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lisabp

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  1. Just in case one of the things she likes is chocolate (and she can tolerate dairy)...what got my son through when he was so sick was milk with lots of ovaltine. It has vitmains in there and it goes down very easily and tastes great. You can probably mix it with soy milk too (I don't remember if there is dairy in the ovaltine...) we find it in the coffee...
  2. What worked great for us (2 1/2 year old) when he got glutened recently was some of the infant mylicon drops. His bloated tummy dropped right back down and he wanted something to eat within 30 minutes. Lisa P
  3. Hi Mightymorg.... You'll want to check out alamoceliac.org (it's austin, san antonio and corpus) also the austin celiac listserve: Open Original Shared Link and if you have any celiac kids we just got a ROCK (raising our celiac kids) group started and that is at Open Original Shared Link There is a meeting Wednesday night for the Alamo...
  4. My son was diagnosed at about 18 months too. Same "toddler tummy" thatr just kept getting bigger. His mood was better in 1 week and his appetite in 1 month, but the tummy took a long time to disappear. It took more like 4 months to go down to where you didn't really notice anything was wrong and probably 6 months to completely look normal. His weight...
  5. My son had the "Ethiopian look" at 18 months and had not grown for about 4-5 months. We had done ultrasounds of his stomach to see if there was a growth there or what. Then his blood test cam back positive for celiac, the endoscopy was "classic" celiac and we went gluten-free the next day. He never had the bad diapers, but he had weeks where he would throw...
  6. I can tell you what happened with us. My son was iagnosed at 19 months. Within 1 week he simply wasn't crying all the time. At 2 weeks he was acting happy again. At one month he finally had a reasonable appetite. Now, at 2 months gluten-free, he is back to his old nickname "food man". If he's awake, he's eating. He is back at his chart before all this...
  7. Thank you for asking this question! My son's BM's were actually OK when he was eating gluten (maybe enought passing though still whole acting as a glue??) but it's been 2 months and his BM's are all still pasty. I know that he hasn't gotten any gluten. My son is almost 2 and we talked to his pediatrician and she wasn't worried at this age as long as the...
  8. For our visit we confirmed that our sone was "classic celiac" and the doctor told us to keep feeding him some gluten until the biopsy which luckily was scheduled for less than a week away. We also got his weight and height. That was it.
  9. Just to let you know what you can or may expect after going gluten free (and get those tests done ASAP-have your family doctor call in the blood test to the lab or fax it over and go in tomorrow for that-it may take a week or so to get it back and then get on the cancellation list-it got us in a ,onth early). My little guy was diagnosed at 19 months,...
  10. My son (20 months old) had his biopsy one month ago. I was worried too and it indeed was nothing. Since he didn't have any appetite keeping him from eating was not a big task. The worst part was waiting to go into surgery and THEN having the IV in his hand after was driving him crazy. Have whatever clear liquids your daughter likes best ready after and...
  11. There it is...I had to go to google and do a search for the title of the page: Frito-Lay: Products not containing gluten" Open Original Shared Link
  12. Wow! You really have to keep a look out. That list posted before was gluten AND casein free. I have a print out in front of me, also dates March 1, 2005, of gluten free items from the Frito Lay website and now I can't find that page. (it lists 19 different kinds of Doritos, by the way, including cooler ranch). I have a bag of Spicier Nacho Doritos...
  13. You guys have the greatest answers. I was also rather lost amonth ago when I had to start this. Our whole family is now gluten-free as my husband is positive and my daughter and I are fine eating gluten-free. She has her stash of Cheerios and that's it. The main suggestion that I would make is to just concentrate on regular food that is naturally gluten...
  14. If you have about $400 to spend, go to the Enterolab site and order the stool sample test. You'll just collect (and freeze) at least 1/2 a cup of stool samples and send them off and then 3 weeks later you'll get an email with the test results. Your insurance might or might not may for it (I still havr to send mine in to insurance). With that (or maybe...
  15. You have!!! to get her tested. My son did the same thing and would only eat drinkable yogurts and milk with Ovaltine for days at a time. So that you know there is hope...we were lucky to have a positive blood work result on a Thursday night, already had an appointment with the pediatric GI the next day (get on their calcellation list and you do NOT...
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