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Jen Z

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Jen Z

  1. Jen Z
    Many years ago when first diagnosed with Raynaud's as a teen, I took meds when I was really symptomatic (Isoptin (Verapamil). For me, the side effects were worse because they caused such a rapid heart rate and flushing. I do have MVP and palpitations so the meds just exacerbated that. This year, I have been having a really tough time with my feet at night...
  2. Jen Z
    I was diagnosed with Raynaud's as a teenager and recently diagnosed as a celiac in middle age. Now I also see that I am textbook for sjogren's. I am trying to determine what neuropathy actually feels like. I have had a numbness/tingling issue in my left hip/pelvis that travels down to my foot when it is really acting up badly. It also occurs in my left...
  3. Jen Z
    Thanks! Interesting list since I have several eye shadows that the rep told me had gluten that are not on this list. Of course, they are my favorite formulations :/ I have set them aside to try at a later time when I feel healed and open to some experimentation. For now, I want everything clean. <Sigh> This is certainly going to take a while to...
  4. Jen Z
    That article was useless- no decent information. LOL I have been struggling with this cosmetic issue since diagnosis 3 weeks ago. I've been having to call the manufactures directly and go through all the different formulations. I have a large collection of high end cosmetics. Weeding out my colors has been nearly as traumatic as the food issues <grin...
  5. Jen Z
    I've just completed week 3 of gluten-free living. I often wonder when reading labels how much I should be concerned when there are statements that state made in a facility that produces wheat products. For now I avoid them like the plague. What about others?
  6. Jen Z
    No- I a sure of nothing these days. LOL However, the butter is clean.
  7. Jen Z
    Oh, there is one in Charlotte, NC. I can give them a try too!
  8. Jen Z
    Interesting. I have noticed that when I eat a bowl of plain white rice with non cc'd butter and sea salt, I end up with a mild stomach ache within an hour. Nothing more but enough that I am suspicious. Scary to have a rice issue since it seems to be the basis of all non gluten-free snacky like foods.
  9. Jen Z
    Thanks everyone for the advice on TJ foods. I am finding that just about anything in the prepared meals doesn't work for me. I was using them as well as other vegetarian meals over the summer before diagnosis and not able to eat most of them due to the high spice content. I can not have anything with chili pepper at all or my reflux flares horribly. Chili...
  10. Jen Z
    I can't comment to the food issues as I am newly diagnosed and learning. Just curious as to whether or not you are taking an acid reducer.My reflux would be out of control without omeprazole which I take daily- every single day for life without fail. Uncontrolled reflux will damage your esophagus and leave you more susceptible to barrett's esophagus- a pre...
  11. Jen Z
    Would have been nice if my doctor sent me to a dietician that had a background in celiac disease. Not sure how this happened but I think that on day 4 as a celiac, I may be more informed as to appropriate food options than he was as a clinician with years of experience in the dietary field. Cross contamination- no worries that's only for the super sensitive...
  12. Jen Z
    I am really back and forth about doing further testing. I haven't been biopsied yet for the DH but I have had the most insanely itchy rash off and on for the past year that flares and disappears and then reappears in the exact same spot. Sometimes it gets little fluid filled spots that look like fire ant bites. Another doctor gave me 2 different meds for...
  13. Jen Z
    I moderate on 2 health related groups for dogs so I know subject lines need to stand out to be seen Human doctors are not the only ones that don't listen to their clients- vets don't either so I along with others help the human learn how to care better for their pets specific illnesses. Luckily, I have a doctor that is great about following through on testing...
  14. Jen Z
    Confused based on what I am reading. Do I need to have gluten in my system for the biopsy? I did for the blood work which came back positive. I've been gluten-free for 3 days now and already feeling an improvement. My husband has a colonoscopy scheduled for this week and mine is in 3 weeks. I can switch out for his appt and load on gluten if need be but I...
  15. Jen Z
    Interesting that you mentioned vision issues, AVR1963- could you elaborate on that? I too have had what I call 'jumpy vision' for a while. Images seem to move around for me at times- often related to feeling tired or having a puffy face.
  16. Jen Z
    wow. I knew it would happen as soon as I revealed to people my new diagnosis but geez, I am so disappointed by people's need to give advice instead of just offering a sympathetic ear. Advice from people that know the issues at hand is more than welcome but not from people who don't have a clue. Yes, I am aware that there are many gluten-free foods in the...
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