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aquaholical

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by aquaholical

  1. aquaholical
    Hey everyone. I’m still waiting on biopsy results from my scope a week ago. I used to post here back in 2011 when me and my gastro first suspected Celiac. I think what happened was in 2010 I cut gluten out of my diet because I was diagnosed with lyme disease (most lyme docs make their patients remove gluten from their diets regardless of sensitivity because o...
  2. aquaholical
    Hi there, I'm still trying to figure out if I have full blown celiac or just gluten intolerance myself, but I have had issues with food intolerances for over 7 years and my blood pressure is absolutely reflective of a food reaction. My normal BP is around 110/70, but if I eat a food (ANY trigger food, not just ones with gluten) my blood pressure jumps...
  3. aquaholical
    Thanks! I found one in town
  4. aquaholical
    No, I haven't heard of compounding pharmacies. But that does sound exactly like what I need, though. How would I find one? And yes, I realize healing is going to be extremely rough. I met with my new Lyme doc today and she actually has Lyme disease AND Celiac disease herself, so I feel like I'm in good hands.
  5. aquaholical
    Exactly. It's like the treatment for one of my conditions contradicts the other. Oy. So where do people who react to trace amounts of gluten get their probiotics? It seems like anything that is processed I can't handle, so I'm scared to trust any brands. For the last week or so I've just been drinking kombucha.
  6. aquaholical
    My god, I'm so sorry to hear you're having to go through that. I'm pretty convinced now it could be all the herbs putting my immune system into overdrive / making the celiac so severe plus trace amounts of gluten I've been possibly ingesting in those herbs. I'm going to see a new Lyme doctor tomorrow to see what she thinks. I have a feeling I'll have to...
  7. aquaholical
    Yeah, I'm realizing that absolutely nothing processed is safe for me. I verified some mustard that is tested at 10ppm and still react to that. So I'm thinking I've been ingesting trace amounts without knowing for the last year. Now I'm worried that the damage from that might be significant. So where do people that are as sensitive as I am get their probiotics...
  8. aquaholical
    Yeah, the more I'm calling around the more I realize that some may be "Certified" but they still share manufacturing facilities with other glutenous products. I've learned the hard way that I react to levels below 20ppm, so that's a no go for me. There's only been one brand I've found with dedicated facilities (Country Life) (not only do they have dedicated...
  9. aquaholical

    ARCHIVED Supplements

    aquaholical posted a topic in Super Sensitive People

    I've found out the hard way that I am SUPER SUPER SUPER sensitive and I really need to take a bunch of supplements/vitamins for another health condition. Where do you get your supplements? What are the safest brands?
  10. aquaholical
    I'm aware I need fruits and veggies but I react to all horribly. Anything with any amount of fructose is by far the worst. The pain is so awful I spend the rest of the day debating about whether or not to go to the emergency room. I'm also highly suspicious of the herbs. Over the last week I quit taking them just to see if I missed something there and...
  11. aquaholical
    So I've only been able to eat white potatoes, white rice and seeds for the last few months without violent pain. I'm about to try chicken stock, my first bit of meat in over a decade. My doc was originally suspecting Small Intestine Bacteria Overgrowth as the cause to this severe malabsorption, and because the tests for it aren't too reliable he decided to...
  12. aquaholical
    Good ideas, thanks! I actually read a lot about how untrustworthy the SIBO tests are. When I brought it up to my gastro she looked at me as if I had stated that the moon was made of cheese. She was very dismissive. I called yesterday and left a message pleading to find some other solution. There's no way I can make it a month to a test (and an...
  13. aquaholical
    Oh I know, believe me. Turkey is actually starting to look GOOD after 2+ weeks of nothing but potatoes. I did try chia seeds today and so far they're sitting alright, fingers crossed no reaction from those since they're pretty heavily nutrient dense. (my reactions usually seem to land in the evenings/night for some reason..)
  14. aquaholical
    I am having extremely serious complications and within the last few weeks my body won't tolerate ANYTHING other than baked potatoes or white rice with lemon. (my last post here) I appreciated all the input from my last post and some of it was especially helpful--my gastro does think it sounds like I have Small Intestine Bacteria Overgrowth. The problem...
  15. aquaholical
    Wow! thank you for all the information!! All extremely helpful. Now that you mention it, I remember one of my friends telling me about that bacteria/meat allergy article. I'm holding off until I talk to my doc to see what he says on all of it. Thank you so so so much for the info! I'll definitely be bringing it up with my doc tomorrow
  16. aquaholical
    Oh boy, the lyme. No, I'm not self diagnosed. My lyme doctor here in Texas diagnosed me. Which, yes, I know diagnosis is mostly based on controversial blood work (Igenex) / mostly clinical presentations, BUT I did get the bulls eye rash...when I was a little girl in the mid 80's and "Lyme didn't exist in Texas" so it was not properly treated (no antibiotics...
  17. aquaholical
    Woah, thanks for pointing me in the direction of Small Intestine Bacteria Overgrowth (SIBO). It sounds like that could be what's going on. My main symptom aside from the usual stomach pain, gas, bloating are SEVERE muscle aches. It feels like I have some terminal case of the flu. And with how quickly my body suddenly turned on corn, beans, nuts, etc it would...
  18. aquaholical
    Almost all veggies have fructose Even the ones lower in it seem to be bothering me. I plan on seeing my doc asap and til then only celery, mustard greens and swiss chard are without fructose/acceptable.
  19. aquaholical
    I'm waiting for insurance to kick back in so I can see my gastro. Til then I'd very much appreciate youz guyz's expertise.. I was diagnosed in March of this year and the more time that goes by, the more sensitive I seem to be getting. I know this is somewhat common, but the sensitivity and other intolerances are progressing to a scary degree. First the...
  20. aquaholical
    That's kinda what I figured. I don't see how light exercise and sweating out toxins could hurt. Thanks for the reply!
  21. aquaholical
    Hey gang. Think I've just figured out that I've been eating contaminated lentils for a few months and the backlash is kicking my butt. Along with the belly that feels like it's full of razor wire, my most prevalent and burdensome symptom is flu-like body aches. It hurts to move and all I want to do is lay down, but I also have Lyme Disease and light working...
  22. aquaholical
    PRECISELY. I wish I could just fast forward to when my gut is healed and being nice to the rest of me.
  23. aquaholical
    Thank you for answering my initial question. For the majority of the last couple of months, that's what I've assumed all this mess has been lately: just a horribly rocky road to healing. However, I do think I am truly onto something with the fructose malabsoption. I realize I'm a noob and could just be complicating things in my impatience to find relief,...
  24. aquaholical
    Okay, thanks to the food diary I may be getting somewhere. Dates bothered me last night, this morning I ate a banana and my belly ballooned out and I got D, the other day when I ate an apple the same thing happened. Hello fructose malabsorption?
  25. aquaholical
    I'm still waiting on Vitamin Shoppe to return my call/email about their manufacturing process (know all the ingredients for their name brand supplements claim to be hypoallergenic, but don't know about manufacturing.) But yesterday I FINALLY had a day of feeling halfway decent, so I made sure to take my herbs alone and wait hours to eat anything to see if...
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