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tiredofdoctors

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by tiredofdoctors

  1. tiredofdoctors
    I FORGOT to take pictures! I am so MAD at myself I love hydrangeas, too. I think they are beautiful. My mom had them at our house when I was little - blue and white ones. I can't wait to see this yellow peony tree. It should be pretty. I've never had a house that I could do this. When I was married before, we rented a house, so I couldn't really...
  2. tiredofdoctors
    Nisla -- THANK YOU for contacting all those people -- and for posting the responses! That's great -- we have an Aldi about 10 minutes from our house! This is REALLY good news! Thanks for posting guys -- you're the greatest . . . Lynne
  3. tiredofdoctors
    If you're going to go gluten-free, this forum is the BEST place for advice, information and support. These people are amazing. You will get more good, solid information about a gluten-free lifestyle here than anywhere else, in my opinion. I have gotten more information and support -- I would stick with this. . . I'm not biased, huh? . . . Lynne
  4. tiredofdoctors
    I've had this test done -- I think they called it a "protein electrophoresis" -- I'll have to look it up -- but I can't remember why (not surprising -- I can't remember ANYTHING anymore). I'll look it up and get back to you . . . . Lynne
  5. tiredofdoctors
    Not to scare you, but I have had an "outrageously" elevated IgG (according to my neuro) -- when it got to 60, it had gone down -- and have also had an elevated IgA antigliadin antibodies. I do NOT have antitransglutaminase nor antiendomysial antibodies, and my small intestine biopsy was negative. The Celiac Disease (what my doctors are calling it) has affected...
  6. tiredofdoctors
    I'm ON!! I got my computer back . . . I'll tell you, I purchased an extended warranty from Toshiba rather than from the store -- I paid about another 30-50 dollars for the "deluxe" warranty! It all ended up being about $200. After owning this computer for three years, I got a new LCD screen, a new motherboard, and a new "case" -- the bottom part of the...
  7. tiredofdoctors
    Shirley -- that's GREAT! I think I'll buy about 20 copies! I can just keep them in the car, keep a couple in my wheelchair, and then whip one out when the situation arises! Unfortunately, given my family, I think I'd maybe need an actual CASE of them!
  8. tiredofdoctors
    Thanks, Vincent -- I was going to get the Gluten Guard. I didn't realize that they just checked the lists. I talked with Clan Thompson people, too. They were very open to researching foods in our area, too, to include them on their quarterly updates. I was really impressed with their customer service and their quick response. Given what you said about...
  9. tiredofdoctors
    I think U of M would be great! I have family (in-laws -- they're great) in Baltimore. I would be game -- if nothing else, Dave could drive me up, drop me off, then come back to get me! Either that, or my son would take me up -- he's really interested in getting us all together. Also, I could take him crabbing -- we found this great place across from the...
  10. tiredofdoctors
    Thanks guys . . . I think I'm starting to get over the disappointment. My parents sure aren't. My dad wants me to go to South Carolina and have the surgery. My husband (God bless him) had a long talk with him tonight. Hopefully, my Dad got the gist of the conversation, and won't push for the surgery. My mom is sure that we're going to swim EVERY DAY...
  11. tiredofdoctors
    I am SOOOOOOOO happy with my little bulb-garden! I have the most beautiful tulips blooming right now, and the muscari (grape hyacinths) look so CUTE! The daffodils, crocus and snow-bells are finished blooming, and the hyacinths are starting to dwindle, but even a neighbor across the street and a few doors down came by to talk and told me how beautiful our...
  12. tiredofdoctors
    No good news, guys. I do have a Chiari Malformation. I have a 5-7mm descent of the left cerebellar tonsil through the foramen magnum. The neurosurgeon, though, said that he doesn't think that it has to do with my ataxia. He thinks that it's solely due to the gluten damage. He said that, because I have cerebrospinal fluid circulating throughout the...
  13. tiredofdoctors
    Hi Moongirl -- I'm so sorry that you're going through this. I have been gluten-free for 8 months now. I still have difficulty with the struggles. Birthdays are AWFUL for me. Our family is huge on the celebrations, and there is nothing made for me with regard to the cake and ice cream (dinner is definitely made gluten-free for me). Still, though, it's...
  14. tiredofdoctors
    I had an elevated IgA, too. I had "outrageously high" IgG antigliadin antibodies (per my neuro doc) for quite some time; since being gluten free, my IgG's have gone down to 12 (only 1 over normal range), and My IgA is within normal limits now. I've been tested for RA, Lupus, everything -- don't know if there's a special test for Sarcoidosis that they've...
  15. tiredofdoctors
    Thank you so much. With all these prayers, surely the doctor will have such POWER! Love, Lynne
  16. tiredofdoctors
    Thanks, guys! I'm afraid that if this isn't the answer, though, the poor doctor is going to have to deal with a bawling, disappointed patient! He's a really great guy, though -- I've worked with him -- and he is my sister's hero since her surgery. I'm going to tell him first thing that if he can fix this, he'll be an even BIGGER hero to me!
  17. tiredofdoctors

    ARCHIVED I Am Really Optimistic!

    tiredofdoctors posted a topic in Doctors

    I'm going to see a neurosurgeon on Friday. There is a chance that I have an Arnold-Chiari Malformation. In absence of gluten ataxia, this would be a diagnosis that I wouldn't want. However, if I have this, which is a congenital deformity, IT IS FIX-ABLE!!!!! It's a pretty easy surgery, as far as brain surgery goes. My neurologist, whom I respect SOOOO...
  18. tiredofdoctors
    Beverly -- my husband just did the same thing! He has been gluten-free with me (pretty much exclusively), has a little gluten now & then. He went to Buckheads for lunch today -- don't know what he ate, because he came in clammy & sweaty, with body aches. He said that, about an hour after lunch, he started with the big D that didn't stop. He's...
  19. tiredofdoctors
    Sorry about the bagels, radman. We have a small deli that makes the BEST bagels! I don't even go NEAR that shopping center anymore! The news about M&M's for breakfast: My sister-in-law, who does research at the VA hospital here, decided to find out the value of eating almonds to lower cholesterol. So, instead of her usual morning breakfast of M&...
  20. tiredofdoctors
    My husband found gluten-free summer sausage at our Liquor Barn -- it's a chain, so I'm hoping that they have it in your area. Just to be on the safe side, I don't eat ANYTHING that isn't labeled Gluten-Free, and I also look for the "warning for cross-contamination in the factory" thing. If so, I typically don't buy that, either. Hope it helps . . . . Lynne
  21. tiredofdoctors
    I'm sorry you're having trouble staying on the diet. I can't offer you any pearls of wisdom -- I've only been gluten-free for 8 1/2 months now. I'm not the expert. Also, mine is a little different. I was told that I have no choice, as the gluten is destroying the cerebellum of my brain, and my retinas. I can continue eating gluten until my brain has...
  22. tiredofdoctors
    I'm with you on this one. My neuro doc drew an ataxia panel -- we got a letter FedEx'd to us by Athena Labs that stated they didn't know what the insurance was going to cover, but if we wanted to lock in a 20% co-pay, we could pay $1,299 by Visa, Mastercard, Discover or check by phone. If the insurance covered more than the 80%, they would refund the difference...
  23. tiredofdoctors
    Sending lots of prayers and hopes for information that let's the docs get you out of pain. I hope you feel better very soon. . . . .Lynne
  24. tiredofdoctors
    I'm popped in! I live in Kentucky -- and evidently sound like it, as well (so I've been told ) I told that to my son -- he was howling laughing and reminded me of what hick I sounded like when I was little!!! At least I've TRIED to northern it up, but it's futile. I live in Louisville -- we wear shoes, have indoor plumbing, go to the dentist regularly...
  25. tiredofdoctors
    Okay, I'm back for a night -- have my husband's work computer. PM'd radman with my gory details. Have a few things to add to this post: 1. Who is that Alan guy? 2. I think that gluten intolerant people should all take life with a grain of salt -- and a slice of lime and a shot of tequila. 3. Yes. Radman has earned the right to find out...
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