Gluten Free Girls

Thank you to everyone for their thoughts! We definitely send lunches from home for both my girls so our 504's don't involve cafeteria's at all. For my 3rd grader we included frequent hand washing with soap and water after computer lab, PE, music, science lab....pretty much every time she returns to her classroom. She has Clorox wipes to clean off her desk...

I am a Mom to a 14 year old daughter who has Celiac Disease. She was diagnosed two years ago along with her little sister as well as myself. Last year during her 8th grade year, we made a 504 plan. That plan has carried over to her high school and we have a meeting coming up to address the specifics and make any changes if needed. I would love to hear...

I started this topic a full year ago, but here I am gearing up for the school year and wanted to know if any of you know the typical process of "renewing" a 504 plan that was in place last year. I would love to know if any forms are required. I have scheduled meetings with both of my daughters schools but want to make sure that I have everything in order...

I am 13 years old and was diagnosed with Celiac Disease almost two years ago. In the last year I have developed some pretty bad acne. My dermatologist has only tried topical creams because she says that I shouldn't take anything else. When I'm on antibiotics, my face is much better. Does anyone know if there is a standard course of treatment for Celiacs...

I know this is an older discussion, but I have been researching acne treatments for my 13 year old daughter who has Celiac Disease. Does anyone have information concerning what a proper protocol treatment would include for a teen with Celiac? I took accutane in my early 20's and was diagnosed with Celiac and now have two daughters with Celiac but my daughters...

My oldest daughter attends a school with close to 1000 kids and to our knowledge, she is the only diagnosed Celiac. Her peers have been wonderful and we just completed a 504 plan to make her daily existence easier while at school. My youngest daughter is in 2nd grade and attends a school with 800 kids. There is one other child diagnosed with Celiac but...

Your post is all too familiar. My two daughters and I were diagnosed a year ago and we still have spells of grieving and crying. It's extremely overwhelming. You are far more normal than you know!!! I promise you that while it never will be easy, it does get easier. Our first year was tough just because you meet each holiday and scenario for the first...

Hi Stephanie- I would love if you could message. My daughter has several food allergies as well. I'm a forum rookie so I don't know how to message but I would greatly appreciate seeing your plan. Rachael

Thank you Cara! This is helpful.

Our school has been amazing so we aren't placing the plan because we think there will be any problems. We visited the Celiac Center at Columbia University this summer and the experts there encouraged us to have a plan for both of our daughters simply because you never know what the disease will throw at you and having a plan in place that can be modified...

Thank you so much! I would love to see a finished and complete plan.

I am starting the referral process for both my 2nd and 8th graders who have Celiac Disease. I'm not asking for meals to be prepared at school but rather things like, having access to their own water bottle at all times, extra sets of textbooks for home, extra time to make up work after an extended absence, communication from teachers about birthday snacks...

Myself, and our two daughters have Celiac Disease. Our girls are 13 and 7. We're one year into this wild ride and we have yet to meet anyone else with this disease. I want to start a support group of sorts, so that my girls can meet other kids with Celiac Disease and I would love to meet other parents as well. We joined the Atlanta ROCK group but we've...

I was brought to tears by your post. Congratulations and I'm so happy for you! I love to read great news like this. I could cry for you! A new life for both your child and yourself!!!

My youngest daughter has had dry, cracked lips for her entire 7 years. We had been prescribed Elidel to treat it and we've tried everything from straight Vaseline, to chap sticks but nothing worked. When we walked into our GI's office for our first appointment after recieving positive Celiac blood tests, the doctor told me right away that the cracked, dry...