The first few months I figured it was normal, but he's nearly 2 years old! Makes no sense.

I haven't taken any prednisone since last fall. Again my angioedema kicked up and it started affecting my throat and larynx, so I had to go on a high dosage.

I haven't had a bone density scan, the lesions were diagnosed via x-ray just a couple of months ago. The physician gave me cortisone shots and threw a handful of pain meds and muscle relaxers at me. I hate that crap. I worked in pharmacy for close to 10 years and I do NOT care for taking any sort of medication unless it's absolutely necessary. My PCP did a full bloodwork panel last fall and didn't mention a Vit D deficiency but I didn't personally look at any of my results, so I can't say for sure what he actually looked at.

I did decide to eliminate gluten. It is FREAKING astounding how much different I'm feeling in just a couple of days. I feel like... like my contacts don't have protein on them. Does that make sense? Like, I went outside and I was able to see individual leaves again. I feel like that's such a small, insignificant thing but I don't know how else to describe it.

The last gluten I had was 5/1. In less than 5 days my energy levels are a bit better, my mood has changed, I feel happy, my sugar cravings have virtually disappeared...

I'm still a bit fatigued and I'm still dealing with some pain, but it's better.

Does anybody know how long it takes for the pain issues to cease?

And really, thank you all so much for taking the time to comment.

I am only recently figuring out the gluten connection. I have an 'unspecified auto immune disorder' and angioedema. I developed preeclampsia during my pregnancy and spilled protein like crazy.

I have been gluten free less than a week and already feel much better. So much so that if my chronic kidney and pain issues resolve themselves, I would consider TTC again.

FWIW, it took me 2 years to get our only. I had lots of fertility issues.

It's very interesting to note that my mom was told to do an elimation diet on me when I was a toddler ('78-79) to find the source of my allergies. She tried the best she could but they didn't have any real resources back then. She was pretty healthy too, making me smoothies with yogurt (she said you had to get that from health food stores because it wasn't available in grocery markets), wheat germ, etc.

I also had ADHD as a child and she eliminated white sugar and bread. Lol, subbed it to rye and whole wheat bread.

Is it possible that gluten was the cause of the ADD too?

With my son, I'm already a bit of a label freak because he seems to have soy, colors, msg and tyramine sensitivities. I'm planning on switching him to gluten-free as well.

Hello, my name is Anna and I'm new to this. I have a lot of questions so please be kind!

In 1999, when I was 21, I started having severe hives. My knees, ankles and wrists swelled up, became inflamed and hot, and my hands were so badly swollen I couldn't clench my fist. I passed out in my doctors office due to low pressure, was given a script for prednisone, and sent on my way with a recommendation to see a rheumatologist.

Since that time I have had severe angioedema that seems to be triggered by stress. I now have degenerative disk disease and spinal arthritis. I have fatigue and brain fog so badly that it feels like I constantly have the flu. I hurt every single day of my life, and my angioedema lasts for a month or so once or twice a year. My hair is falling out. I have gut symptoms too, but don't know the trigger, and have been dx'd as IBS.

So, in the past I've been tested for Celiacs (negative, but I don't know what type of test they used), positive for some salicylate reaction, lupus (negative, but that was nearly 12 years ago, it hasn't been revisited), chronic fatigue (inconclusive... my epstein barr was high, but they seemed dismissive).

All the doctors seem to agree that I have an unspecified auto-immune disorder, but they don't know the cause. I can't seem to lose weight to save my life. My joints are falling apart, my bones have lesions, I get constant kidney stones and had to have my gallbladder removed... I feel like an 85 year old woman trapped in a 33 year old.

I have decided to do an elimination diet. I went for about 48 hours without gluten and then broke down and had a biscuit. Lets just say that my stomach was NOT happy. I'm not 100% sure, but it looks like a gluten intolerance at the very least. I think maybe nightshades are a trigger as well as the salicylates.

Life isn't supposed to be this way. I have a 22 month old son that I adore but I'm too exhausted and in too much pain to play with him the way I should. I really don't know what to do anymore. I feel like I've chased so many dead ends, and that I'm starting to look like a hypochondriac. :/

Can any of you relate to this or help in any way? I'm starting to feel desperate.