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rachelh4207

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Latest Celiac Disease News & Research:

Everything posted by rachelh4207

  1. rachelh4207
    Are you the gluten intolerant one? I am and am currently nursing and got glutened and my little one reacted too...... currently on a gluten, dairy, soy, egg, peanut free diet to figure out what else is bothering her.
  2. rachelh4207
    If they are already doing the blood work anyways, I would do the panel. BUT I wouldn't trust a negative. Children 2 and under are almost impossible to test. Some test positive though so I would go ahead with the blood work if you were already doing it. I would NOT recommend an endo though regardless what the blood work says.
  3. rachelh4207
    Funny that you say that, because we have actually tried to get her to eat gluten before and she refused. I make pancakes and biscuits (gluten free) once a week or so and she LOVES them and begs for them. Well my mom (after I told her too) tried to give her some pancakes with gluten (not at our house) and she opened her mouth but spit it out IMMEDIATELY Then...
  4. rachelh4207
    Okay I have a gluten intolerant (never went through with the testing) and my daughter (3.5) has pretty much textbook celiac signs- but never officially diagnosed, as she was only 2 at the time and was gluten free during the test. But her little sister, who is two, Has been gluten free since we went gluten free because I planned to "test" her by giving her...
  5. rachelh4207
    I called and talked to them and she said she had no doubt they could handle getting food for me that I could have as they are a 24hour room service type thing...I still doubted...So I tried to explain more...lol...she said If i will get her a list of foods I like (gluten free) that she will go herself and buy them to have on hand for me. But that still doesn...
  6. rachelh4207
    Alright, I think it is decided. Going on a more grain-free diet like a low carb diet except we will keep potatoes and stuff. I just can't keep letting my kids have the rice products!
  7. rachelh4207
    Agree, What is safe??? To me, it is like saying, well we are only giving our gluten intolerant child a little gluten....what's bad is BAD...period....No matter how "low" the number.....BUT what do we do from here??? Can't very well go back to wheat flour pancakes can we?
  8. rachelh4207
    By the way we use "rice selects" Organic Texmati Brown rice. I can't find anything on it.
  9. rachelh4207
    My husband and I have actually been discussing the healthy benefits of organics a lot lately. I know that even with "certified organic" there are still "gray areas". We know the only way to truly know what we are putting in our mouth, is to grown it our self. So we are trying to find a nice middle ground on all of this. Then all the rice stuff comes out and...
  10. rachelh4207
    That's awesome to hear. I plan to contact the hospital and maybe even run by and talk to the people in the cafeteria to see what options I have. Maybe if I do my homework now, my sister in law can push them to order some stuff if they don't have a lot. Hey, it is worth a shot. I plan to bring stuff too, I just would love the option of them being able to...
  11. rachelh4207
    Well for me, It will be more than that. I have to have another c-section so it will be three full days. With two of my children I have stayed more like 4 or 5 because they had to go to the NICU. After all the surgery and stuff, I CAN'T risk getting glutened. My sister in law works for the hospital so I thought about asking her if she could talk to all the...
  12. rachelh4207
    I have a gluten intolerance (self diagnosed after we found out my 3 year old has it) And it is so severe that I get major sick from a little cross contamination. But also, Pineapple, raw spinach, Beans, jalopenos and spicy stuff, all bother me bad bad....I am sure there are more things, but those are the main things. What can I do? Will it go away? I use...
  13. rachelh4207
    I think america likes to turn to the side about GMO foods...All the other countries are screaming beware though. GMO is seriously bad for everyone. With people who already have issues, we can't afford to risk more damage!!!
  14. rachelh4207
    I didn't actually read the article either because what else can I feed them? my husband read it and said He has no idea what to do. We are very healthy normally and eat all organic and so now that we KNOW we are giving the kids something with this, how can I let them eat it? I have a 7, 5, 3, 1 all on a gluten free diet. The three year old as well as myself...
  15. rachelh4207
    Can they do that? I never eat anything that ANYBODY has cooked. I am so scared about having the baby! It is number 5 for us though so Dh can't take care of the others plus bring me food three times per day (hospital is 1 hour away) So what should I do? Any advise? I know my doctor said he would "order" me a gluten free diet but what about cross contamination...
  16. rachelh4207
    The ladies at my church always cook for people who have had surgery, death, sickness, baby, just anything- and they offered to cook for our family for two full weeks....I kindly asked them not too.They understood and offered to get us gift cards for the baby instead. I am scared enough about being in the hospital and all. What am I suppose to eat????
  17. rachelh4207
    Open Original Shared Link As a gluten free family, we do rice chexs, rice crispy cereal to make rice crispy treats, rice cakes, brown rice in recipes like meatloaf, rice as a side, and also I grind our brown rice to make rice flour!!!!! What in the world are we suppose to do??? Rachel
  18. rachelh4207
    REJOICING WITH YOU!!!!!!! My 3 year old has grown one inch per month since going gluten free. Her tests were "inconclusive" but we got our "diagnosis" with her THRIVING for the first time in her life. I cried when I found out how much she had grown and gained. SOO amazing isn't it.
  19. rachelh4207
    I have a 3 year old who was 2 during all the celiac stuff and here is her story: I don't recommend doing the tests. We paid a ton of money and end the end, the pediatric GI said that there was no need for a gluten free diet because the endo (which is NOT reliable at these ages) was negative.....Funny that he told me that since my daughter is THRIVING...
  20. rachelh4207
    If I could go back again, I would NOT go with the endo. I know others may disagree BUT at this point it may be pointless since they even said the damage may be patchy. When she is older, if she WANTS an endo, she can go back on gluten for a few months and get one. After a day or two back on gluten, she will be okay with skipping it;) It was VERY expensive...
  21. rachelh4207
    Hi all! I have a now 3 year old daughter who I posted about here: This is her symptom list from March of this year: My 2 year old has had a rough two years! First of all, had ear infections from 6wks to 9 months when she finally got tubes, was very small for her age and always has been. Currently her issues are: -night sweats (and nap time...
  22. rachelh4207
    We HATE all the gluten free mixes. I mean GAG.....BUT we LOVE LOVE our bean cake recipe!!!! Here is the link. Promise you can't taste the beans AT ALL! http://www.healthyindulgences.net/2009/05/healthy-chocolate-cake-with-secret.html even made a Gluten free king Arthur cake also and let our family taste the two and HANDS down every single person...
  23. rachelh4207
    Hi all, I wanted to update with my little ones progress. As you know, her biopsy and blood work were both negative for celiac, but with her age we question the accuracy of them. So we are 5 weeks into gluten free and the results so far, are pretty amazing. Her hair has grown a good 1-2 inches and before it was very very short like a boys hair cut...
  24. rachelh4207
    Thanks for the help. I told my husband that God was helping me by me getting glutened accidentally because after times like that, It makes me not miss the old food like donuts or bread or anything AT ALL!
  25. rachelh4207
    I have been gluten-free for 5 weeks now only because my daughter had issues and I thought it would be easier to keep up with her gluten-free if I was as well. Three weeks into it, I ate bread and was SO SICK within 4 hours of eating it. Sick for two days! So I cooked a meal that I had pre-cooked in my freezer monday night. The recipe does NOT call for gluten...
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