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brookevale

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  • Posts

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Profile Information

  • Gender
    Female
  • Interests
    Diagnosed with Sphincter of Oddi Dysfunction with pancreatitis flares. Diagnosed with celiac genetic marker but negative for blood antibodies and sprue.
  • Location
    Albany, NY

brookevale's Achievements

  1. There is most definitely a connection with probiotics and histamine or something to do with the liver's detoxification pathways. I will preface this by saying I have had fluoroquinolone toxicity syndrome (floxing) from Levaquin for over two years. I have severe bodywide damage, especially neurological. The first few months of floxing I had severe multiple...
  2. I have itching under the skin. I can't figure out the triggers. But, I do get worse if I take a probiotic, get dehydrated, drink coffee--even decaf, and chew Nicorette gum (which I've pretty much quit. It is so annoying. It's like a burning itching all over. I have neuropathy too so sometimes I wonder if it's a nerve reaction like paresthesia.
  3. Student 314, What ever became of your digestive issues. I have the identical thing going on. I had strep, was given antibiotics, and have had diarrhea, nausea, anxiety, no appetite for over 2 weeks. I too feel like something is off. Please let me know how things turned out. I need some hope! Thanks, Brooke
  4. Hi, Since I had major abdominal surgery in October, followed by a sepsis incident where I was administered Levaquin and steroids in ICU, my vitamin b blood levels have been high--over the maximum range. My b1, b2, b6, b9 (folate), and b12 are all high. None of my doctors can figure it out. I've read that high levels are abnormal as b vitamins are water...
  5. Hi Everyone, I hope this message finds you all doing well. Sorry I haven't posted in a while. I am replying to this post rather late as I have been getting some resolution to my 17 month long quest for answers. Back in October 2011, I tested positive for the celiac genetic marker, but negative for the antibodies and sprue. So, GI doctor says I don't have...
  6. I realized after elimination that high levels of casein or sodium caseinate gave me splitting headaches. I stopped dairy altogether. I recently tried eating dairy again and although I don't get headaches, I have been having horrible neuropathy, muscle and joint pain. I am a very complicated case--have sphincter of oddi dysfunction (SOD), which I had surgery...
  7. I have had no luck with Albany doctors, and have had to trek out to Minnesota for specialized GI care. If this isn't possible for you, I am hearing good things about the Saratoga group. My home-base GI team is at Albany Med now. They are good, it just depends who you get. I saw Dr. Sood the other day and he seems pretty good.
  8. Hi Everyone, Sorry I haven't posted in a while. I will start off by reporting out that the abdominal pain I was having that started this post goes away if I take prescribed pancreatic enzymes. Chronic pancreatitis has been ruled out, but there is something going on with my pancreatic duct. So, the pain I was having under my sternum was related to that...
  9. Whatever you do, stay away from Albany Gastroenterology. I have received very little relief or help there. I am still seeking a good GI doc. Please let me know if Dr. Purcell works out. I have been trying to get an accurate diagnosis for four months. I have been in severe pain and have nausea every day. I was even hospitalized for five days and all I get...
  10. No bile salts at this point. I will ask the doc about that. Trying to get my fat from avocados, a little coconut, chicken, fish. Thanks and I will definitely take a peek at the GAPS diet.
  11. I have been gluten free for six weeks. Although I experienced more energy and less nausea going gluten free, I was still experiencing severe abdominal pain--so severe that only Neurontin would help relieve it. It was debilitating. I began eliminating ALL grains, nuts, seeds, crackers, and soy. The pain went away. When I tried to introduce each of these one...
  12. Thank you everyone. I have been taking probiotics and florastor since I started getting ill. I will let everyone know what the doctor recommends tomorrow. He has said he may want to go in with a laproscope to explore. I'd like to get an ERCP first to check the ducts and get a second biopsy for the celiac. I just want to feel better soon!
  13. Thank you for confirming that we do indeed feel pain--terrible pain. I have three kids and the abdominal pain I have been experiencing is off the charts. I can barely focus at work. I cry all the time as it is so intense and NOTHING helps it. My GI tells me the prilosec should work--well, it doesn't! I'm frustrated and wonder if I will ever feel normal.
  14. I have had the worst four months of my life. I became very ill four months ago--weird tingling in my back with nausea, vomiting, complete loss of appetite, severe abdominal pain, diarrhea, severe fatigue. It all started when I came down with mastitis and was prescribed Keflex (I had a baby by c-section 6 months ago). Doctors thought my illness was due to...
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