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Aly1

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Aly1

  1. Aly1
    I have had severe neuro problems - I've ended up in a wheelchair due to them - and yes, gluten intolerance and celiac can cause them. I can't comment on how long it takes to recover as I e only been gluten free for 3 months. What I can say is that this month I inadvertently glutened my self every day for 2 weeks (ugh!!!) and my neuro symptoms skyrocketed...
  2. Aly1
    My mascara isn't waterproof but really doesn't wash off with just water - leaves me with raccoon eyes! Who knows, maybe the irritation I've experienced is due to the removers I've used containing gluten. I will do some searching for a gluten-free one and see how it goes...
  3. Aly1
    Oh, no worries! I am already an ex-smoker (thank GOD I don't have to tackle that! Only once in an lifetime please). But even back when I was a smoker, cigar smoke would make me come close to vomiting within minutes, with the cold sweat and everything. Never had any ideas why that would be, until (maybe) now. Unless cigarettes are the same. Who knows. I have...
  4. Aly1
    Wow there's so much to learn on this forum. I had no idea there was hidden corn everywhere! This makes me rethink things a lot - I regularly find myself with a runny nose at dinner and can't figure out where it might have come from (that's a typical corn reaction for me, as are joint pains). Great posts.
  5. Aly1
    Good lord, are cigarettes the same? I ask because cigarette smoke has never been a problem for me whereas I get very ill quickly from cigar smoke. Interesting stuff...
  6. Aly1
    Interesting the timing of your post, I literally just read an old post that touched on exactly this. Go to and scroll down to Evangeline's post. It was an eye opener for me (I have corn issues too).
  7. Aly1
    Hi Jen Z, Your mention of the cold symptom is interesting and I'm curious to see if others write in about it. I've had pretty severe neuro issues for about a decade (have only been gluten-free for 3 months). Numerous times I'd have icy feet that I just could not warm up without a heating pad. The past two weeks I was glutened badly and I've been horribly...
  8. Aly1
    It waxes and wanes but at its worst I can barely focus on reading a sentence and can't remember what happened an hour ago. It's just awful.
  9. Aly1
    Thanks for the comment. I am still feeling glutened so I will take that advice. In truth, that eye makeup remover has always irritated my eyes just a bit but after dealing with transitioning to gluten free I just didn't want to deal with it. I guess I need to!
  10. Aly1
    That was supposed to say BEING glutened. On an iPhone here...
  11. Aly1
    Please do call the corporate office, or better yet, write a good letter and Cc all the relevant parties. This is simply a case of people not understanding the ramifications. You will be saving many people from sing glutened needlessly!
  12. Aly1
    I have been gluten-free since September (well, I am trying to be but keep getting glutened, sigh) and have done a little research on this topic. Mostly I've read that it's a good idea to have gluten-free personal care products but generally since they aren't ingested the likelihood of getting glutened is slim. I'm just wondering if anyone has actually...
  13. Aly1
    I seem to be having such trouble figuring out what I can eat that won't cause reactions. The gluten one is clear but it's also clear that there are other things at play. I've already removed dairy, eggs, corn and sugar/sweeteners from my diet and again this week, I seem to be reacting to almonds, another thing to add to the list. I would really like to...
  14. Aly1
    Is he taking any high quality gluten-free supplements? That's pretty standard with a celiac diagnosis, to help the body heal. I would definitely being doing that in the least.
  15. Aly1
    Although celiac has been a known disease for quite a long time, it was considered a rare one until relatively recently. I think at this point in time patients have to read read read and educate themselves about the condition - we are not at the point where patients can just rely on their docs for guidance like they might with something like diabetes. It...
  16. Aly1
    Great, thanks!
  17. Aly1
    I'll start by saying that I am new to being gluten-free so I don't know yet how sensitive I am compared to average. But re the above posts on vodka: I cannot tolerate vodka no matter how many times they distill it. For the past 5 years I thought I just couldn't tolerate alcohol anymore(note, I was always a vodka girl for other dietary reasons I won't bore...
  18. Aly1
    I have no idea what my B12 levels are and since I currently do not have medical insurance I am not going to find out any time soon! But - I have a lot of neuro symptoms in my feet and would like to try sublingual B12 as some on here have suggested. Can you please recommend a brand? And how much would people suggest I try starting out? If it makes any difference...
  19. Aly1
    Phooey, no that's not the one but thanks for trying! It was some type of "official article" that had a paragraph that described the phenomenon. I've read so many great ones here on the site, I have no idea which one it was...
  20. Aly1
    Not sure if this is the best place to post this. I am looking for an article that I read here on Celiac.com, which described why gluten reactions are so much worse once you've been "clean" for awhile. It wasn't the whole point of the article, it was just mentioned within. Does anyone know what I'm talking about?? I am trying to teach my family about this...
  21. Aly1
    I hate to say it but it really may just be the environment you're working in. I think that is a highly likely scenario. Is there any way to find out definitively if gluten-containing products are processed there? I would try to do some research. You don't want to be in a position where you are going to fail at something that is important to you and where...
  22. Aly1
    I had not even thought of the health insurance angle when I got tested. I am out of work and have no insurance - this is the first time I've been glad my test was negative despite my symptoms!
  23. Aly1
    Thanks for telling me, otherwise I'd get a complex wondering why
  24. Aly1
    Thank you, I think I will just switch to Country Life then. I trust your opinion as someone avoiding gluten, than I do someone trying to sell me something .
  25. Aly1
    I think you should definitely try going gluten free - this will be a relatively fast way to find out one way or another how it effects you. Go off gluten - and I mean REALLY GO OFF GLUTEN (you can't cheat, if you do you are wasting your time) for at least a month - then do what we call a "gluten challenge" - and see how it effects you. If you have Celiac...
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