kb27
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Everything posted by kb27
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ARCHIVED Is Your House Completely gluten-free? If Only One Of You Has Celiac?
kb27 posted a topic in Parents, Friends and Loved Ones of Celiacs
My 8-yr-old was recently diagnosed with celiac via blood test, pending biopsy. We are planning to go gluten-free after that. My husband and I both assumed that the entire house would go gluten-free, but I keep reading about people with "split" kitchens and ways to keep gluten-free food separate from gluten food. If only one person in the family has... -
ARCHIVED What's The Likelihood For False Positives From Blood Test?
kb27 replied to kb27's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks everyone. I thought there weren't many false positives, but I wasn't sure I was reading everything correctly. He's staying on gluten until the biopsy and then we are going gluten-free. It would be nice to have a positive biopsy because that can help us get an official doctor's note with diagnosis for school/camp/etc. Even if it's indeterminate... -
ARCHIVED What's The Likelihood For False Positives From Blood Test?
kb27 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My 8-yr-old was recently diagnosed with "probable celiac" from a blood test. He's scheduled for a biopsy in February. My question is, how likely is it that his positive blood test was false? Or is he pretty much positive for celiac and the biopsy is just to confirm? Here are the tests they ran as best I can tell: The ones they highlighted for me... -
ARCHIVED How Do You Explain A New Diagnosis To Your Child?
kb27 replied to kb27's topic in Parents, Friends and Loved Ones of Celiacs
I didn't think about the doctor telling him. We'll probably prep him before the biopsy with some info. And follow up later with more. I like the idea of a note to go into his permanent record at school and finding other kids with dietary restrictions in his class. I'm taking notes. Thanks! -
ARCHIVED How Do You Explain A New Diagnosis To Your Child?
kb27 replied to kb27's topic in Parents, Friends and Loved Ones of Celiacs
Thanks for sharing your experiences. We're most likely going to wait until February before going gluten-free. We haven't even seen a GI yet - just his regular pediatrician and a pediatric hematologist (his main problem is anemia). The hematologist made the diagnosis, but she was very clear that it was a "probably celiac" diagnosis, not a diagnosis... -
ARCHIVED How Do You Explain A New Diagnosis To Your Child?
kb27 posted a topic in Parents, Friends and Loved Ones of Celiacs
My 8 yr old son was diagnosed as "probably celiac" from a blood test. He tested positive for the gene, and his transglut igA was > 100. We're waiting for an appt in February to get a biopsy. He hasn't been very sick, but he's had problems with iron deficiencies all year that haven't responded to supplements - thus the testing. Anyone have any...