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saintmaybe

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saintmaybe last won the day on February 5 2012

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Bay state nerds unite!

  1. Certainly have no advice to give on Celiac and chronic pain, but have you been evaluated for other rheumatic diseases, Lyme disease, lupus, spinal arthritis, or Crohn's and ulcerative colitis which can and do present with musculoskeletal complications? Fibromyalgia, while there is a lot of evidence that it's a real disease, is a diagnosis of elimination,...
  2. Yeah. One is at home and one has to be administered at the doctors office. I'd take the office administration if the benefits were worth it, but if the two aren't categorically different, I'd prefer at home administration.
  3. Anyone taking these for RA, Spondylitis, JA, or PA? I'm in the process of getting diagnosed with ankylosing spondylitis, and my doctor wants to skip straight to biologics because my case is now progressing quickly and antiinflammatories don't work for me. I'm curious as to what your experiences are, which one you'd recommend. Are the costs, side effects,...
  4. saintmaybe

    ARCHIVED Hair!

    Wow, that has a name?! I just looked up pics, and I've had that my whole life and no one has ever said anything to me about it. Thats good to know though, about the b12, both for the tongue and the hair. I am vain, and freak out about every new gray.
  5. saintmaybe

    ARCHIVED Hair!

    Sorry to hijack the thread, but what on earth is geographic tongue? I have visions of a tongue with a little suitcase and passport. :-D
  6. Depends on where the pain is. I had lower back and hip pain I at first thought was a direct result of my job working in a garden center. Then I found out my brother has ankylosing spondylitis, and lo and behold so do I. That is a WORST case scenario, and It's doubtful that's your specific issue. It could be the early stages of bursitis or sciatica, generalized...
  7. Some members here have difficulty with airborn flour, which of course can get all over everything. If the restaurant at which you work uses it for baking or for creating a nonstick coating, there may not be much you can do to avoid it. I've always felt bad for gluten intolerantsnin the food industry, because gluten is everywhere. I know I felt terrible when...
  8. saintmaybe

    ARCHIVED Hair!

    I use FRS chews for b supplementation. I dont know if they're corn free, but they're available at GNC. I think they are, because any kind of corn makes me sick as a dog and i feel fine on these. My hair is growing back quickly, but also curly and dark red, instead of my old blah brown. =)
  9. For advice and support, I direct you to a thread from our own members in 2009, who talked about the prescriptions they used in treating their own mouth sores. The drugs mentioned are abreva, and valtrex. Valtrex is an actual antiviral used specifically for herpes simplex and zoster infections, and can be obtained easily from a primary care physician...
  10. An article on cold sores, gluten intolerance, the immune system and herpes simplex from the Livestrong foundation. summary: gluten intolerance causes a low immune system causes a herpes outbreak in SOME people. In others, it's a topical reaction to gluten. Cold sores are different than canker sores, which are purely the result of a screwed up immune system...
  11. That was such a great article! That's exactly what I had, apthous ulcers that were so painful I could barely open my mouth to eat or talk. I haven't had issues with either those or cold sores sine I went gluten free, and I am pretty strict about cc.
  12. There have been studies done demonstrating upwards of 70% infection rates. Babies can become infected from their mothers either via the birth canal or from breastfeeding. It's not a stretch to say that someone might be having a flare up of the virus due to gluten exposure, sine the entire immune system is revved from gluten inflammation. The way the virus...
  13. Where are they specifically? The corners of your mouth or on the inside lower lip, or....different sores are indicative of different things, which is why I ask. Corner of mouth usually means general nutritional deficiencies with emphasis on b and d vitamins. Inside the mouth is a flare up of systemic herpes simplex 1, which most people have, and can be triggered...
  14. I don't have dh,but I understand about the lack of care from doctors. I went to a dermatologist and got hit for a huge bill to boot, for them to suggest using clearasil for the chronic acne on my back. Thanks, doctors, the thought had never occurred to me. /sarcasm They then also laughed at me when I asked about the connection to gluten sensitivity. I swore...
  15. I second everything babs said, especially giving yourself time and eating whole foods. You might also have additional food intolerances, which you can discover for yourself, or you can see a naturopath to help test for them. One thing I will add is slow bile, which I thought was a load of hooey until my dad started getting gall bladder attacks. Good digestion...
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