stanleymonkey

Tim hortons now have gluten free coconut maccaroons, certified gluten-free by the Canadian celac association, kept in packets so no cc from Tim bits!!!!! By all accounts they re yummy!

Black tarry stools are usually a sign of intestinal, or colon bleeding, if it happens again I'd take him to the nearest emergency room, he may need blood products. Passing mucous is usually a sign the intestines and colon have been damaged. Think of it as when a cut is healing and you get the white blood cells making it appear a bit weepy. I'd talk to his doctor tomorrow if possible about the black stools, our original gastro wanted us to call 911 if it ever happened to our little ones, as they can lose so much blood so quickly.

As for the spots, my daughters both have clear bumps, my eldest on her face, it does seem to be related to gluten. When she has eating gluten they were terrible now gluten-free they have mostly cleared.

Don't feel bad about giving your soon gluten, you were following medical advice. There isn't much research into gluten intolerance vs celiac disease and some doctors don't even believe gluten intolerance exists. Our ped gastro at the local hospital we now refuse to see was pretty much of the mentality of if nothing shows up in blood tests there is nothing wrong. on the other hand our ped is very much of the opinion if it makes you sick dont do it you blood is not your GI tract and will react different so if gluten makes you illmdont eat it.

Push for celiac retesting, if it is negative trial gluten free seed if it helps.

Having to go gluten-free turned out to be a blessing in disguise for us, we had to change some of the things we ate, and making them gluten-free meant less processed things, my 4 yr old will eat things that her friends won't touch. We tend to make as much as possible from scratch then we know itvs safe, and she seems to like the food more. Reading labels I found out what was in some of our food, yikes!

If you want god safe rice noodles Vietnamese dry rice noodles are good. The factories that make them tend only to make all the different thickness of noodles, and nothing else. Keep away from Japanese rice noodles they always add wheat, dried Chinese tend to be safe, but fresh Chinese rice noodles can sometimes have wheat flour they sprinkle it's on them so they don't stick together

First thing I would ask is how many samples they took. They intestines are long if they took a small amount they likely would have missed damage. I would also ask to see the pathology report for yourself

An X-ray is a good idea, you will quickly know if she is all backed up. My eldest didn't even need that, the doc touched her belly and could feel hard stool throughout her gut

I guess the baby is getting gluten as just because the eldest 2 have celiac does not mean the youngest will, or any of the others.

We are expecting our 3rd ndnour immunologist has told us that exact thing. kids are a genetic lottery. My eldest had anaphylactic allergies, my youngest has none. Our girls have not been officially diagnosed, but have been told assume celiac. They both get too sick to continue testing.

To the OP, it sounds like your docs have their heads screwed on and have a good understanding of celiac. As some of the others said, as long as the docs understand false negatives in toddlers I'd follow their advice. Our ped and immunologist say all celiac testing is unreliable in kids under 5, but given that you already hveb2 celiac kids, I guess you know what signs to look out for. If you feel something isn't right just push to have her retested. Our then 2 yr old was so sick that the head of pds a tour local kids hospital was stunned, but she still tested negative for celiac.

As for the allergies, a dairy allergy is usually grown out of. My eldest had an anaphylactic allergy to milk and out grew it a 3 1/2, most kids put grow it by 5.

Remember if you feel gluten is affecting her push for testing, and if it is negative, a gluten free trial will do no harm.

Low alkaline phosphates is common in scurvy, which I doubt you have! You may just need more vit c

It can also mean low b6, folc acid, or thyroid issues. It can also mean too much vit d, or malnutrition

As therevarevso many possibilities, I'd go back to your doc when you get all your results andgetnhim/her to go through them and help you akebsurevyou are getting all the vitamins and minerals you need

With miralax, it's important when you start using it to do a 3 day "clear out" our gastro made us give our daughters a double dose for 3 days to get everything out, then a normal dose from there on, the clear out ensured they were shrinking an empty bowel rather than one that is still full of poop.

My eldest had horrific tantrums that would last for hours, some days from dawn to dusk she would lie on the floor crying, only stopping to have diahrrea up to 20 times a day. She would hardly eat, yet she had a huge stomach . She had a rash that we were told was excema, yet never responded to any cream. The skin was burned off her inside thighs from the toxic diahrrea. She was a little small for her age, but not enough to cause concern. We eventually took her to the er and demanded someone do something when we found her lying on the glazed over eyes. We told them we were no going to accept being told yet again that it was a tummy bug that would pass, and we're not leaving till something was done. They said to see our ped which was 5 weeks away. I asked the er doc if they thought in all honesty she would last 5 weeks, they got us an emergency appointment with the hospitals outpatient clinic. The head of that dept was stunned at how I'll she was.

Back and forth from gastros to be told she was constipated which she was but was actuall due to gluten, and had reflux, which she didn't.

All her blood tests were negative except the genetics. Gluten free everything disappeared and she sprouted upwards. Her skin is generally clear. Our gastro says its non celiac gluten intolerance. Our allergist and ped are convinced it's celiac we were just lucky enough to catch it before it caused enough damage to be picked up on the blood tests.

Our youngest was constipated, had something that looked like road rash on her torso, and aneamic. Our ped said given how sick her sister had been, and genetics, assume she has celiac disease, go gluten free and never go back.

Both kids suffered from damage to their bowels from being so constipated but after time on miralax both are doing amazing.

Iron can make you constipated. My kids have suffered from chronic constipation for years.

It could be 2 things - she is so backed up she can't feel the need to go as her bowel have been so stretched out, and stuff leaks out. That's what happened to my kids. My eldest had diahrrea 20 times a day so we never thought she was constipated.

It could also be encopresis, basically one poop hurts, so they start holding poop in as they are afraid it's going to hurt next time. They end up so full of poop everything gets stretched out, they lose they signals that they need to poop. Our ped likened it to putting golf balls in a sock, they have nowhere to go, the sock stretches, take the socks out the sock is still stretched. Start filling a stretched sock with golf balls,mthere is no support they fall through.

Even with constipation, it is still possible to have poopsthat can look normal, bits can squeeze around.

You need to treat this now, the longer it is left the longer it will take her bowels to go back to normal. The treatment is usually something like miralax for 6 months. We were worried about it. But our eldest had been bad for so long it took 2 yrs to fix it. Now she is 4 1/2 and miralax free.

Our youngest got worse on iron, but she had only been having constipation issues for a few months so it took about 6 weeks to fix her.

Go to your doc. Tell them the iron is making her constipated, and she is unable to sense when she needs to poop. Demand they sort out a bowel management programme to help her. If they refuse go straight to the er, tell them she is constipated, your doc won't help. If you are told to give her more fibre, do not listen, giving a chronically constipated child more fibre makes things worse, it's like putting extra sand in the cement. It won't make it softer! Also using laxative will not help eventually a body stops listening to the signals it sends and waits for the laxative. Push fluids, especially water. Limit dairy as it can make things worse. Also anything that starts with p can help you poop ( bizarre huh?) pears, plums, pineapple, prune. Try prune juice too.

I've been there with 2 kids, you need to get her pooping even if it means taking stool softness for a few months. Our gastro said if you break a leg you rest it, if your break your bowels you rest the. Stool softeners make the poop soft enought that the bowels don't have to do much and they can shrink back to normal withput being overworked.

Good luck.

With some individuals iodized salt and iodine can irritate DH. If she can handle dairy and eggs, try increasing those for a few days.

Cod is another source also dried seaweed that you get in the little packets at japanese food stores, and at the big grocery stores. Seaweed has a lot of iodine, my kids can only handle a little bit every few weeks without scratching like crazy.

It might be worth trying those for a few days rather than using gluten and having another trip to the ER

There as been recent research at Louisiana state into dominant genes and celiac disease, they have drawn links between certain genes and dominance any Irish ancestry. Our immunologist knows someone who did some of the research.

, I'll try and figure out how to post the link

The anti body tests are unreliable in 2 yr olds, that's why our soc told us to make our youngest gluten-free and not even bother with testing. Young kids havevtongave horrific damage to make antibodies even lose to the range they givevforpositive. Our immunologist advised that antibody testing in kids under 5 , she said there are too man false negatives at that age and by the time there levels re in the testing range horrific sometimes long lating damage has been done

My 4 yr old had reflux, it has almost completely gone gluten-free

It may be a resessive allele, you may need 2 of them for it to be dominant therefore having just one and one of another means it is resessive therefore irrelevant.

Eg 2.5 and another 2.5 would be positive genetics for celic but 2.5 and 2.6 2.6 is dominant so the 2.5 genetic material has no impact ( don't know if there really s a 2.6 but thought it might help explain!)

Our doc advised against a gluten challenge in our then 3 yr oleg as it made her do sick. You need to tell the doc how sick the challenge made him. Ask to be referred to someone who has some knowledge of celiac disease. It will be good for her to educate her withnrhevresearch oh have done, but if you get seen by someone who has knowledge you may get a diagnosis without having to make him sick. A doctor who knows about celiac disease will give the diagnosis based on his DH diagnosis. I wouldn't worry too much about hurting her feelings, you need to what is best for your son.

Magnesium deficiency can cause cramps as well, when we switched my eldest to calcium plus magnesium her cramps went

2 weeks to get in to an allergist? Wow my daughter had an anaphylactic reaction and it took us 4 months! I'd see as many specialists as you can , gastro, allergist and derm. Our gastro dismissed us as our daughter was didn't have the symptoms he expected, she was constipated and he was adamant that meant she had reflux!????? Our allergist on the other hand was a lot more educated on celiac disease, allergist can order the full celiac panel nd can request a derm to do a biopsy of a lesion and request endoscopes, they usually have someone they know who will do it rather thn a guessing game of who'll you get.

Going back to my allergist before my eldest starts kindergarden boy is she in for a shock when she sees how tall she is now!

Good luck

Is your allergist an immunologist too? Most ped allergists tend to be. If he is I would talk to him about celiac disease as well as the gastro. Our allergist/immunologist was annoyed that we were getting the brush off from our gastro and said based on her symptoms, and a rash wish she was 100% positive was DH, and her dramatic improvement gluten free, if we had been sent to her for celiac testing she would have given her the diagnosis on the spot, screw what the blood tests say.

It is possible to test negative to an allergen but be allergic. My eldest tested negative to milk, yet she had 1 drop of milk into anaphylactic shock! Skin prick testing and IgE blood testing are not 100% accurate.

I also get where you are coming from the allergies vs celiac disease. Our daughter outgrew her milk allergy, and it was such a relief, but knowing celiac is for life was so overwhelming at first, now, just like her milk allergy, it's part of life. Mi get frustrated when people don't get the seriousness of celiac versus an anaphylactic allergy, but it's just how things are.

Having a child who had anaphylactic allergies and now has celiac disease I completely understand where you are coming from, at least with even a mild allergy you can see what is going on, and usually it's pretty clear what is happening to them, but celiac disease is such a crap shoot when it comes to symptoms and diagnosis

Magnesium deficiency is a big cause of pain and cra,ping. Our dietician suggested it as a cause for our eldest

Rice pudding with fresh fruit my kids love it. Get the big sacks of rice from the Chinese stores they are cheap, use whatever milk you like.

You can make your own granolas meusli we do as our kids Yates change all the time. We always have dried fruit and nuts at home, we just occasionally buy the other bits and pieces. It's ever the same twice.

A staple muesli type we make, lightly crushed gluten-free honey chex, nuts, dried prunes apricots pineapple papaya chopped and we added shredded unsweetened oconut.

Has he fallen recently? My eldest complained of knee pain, and it turned out to be synovitis. How old is he? There is a specific type of fracture younger kids get at the top of their bones, they often complain of knee pain it isn't always picked up on X-rays until a few days later.

My youngest on the other hand complains of foot pain when exposed to gluten.

Juvenile arthritis is an autoimmune condition just like celiac disease it's worth asking your doc about

Just checked and the fracture is actually called a CAST fracture and it's very common in kids 8 and younger

My eldest couldn't handle any formula due to anaphylactic allergies, our doc recommended domperidon for increasing milk supply, it's an antacid I think, they don't know why but in 48 hrs you'll have milk to spare you can adjust the dose, I took lots the first day, less the second, boy was I engorged!

I know it could be gluten, but there is always the possibility of food poisoning, especially if she threw up within 2-8 hrs of eating the hot dog, maybe it wasn't cooked properly. With food poisoning, once you've got rid of the offending item, you would feel better.