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Gluten Free Girls

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Gluten Free Girls

  1. Gluten Free Girls
    Thank you to everyone for their thoughts! We definitely send lunches from home for both my girls so our 504's don't involve cafeteria's at all. For my 3rd grader we included frequent hand washing with soap and water after computer lab, PE, music, science lab....pretty much every time she returns to her classroom. She has Clorox wipes to clean off her desk...
  2. Gluten Free Girls
    I am a Mom to a 14 year old daughter who has Celiac Disease. She was diagnosed two years ago along with her little sister as well as myself. Last year during her 8th grade year, we made a 504 plan. That plan has carried over to her high school and we have a meeting coming up to address the specifics and make any changes if needed. I would love to hear...
  3. Gluten Free Girls
    I started this topic a full year ago, but here I am gearing up for the school year and wanted to know if any of you know the typical process of "renewing" a 504 plan that was in place last year. I would love to know if any forms are required. I have scheduled meetings with both of my daughters schools but want to make sure that I have everything in order...
  4. Gluten Free Girls
    I am 13 years old and was diagnosed with Celiac Disease almost two years ago. In the last year I have developed some pretty bad acne. My dermatologist has only tried topical creams because she says that I shouldn't take anything else. When I'm on antibiotics, my face is much better. Does anyone know if there is a standard course of treatment for Celiacs...
  5. Gluten Free Girls
    I know this is an older discussion, but I have been researching acne treatments for my 13 year old daughter who has Celiac Disease. Does anyone have information concerning what a proper protocol treatment would include for a teen with Celiac? I took accutane in my early 20's and was diagnosed with Celiac and now have two daughters with Celiac but my daughters...
  6. Gluten Free Girls
    My oldest daughter attends a school with close to 1000 kids and to our knowledge, she is the only diagnosed Celiac. Her peers have been wonderful and we just completed a 504 plan to make her daily existence easier while at school. My youngest daughter is in 2nd grade and attends a school with 800 kids. There is one other child diagnosed with Celiac but...
  7. Gluten Free Girls
    Your post is all too familiar. My two daughters and I were diagnosed a year ago and we still have spells of grieving and crying. It's extremely overwhelming. You are far more normal than you know!!! I promise you that while it never will be easy, it does get easier. Our first year was tough just because you meet each holiday and scenario for the first...
  8. Gluten Free Girls
    Hi Stephanie- I would love if you could message. My daughter has several food allergies as well. I'm a forum rookie so I don't know how to message but I would greatly appreciate seeing your plan. Rachael
  9. Gluten Free Girls
    Thank you Cara! This is helpful.
  10. Gluten Free Girls
    Our school has been amazing so we aren't placing the plan because we think there will be any problems. We visited the Celiac Center at Columbia University this summer and the experts there encouraged us to have a plan for both of our daughters simply because you never know what the disease will throw at you and having a plan in place that can be modified...
  11. Gluten Free Girls
    Thank you so much! I would love to see a finished and complete plan.
  12. Gluten Free Girls
    I am starting the referral process for both my 2nd and 8th graders who have Celiac Disease. I'm not asking for meals to be prepared at school but rather things like, having access to their own water bottle at all times, extra sets of textbooks for home, extra time to make up work after an extended absence, communication from teachers about birthday snacks...
  13. Gluten Free Girls
    Myself, and our two daughters have Celiac Disease. Our girls are 13 and 7. We're one year into this wild ride and we have yet to meet anyone else with this disease. I want to start a support group of sorts, so that my girls can meet other kids with Celiac Disease and I would love to meet other parents as well. We joined the Atlanta ROCK group but we've...
  14. Gluten Free Girls
    I was brought to tears by your post. Congratulations and I'm so happy for you! I love to read great news like this. I could cry for you! A new life for both your child and yourself!!!
  15. Gluten Free Girls
    My youngest daughter has had dry, cracked lips for her entire 7 years. We had been prescribed Elidel to treat it and we've tried everything from straight Vaseline, to chap sticks but nothing worked. When we walked into our GI's office for our first appointment after recieving positive Celiac blood tests, the doctor told me right away that the cracked, dry...
  16. Gluten Free Girls
    Has anyone visited any of the pediatric experts at the Columbia University Celiac Center? We need a real expert for our youngest daughter and while I know that Dr. Peter Green is highly sought after, I don't know a lot about his pediatric experts.
  17. Gluten Free Girls
    If I could snap my fingers and have all of these great women sitting at my kitchen table, I would! I'm new to this environment but I'm overwhelmed by the support and information that I can find here. This is such an isolating diseae for us right now and yet I can't just throw my arms up and give up because while I am a Celiac myself, I have to set the tone...
  18. Gluten Free Girls
    My 7 year old daughter, 13 year old daughter and I were all diagnosed with Celiac last summer. We are atypical and never experienced any GI symptoms. We are following an extremely strict and safe gluten free diet. Two weeks ago, we went on a trip to the beach. We brought all of our own kitchen supplies and food except for dishes and silverware. Within...
  19. Gluten Free Girls
    As much as I hate it, I would recommend going through with the scope. My two daughters and I were all diagnosed last summer. My youngest daughter, 6 at the time, was the first to have positive blood test results so she was the first to get scoped. My husband and I worried, researched and debated as to whether or not it was really necessary. We went ahead...
  20. Gluten Free Girls
    We don't lick envelopes, or wear lip gloss. Toothpaste, vitamins, prescribed and OTC meds have all been checked. We have not been to a restaurant in a year. We have separate peanut butter and butter. We have checked our baking powder, spices, vanilla....literally everything in our pantry. We bought all new kitchen utensils, cutting boards, colanders, etc...
  21. Gluten Free Girls
    Our soon to be 7 year old daughter was diagnosed with Celiac disease almost a year ago. Our 13 year old daughter was diagnosed soon there-after and I followed with my diagnosis a few weeks after that. We are a trio of gluten free girls coexisting with our 8 year old son and my husband who are both, enjoying gluten and negative on Celiac tests for the time...
  22. Gluten Free Girls
    My two daughters have Celiac along with myself. Just today they had a 6 month check up. My 12 year olds TTG went from 160 to 10. My 6 year old went from 160 to 127. I was devastated. They are on the same exact diet, in the same household with the same procedures. I am 100% certain that my 6 year old has not ingested a single item outside of our household...
  23. Gluten Free Girls
    My 12 year old and 6 year old daughters have Celiac. We just had our 6 month visit with their GI and while my 12 year old's TTG counts went from 160 to 10, my 6 year old went from 160 to 127. They are on the same diet and I have made certain that my 6 year old does not ingest anything at school. She is so knowledgable and vigilant. We have not eaten at...
  24. Gluten Free Girls
    My 6 year old, 12 year old and I were all diagnosed with Celiac disease at the end of June. We will be meeting with our doctor at the end of this week to see if our numbers have dropped at all. I am scared to death that we will go to this visit and find out that we aren't doing things correctly. My girls immune systems seem to be worse rather than better...
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