lizzy59

Thanks everyone for your replies...I appreciate them so much! Mushroom, I'd say I was "gluten lite" for about three weeks. (Now that I'm having these symptoms, I wish I'd kept better records!) Desi83, I'm sorry to hear about all you're going through, but from what I've read, there are some psychological symptoms that can go along with this. Please...

When I first figured out that I might be gluten intolerant/celiac, I cut down my gluten intake about 90%. I was working toward total elimination, but then decided to pursue a diagnosis. If I didn't get it, I would then give gluten up completely and see how I felt. Since I wanted a diagnosis, I went back to my regular, gluten-loaded diet, and all you...

Hi, Larry...sorry you're having so many problems. I can't help with the skin burning part of your question, as I've never experienced that, but the heat intolerance could be a sign of Grave's disease, which is an over-active thyroid. (It's an autoimmune disease like celiac, rheumatoid arthritis, MS, asthma, and many others.) It can be detected by a...

Thanks for the additional info, Nora! I guess that bursts my bubble of getting somewhere with the genetic test, since it can only tell me which genes I have, but can't rule celiac disease in or out...seems to be of very limited usefulness. So...genetic test not really helpful, other tests expensive and not terribly useful since I'm on immunosuppressive...

Thanks for the reply and information, Nora! On that paper that I had typed up (the one I gave to my nurse practitioner that she said she'd forward to the gastroenterologist), I included the question "Would the fact that I take two immunosuppressive drugs for RA influence the test results for celiac disease?". Although the N.P. never said anything...

Thanks so much for the info on Enterolab, Michelle--I appreciate it!! I think I will go that route in the event my nurse practitioner doesn't agree to the tests. I did see her today, and I had typed up a list of my symptoms, along with the name of the two tests she had already run that came up negative. I then had included the names of all the tests...

Honey, (I'm new to all of this to--I haven't even been diagnosed yet!) I just want to say that you don't have to do everything at once. Start by making a list of foods that you like that don't contain gluten, and go from there. I've read that a lot of people find that, at least at the beginning, it's just easier to simplify your diet, so gluten is easier...

I'm new to the forum, but still want to wish you the best--my thoughts and prayers go out to you!! As someone else said, take it one day at a time. God bless!

Thanks so much for the well-wishes, Marilyn--I so appreciate your input! I am curious about something...as I said in my first post, I began this journey by reading about celiac in a book called "Wheat Belly", and the preventive cardiologist who wrote it says that wheat is no longer fit for anyone to eat, because of all of the hybridization and genetic...

Well, I see my nurse practioner tomorrow, and I'm going to hit her up for these other tests...thank you SO much for this information!! If she won't give me the tests, or they come back negative/inconclusive, then I'm just going to do it on my own. (A gluten-free diet that is.) Will most doctors refer you for an upper-GI without these tests showing celiac...

I know what you mean about fighting with doctors--I'm trying to get my initial diagnosis, and it's difficult. I can't imagine how hard it is to feed a family when some are celiac and some are not, but rest assured you're doing a great job as a mom. Good luck to you!

I'm new to this forum, and am still in the process of trying to get a celiac disease diagnosis myself, but somewhere in my internet travels for information, I remember reading about hearing voices being a symptom of celiac. I was on so many sites, and so can't remember which one I read it on, so I can't direct you there. I recall that the article didn't...

Best of luck to you...your complaints have the ring of truth, and you don't sound like a hypochondriac. Something real is going on with you, and you just need to find a medical person to take you seriously. I'm going through the same thing (trying to get diagnosed), and it's very frustrating. Hang in there, and good luck!

Thanks so much for your responses. Maybe I should add that the blood tests I had were Tissue Transglutaminase (value 1.2) and endomysial ABS, which was negative. Should I ask for additional tests? (I've read something about an "entire panel", but I'm not sure what that refers to.) In addition to the three autoimmune diseases and the other conditions...

I am a fifty-two year old woman with rheumatoid arthritis, Type 1 Diabetes, and Grave's disease. As some may know, all of these conditions are autoimmune in nature. Because of this and some other health issues (osteopenia, migraines, alternating constipation and diarrhea), when I came across the subject of celiac disease in a book I was reading ("Wheat...