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jumpingjuniper

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  1. I saw my GI today and he was not helpful. He didn't even really listen. He's a nice guy, really, which is a plus, but he's not going to be figuring out any mysteries for me. I did ask for the lactulose test and he basically said yes to appease me (it will be negative but you can have it if you want to see). Anyway, I'm glad I'll get that. I feel like...
  2. I do keep a diary. I'm curious to hear about the experiences of others as I know it's something that happens to other people.
  3. I've seen some people say that eating dairy gives them symptoms like depression. If that happens to you, how quickly does it kick in? And does it happen every time you eat dairy and with every kind of dairy? I'm trying to figure out if dairy is affecting me or if it's just coincidence, or a coming together of triggers! Thanks!
  4. Yes, I know, I read her blog Thanks. It's not a quack illness but it's not widely tested for either and there's a decent risk of the tests being done wrong, so if I want them I should probably seek out a doctor who knows more about it than mine.
  5. Thank you for your replies. I've seen my doctor twice since I last posted and I don't think she's taking me seriously at all. She's chalking it up to psychological stress and has referred me to a psychiatrist. I spoke with her about histamine intolerance for a long time and she didn't want to do the tests. Having read about the tests myself, I didn...
  6. Sorry to hear about your multiple broken bones! I would recommend trying another GI, or else getting very proactive with yours by bringing in your own research. But it sounds a bit like he doesn't want to expand his knowledge on the subject. Is there a local celiac meet up? Maybe they have ideas for a GI. Wishing you the best of luck!
  7. Hi Dee, thank you for your kind message and suggestions. No real updates here but hopefully I'll get it figured out eventually
  8. This won't solve all of your problems, but I do find that taking my vitamins before bed helps with avoiding the nauseous post-vitamin feeling - perhaps it could help with some of the other issues as well. I hear you, though, I need iron and I can't figure out a way to take it without killing my gut. Good luck, and great news that vitamins do actually help...
  9. Hello all, I'll give a short version here and then details below! The short version is that I eat totally gluten free and have for a long time, and I still feel sick. I'm seeing my doc on Thursday and I was hoping that some of you could help me think of things to ask her, tests to suggest/request, etc. Okay, now the details: I was diagnosed in...
  10. Hi all, I read through an old post on this topic but it got a little off-topic by the end so I thought I'd start a new thread (I'm newish around here, so please let me know if it's better to just revive the old thread!). In any case, I wanted to share what I've learned about pelvic pain and Celiac Disease, as I think it is under-discussed and really...
  11. Yes I do. You can contact me for details.

  12. Congratulations, that's wonderful news.
  13. For me, the issue with the recommendation to eat "whole foods" as a way to avoid labelling issues, is that even a whole foods diet usually requires some products that may or may not contain gluten, depending on manufacturing processes. Short of growing your own rice, quinoa, legumes, etc., you're probably going to be buying some processed foods at the...
  14. Does anybody have experience doing ELISA tests on their foods at home? I strongly suspect that I'm getting glutened by something, and I can't figure it out. I've emailed manufacturers, etc., for details about their manufacturing, but am getting increasingly curious about testing things at home too. If you've done this, what was your experience? And...
  15. Hi, Thanks for your reply! The Schar Fette Croccanti crackers are amazing. My non-gluten-free husband loves them too. They're just a snack, but they're great. Their little cracker snack packs are good too. The croissants au chocolat are okay but not awesome, but it's nice if you're missing that kind of thing. You've got to warm them up. The...
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