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rachelh4207

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Everything posted by rachelh4207

  1. rachelh4207
    Who is the doctor? I live about 2 hours north of Atl and have been going to a Pedi GI in Chattanooga TN but I do not believe he specializes in Celiac or gluten issues.
  2. rachelh4207
    I highly recommend the book "Healthier Without Wheat: A New Understanding of Wheat Allergies, Celiac Disease, and Non-Celiac Gluten Intolerance. By stephen wangen. It really really helped me to see that doctors do not know all that much about celiac/gluten intolerance unfortunately. My DD is 2.5 and had a negative Biopsy as well. But a great reaction to gluten...
  3. rachelh4207
    Healthier Without Wheat: A New Understanding of Wheat Allergies, Celiac Disease, and Non-Celiac Gluten Intolerance by Stephen Wangen ***Sorry, Didn't know I couldn't post the link to get to the book:)
  4. rachelh4207
    http://www.(Company Name Removed - They Spammed This Forum and are Banned)/Healthier-Without-Wheat-Understanding-Intolerance/dp/0976853795 I have read several different books and still did not "get" the difference between celiac and gluten intolerance. I thought that the intolerance just meant it might give you belly issues. Nothing could be further from...
  5. rachelh4207
    thanks for the reply:) I really REALLY believe her hair has grown SO SO SO much in the past month (gluten free) And her stomach is so much smaller. On another note, she is constipated today!? what in the world? she use to be the opposite?!!?
  6. rachelh4207
    Apple wheels Open Original Shared Link Eggs holes (eggs in a basket ) Except use peppers or onions instead of bread. BIG hit around here. YUM! Open Original Shared Link Fruit tree. Big hit around here Open Original Shared Link My personal fav- Green smoothie Open Original Shared Link
  7. rachelh4207
    Hi! I know this question may seem dumb but I just want to make sure that I understand right. I have been reading every gluten/celiac book I can get my hands on and searching the internet and still am not *sure*. DD (2.5) has gluten tolerance I am fairly certain, however, her panel and biopsy were negative for celiac. (she had been off gluten for a week...
  8. rachelh4207
    My daughters biopsy was "normal" too, but off of gluten for two weeks at the time. But I didn't ask if there was *any* damage, I just know there wasn't enough to diagnosis celiac. I have four girls (ages 6, 5, 2.5, 1) and LOVE homeschooling. It is not for everyone, but for sure look into it. I never thought I "could" do it but my girls are THRIVING...
  9. rachelh4207
    Have you got the results from their biopsy yet? We homeschool so that is the reason we don't really "need" a diagnosis. Our families are being VERY supportive about it as well and not questioning "self diagnosis" of it since they can see that something was clearly wrong with emalyn (dd3) and she is already showing improvement signs. About things just...
  10. rachelh4207
    Makes perfect sense. I would like to know if I have it, but with all the "false negative" stuff I am like, why bother? I think DD3 has so so so many signs to celiac so I know she NEEDS the gluten-free diet and now that I look over issues I have had, and my other three girls have had- I think, what if they have a gluten issue too?? Nothing as big as my dd...
  11. rachelh4207
    We are in this same boat. I know that it is so much easier to test now, but at the same time, I am like "do i really need a diagnosis???" I know I had a reaction to gluten after having some after three weeks without it, and DD3 has improved SO MUCH without it. Now that I see the amazing difference in my life and hers, I want all four girls gluten free. But...
  12. rachelh4207
    Also I should add that I was diagnosed with IBS as a teenager.
  13. rachelh4207
    The limping is due to her broken leg that isn't healing quite right. I do remember her limping a little before though and of course the pedi brushed it off as no big deal. She has just always had more trouble walking and stuff (poor balance and strength) About the night sweats and cancer- How would I know? she has had the full CBC stuff and everything...
  14. rachelh4207
    My 2 yr old daughter has many, MANY signs of celiac so I went off gluten with her three weeks ago because I really felt that it was celiac and as many bowel issues as I have had in my life, I thought- "I probably have it too!". My prior symptoms: -horrible constipation every since I can remember- Even though I only drink water and we eat healthy -Very...
  15. rachelh4207
    So we are still Gluten Free for three weeks now. She has had gluten TWICE when I was thinking about putting her back on it for the biopsy. So these are the changes (i think) -Night sweets/nap sweets almost completely gone. They stopped within three DAYS of stopping gluten. She has sweet a little during nap but our air has been messed up and it has been around...
  16. rachelh4207
    Well doctor called and biopsy was negative. So that is a good thing that she doesn't have internal damage, but I still do not know what to think. I *knew* going into this that the test could be negative and mean nothing, BUT now that the tests are negative, I am thinking, "Am I imagining all this??" I guess the only thing I can do is keep on the gluten...
  17. rachelh4207
    Wow what a helpful post seriously. I am So very (obviously) new to this and really appreciate the post. I am actually starting to believe Emalyn has a tolerance issue to milk and eggs now that I am more aware of the stuff. I have cut out a lot of things and let her have milk after two weeks without it and she had issues. Sometimes I get so over-whelmed at...
  18. rachelh4207
    I believe it is pointless. But after going back and forth on it for days we decided to do it- but we are still treating it like it is celiac even if it is negative. She is gluten free now and doing much better already! I would LOVE to know *forsure* so that I can know if I need to be worried about my other girls also.
  19. rachelh4207
    everything went well with the procedure and we will have the results within the week. thanks so much for all the help everyone:)
  20. rachelh4207
    well after much stress and prayer- we decided to do the test. It is tomorrow at noon. Will let you know how it goes. I am not planning on finding out much truthfully- just think after being off the gluten it could make it harder to diagnosis. Because of the colonscopy, they have her on liquid diet yesterday and today so haven't been able to get gluten in...
  21. rachelh4207
    THIS is why I am stressing out. I mean we do go above and behind (or try too) to make sure I cook every single thing the girls eat and make sure they eat healthy and balanced- and we had been under the impression that whole wheat was a good thing...now that I know it could be horrible for her, I want to KNOW since it is such a big part of our life:( I thought...
  22. rachelh4207
    Yeah I think a lot of her symptoms could be typical toddler stuff (like the fussy stuff) I got her results from the blood work today; Keep in mind she was off gluten for a week prior, so I am not sure if they are even valid! But the nurse (from the allergy doctor that ordered them) just said they were fine. So I asked what the numbers were here they...
  23. rachelh4207
    So honestly should I back the procedure to a later date and put her on full gluten for the time being? Oh she is not saying it makes HER sick, that she read somewhere it could. I don't know enough about it to know either way- That is just what the doctor said yesterday.
  24. rachelh4207
    Also, we grind our own wheat and all that. A friend of mine was just diagnosed with celiac and told me that even Emalyn breathing it could make her sick if she had it. The doctor said no way. That as long as she doesn't eat it. I just wish that there were more point blank directions for me instead of some telling me one, some telling me another FYI she...
  25. rachelh4207
    Mushroom: Thanks for the reply. I do at times think I want an official "diagnosis" so that when she is older she will not question it and neither will other people who are giving her food thinking that it was "my" diagnosis. I do stay home with her 24-7 though and we home school, so as far as worrying about that, it is not my main concern. The only time she...
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