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josie656

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by josie656

  1. josie656
    So, With all the talk of cross-contamination on here, am I right in assuming that gluten free options in an otherwise glutonous restaurant are out? Because of cross contamination. Gluten free burger bun option, gluten free pizza base option in the fast food chains and just gluten free options at other places. Even at a breakfast joint, if they offer gluten...
  2. josie656
    Oh and while it can seem like nirvana, the bread from the gluten free bakeries can be hit and miss. And just as, if not more expensive. (I have currently got some foil wrapped gluten-free pizza bread in my freezer from the gluten-free bakery - can't wait to see what it's like, it feels like french bread, I'm sure I will be disappointed!)
  3. josie656
    Gosh, I've just got back from the UK (British living in NZ) and I was really impressed by the gluten free bread in the supermarket. Tescos had ciabatta rolls which were really nice and I think there was a brand called genius which was yummy, could eat it for sandwiches - all the supermarket gluten free bread here has to be toasted. Also your supermarket gluten...
  4. josie656
    I always get a flu shot because I have asthma so flu is particularly bad news. A couple of years I got sick after getting it but can't say if it was connected as there were other contraction possibilities. I understand the concerns but on the whole I think it's well worthwhile for anyone at extra risk if they get flu (elderly, low immune, asthmatic etc).
  5. josie656
    PS: It can also be sad to think who we may have been without gluten and what we may have achieved/experience. I can only say now, after hanging out with some incredibly vibrant 70 year olds (I'm in my 40s) that there's still time for many of us to fulfil our potential now we are free - or at least on the road to recovery.
  6. josie656
    These posts make me emotional too. All these symptoms are ringing so many bells. It's amazing to hear people talk about memory problems because usually people don't get it at all when I talk about memory issues. I don't remember, as another poster said, whole years, most of my childhood in fact. I've been complaining of a bad memory since I was a young teen...
  7. josie656
    There's a gluten free bakery in Auckland too. Called Marx - it's in St Helliers. Really good range. Not that I've been there since this recent return to gluten free. Might visit soon! Yes Venerdi does need to be toasted, haven't really found a gluten free bread that doesn't need to be.
  8. josie656
    Hi all, I noticed recently (while trying to check if I was allowed the goodies on the office table) that Cadbury website has a page with gluten information, listing all the products that do and don't contain gluten. Pretty good. Be nice if all companies did that. Re soy sauce, I was pretty sure tamari wheat free was also gluten free. Hope that's right. Gotta...
  9. josie656
    Hi - Josie in Auckland here. Just saying hi as don't really have any product info. Think Venerdi is the best bread not sure if you get that. Last time round I bought all kinds of gluten free cakes and biscuits but this time I'm trying not to do that. I was on the SCD for a while and picked up some great almond flour recipes for cakes and cake like breads...
  10. josie656
    I am starting to have more good days neurologically (brighter and more with it, more positive), starting a food diary to try and highlight other things (suspecting potato, tomato, sugar). It's a big deal to start to feel better. A big relief. I feel quite sad though for the months I have missed this year 'not being me' and over the years too. I'm supposed...
  11. josie656
    Thanks Beachbirdie. Yes, I did have some gains on the SCD and did it for over a year. I stopped eight months ago and now I can't remember what I used to eat! It's good but hard. I think energy was still a problem. I am annoyed at myself for stopping though. Falling off the wagon was unavoidable but I should have got right back to it instead of giving in...
  12. josie656
    Yep. Going gluten free. The more I read on the forum the more I identify with. All kinds of neuro issues inc long term memory that I can never get any diagnosis on other than depression (and I don't take anti d's) Also, I'm not convinced of the validity of the biopsy I had, it should have been done much much later when I was over the major colitis attack...
  13. josie656
    Doh! dyslexic typing! I meant to type that he said gluten can't be good for anyone with colitis!
  14. josie656
    Thanks everyone for your comments and useful links. GFinDC - I'm feeling really grumpy tonight so I must be celiac :lol Well, I'm fairly convinced I need to go back to gluten free and perhaps even grain free but I'm still confused about the actual specifics and it is tempting when you have people saying there's no problem to just eat normally. I long...
  15. josie656
    I also seem to have tested positive (80) for Smooth Muscle Antibodies. Which I'm reading may be indicative of celiac (and worryingly of liver disease). Will have to ask my doc more about this too. I've read somewhere that undiagnosed Celaic may cause autoimmune disease and since UC is thought to be such, and with this SMA result, I'm kind of concerned my...
  16. josie656
    Hi Skylark, Thanks heaps - yes I think that's my next step. Go gluten free for six months and then retest the ttg. NB: I wasn't six months off gluten when they did the gastroscopy. Only about two months off, two weeks on. Wish they'd do these things properly, it's not a nice procedure and it costs money so why don't they get the controls right. I'm in...
  17. josie656
    wow I have just been reading some threads about brain fog, concentration, memory etc. It's so me and the main thing I want to address! So all in all I was off gluten for almost three years, although the first 1.5 may not have been 100 per cent (cross contamination etc). Is it possible celiac can be my problem when I went five months back on wheat before my...
  18. josie656
    Thanks Skylark. It just feels confusing really because I have been through the gastroscopy part and they were so sure I was fine. Presumably that also meant no damage - which would be odd after eating wheat all my life if I was celiac wouldn't it. I think I will try and track down the report. I was in hospital in January 07 had been eating gluten all life...
  19. josie656
    I'm starting to suspect potatoes. I don't know if I'm imagining it but I seem to get grumpy and brain foggy the next day. Seems a bit crazy and very hard to pin on a potato (fries seem to be the worst) but it might be worth cutting them out to see. Yes, agree it's hard to avoid potato starch when eating gluten free bread. Thanks for the interesting posts
  20. josie656
    Thanks, they did test other things (it was a celiac screen) but the TTg was the only one that was elevated (a lot). Others were normal but I need to find out exactly what they were. If they are what you are suggesting and they are normal levels but with a high TTg would that then mean I wasn't celiac? Many thanks,
  21. josie656
    Azathioprine worked for me for four years. It didn't stop working - I just stopped being prepared to take it because I felt well enough for long enough to try and quit such a strong drug. I recommend the Specific Carbohydrate Diet, even though I'm no longer on it. I did manage to reduce my azathioprine while on the diet.
  22. josie656
    Hi, I have Ulcerative Colitis and suspected celiac. I've known about Dr Klein's diet for a while but it does seem so extreme. I've tried the SCD though - which I recommend to this poster. Is this diet something you will follow ongoing now, or do you expect to be able to go back to a more varied diet? The SCD seemed strict (no grains, no lactose, low sugar...
  23. josie656
    Hi just wanted to ask advice as there look to be some very knowledgeable people here. My story is a bit long sorry in advance! Jan 2007 Big flare of Ulcerative Colitis lands me in hospital. While there, blood tests come in that show positive for Celiac. I don't have exactly what was tested. I was put on a gluten free diet. It seemed to make some sense to...
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