Jump to content

paperbagprincess

Advanced Members
 View Profile  See their activity

  • Posts

    16

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by paperbagprincess

  1. paperbagprincess
    Thanks =] I'm not planning to! It sucks I don't know for definite, but it's not worth it. I usually just say I have Celiac Disease and leave it at that lol.
  2. paperbagprincess
    I've heard two different things 1. You're on a gluten free diet, then you introduce enough gluten for a period of time so you can have testing done for Celiac Disease 2. You're eating a gluten free diet, you introduce gluten, if you feel terrible you 'failed' the gluten challenge. Someone recommended it to me because my mum and uncle both had...
  3. paperbagprincess
    I definitely felt like I had more energy, but that could be because I'd had deficiencies for years that wouldn't sort themselves out until I went gluten free. I was diagnosed when I was 17, so I don't have a lot of experience about the wrinkles! Lol Good luck.
  4. paperbagprincess
    It can happen. Endoscope overrides blood tests.
  5. paperbagprincess
    Thanks everyone. I live in New Zealand so that sending the swab away thing is probably not available here. I'm not sure which of the gene tests I had done, the doctor just said it was positive. Thanks everyone.
  6. paperbagprincess
    I love this research article. Finally it tells everyone what we all knew! Hopefully they'll find some markers to help test those with sensitivity rather than celiac disease.
  7. paperbagprincess
    My Mum and Uncle both have had positive blood tests then positive biopsy. I had the blood test done which was normal and gene test was positive. I was having stomach problems and b12 and foliate deficiencies (b12 injections and foliate tablets did nothing) . I'm a chicken and I was moving cities, so I decided I would trial a gluten free diet to see if it...
  8. paperbagprincess
    They all look normal to me. But keep in mind you still might have a gluten problem without being Celiac. I'm not sure if you've had the gene test, but if not you should ask to have that done. My GP said it gives a good indication of whether someone will develop celiac disease or have a sensitivity to it. Good luck
  9. paperbagprincess
    I always thought it was 1:100. It's not going to be possible to get an accurate picture. There are people who have celiac disease and are asymptomatic or can't be tested or just accept it's normal or told they have IBS or people who are too embarrassed to talk to their doctors. There was a lady I use to work with, her daughter has celiac disease, but doctors...
  10. paperbagprincess
    Thanks. I do try. I was babysitting my cousins today and my aunt came home. There was a chocolate cake on the bench and she turned and asked 'are you still off gluten?' and I said yes and she said 'oh I guess you can't have any of this delicious cake then'. I didn't reply.. It's like they find any excuse to bring it up and be rude about it. My Mum is very...
  11. paperbagprincess
    Thanks everyone. My Mum had the blood test and biopsy, so in my family's opinion she has it and I don't. I don't care what they say, but when they do start, they don't stop. It ruins everyone night and I feel guilty. Thanks all.
  12. paperbagprincess
    I'm 21 years old and my symptoms started when I was about 15. I got very sick from Mono/Glandular fever. I developed stomach issues, but they weren't major. When I was 16 I had some blood tests done and it came back with low b12 and foliate. I ate meat and dairy nearly every day and I ate plenty of fruit and veges. My diet was pretty healthy. I had foliate...
  13. paperbagprincess
    Thanks for your reply! =] I'm from Dunedin! I don't blame you getting away from CHCH. I've got family there and they're barely coping. I have to say, I haven't tried any of the things you recommended except the Vendini (sp?) bread. I thought it was pretty bad lol. I usually get Pure Bread Young Buck (it's the best, but hard to get in the South Island...
  14. paperbagprincess
    Ki Ora =] I see there's a post below for NZers and Aussies, but it's super long! I'm wondering if there are any Kiwis here and what your highly recommended gluten-free products are?
  15. paperbagprincess
    This is a super long thread, so I don't know if my reply will be read. But hello! I'm Sarah =] I'm from New Zealand. I've been gluten free since I was 17. Diagnosed by the blood test then feeling better and my deficiencies going away on a gluten free diet. I was too much of a chicken to have the biopsy. My Mum and Uncle both have it too. We do have...
  16. paperbagprincess
    Thanks for your reply. I just don't understand why they say it's all in my head. The fact that my deficiencies (I have copies of the blood tests!) resolved on a gluten free diet must say something. I believe a lot of families probably have Celiac Disease, but in the past it was rarely/never tested. I've heard speculation that Hitler had Celiac Disease...
  17. paperbagprincess
    I'm 21 years old and when I was 17 my Mum and uncle were both diagnosed (blood test, then biopsy). Her doctor said that my brother and I should be tested. Prior I ate a good diet, but had foliate and b12 deficiencies. I was getting b12 jabs and on foliate tablets, it didn't improve. I also had the odd upset stomach for no apparent reason. I lacked energy...
  18. paperbagprincess
    Drink lots of water and try and flush it out. Eat bland food like rice or rice crackers. Go to the bathroom. Sleep. Take over the counter pain killers (we call it panadol where I live). I've also heard that drinking ginger ale, coke or lemonade can help, but it doesn't do much for me. You'll definitely find the longer you're off gluten, the more sensitive...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.