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ker0pi

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ker0pi last won the day on July 16 2012

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About Me

I am now Gluten Free, I have essentially self diagnosed NCGI, my blood work came back negative. But, being gluten free has eliminated about 85% of my pain in a few weeks and I can't wait to see what 30 days is like.

  1. ker0pi
    Thank you for the tips. I'm Episcopalian, not Catholic, often referred to as Catholic Lite, we do have communion every Sunday. I spoke with my priest today and the wafers she got for me were rice flour no gluten, Episcopalian's don't have that no wheat means it's not communion issue I've heard Catholics say. I skipped the wine again and we talked about...
  2. ker0pi
    This theme keeps coming up for me, I kept a sleep journal during the worst parts to be more clear with my doctor about the insomnia and what specifically was causing me to wake up 5-6 times a night and which supplements/meds seemed to help. I have been thinking the same thing, no gluten, piece of cake. We already eat an organic whole foods diet and my local...
  3. ker0pi
    One of the swimmers, Dana Vollmer is Gluten Intolerant! They did a little news blurb about it after she won her gold medal. Open Original Shared Link This is the video link to the CNN story. I thought it was really cool. Gives me hope I might be able to run again some day.
  4. ker0pi
    We were at the beach so I had my hubby pour water over my hands so I could clean them as best I could. When we got home I took my son straight to the shower for de-sanding and I do not recall any hugs or kisses before the shower. My hubby gave me "a talking to" after I handed out the sandwiches. He did the first round and was busy when I got asked for seconds...
  5. ker0pi
    I do get served first after my priest and the acolyte, my priest has been wonderful, her dear friend and fellow priest is a Celiac so she immediately spoke to her about how to handle my communion, there's a laminate step by step instruction on how to avoid cc with my wafers posted in the Sacristy. It's the ceremony part where she breaks the wafer, I'm concerned...
  6. ker0pi
    It does help. Everything I have read on this forum that leaves me thinking, "It's not just me!" Makes me feel a little better. I keep telling myself not to mark of days but weeks and then stretch it to months. I don't think I got CC, but I plan on refraining from the wine next week at communion, I get my own special gluten-free wafers. I had a moments...
  7. ker0pi
    I have determined the HONEYMOON is over. I am approaching 5 weeks gluten free and the first 4 were blissful. I have enjoyed watching all my crippling pain vanish and my bm's become regular for the first time in my life. I had oddles of energy and just couldn't slow myself down. Well now, I feel a bit crummy. It is no where near the crippling pain and...
  8. icon ker0pi reacted to a post in a topic: The What's For Dinner Tonight Chat
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  10. ker0pi
    Wow, I'm amazed at how many threads I read where I'm left thinking "It's not just ME." Irrational anger has departed along with my gluten habit and I could not be more relieved.
  11. ker0pi
    My favorites so far have been The Gloriously Gluten-Free Cookbook: Spicing Up Life with Italian, Asian, and Mexican Recipes by Vanessa Maltin I have found these to be the tastiest and simplest recipes so far, very easy to adapt and it's about 10 to 12 bucks so not to spendy and my really good friend sent me The Gluten-Free Gourmet: Living Well without Wheat...
  12. ker0pi
    Tonight I made my favorite "Oh my goodness it's almost 5 what am I going to make tonight?" dinner. Something I thought would never again be my old stand by. Yummy grilled cheese sandwiches with tomatoes, fresh tossed salad and yummy acorn squash mango soup. Just cooked it up with some Rudi's gluten-free bread fresh mozzarella with roma tomato slices and...
  13. ker0pi
    We don't have a yard, but for mother's day my hubby gave me wine barrel planters and soil so my son and I planted a small vegetable garden which includes Radishes, Green Beans and Cherry Tomatoes. We already harvested all the radishes, I have never had sweet radishes before they were amazing and we even cooked up the radish greens and put them into the re...
  14. ker0pi
    Hello, I am a "brain fog" sufferer. It was my first symptom, I thought my pregnancy "baby brain" just never went away. I was so forgetful and that was something I had never experienced in my life, I work with numbers and could quote any figure from a financial statement I had just looked over, that went away. I kept blowing off my husbands concerns...
  15. ker0pi
    I am very lucky, one of my priest's dear friends who is also a priest is a Celiac and when I went to my priest about my diagnosis she consulted her friend about how to handle communion with regard to me. I get special rice wafers and she puts it in a small dish for me before the service begins to avoid CC then I take it out myself when she presents it to...
  16. ker0pi
    I am so relieved that I'm not the only one who does that!
  17. ker0pi
    Hello, I've been gluten-free for 4 weeks now and have seen a ton of my physical symptoms subside or reduce but my neuro symptoms, mainly forgetfulness, saying the wrong words and drifting off mid sentence or thought, like I just did trying to come up with the third symptom I just listed have not resolved. I don't walk into walls or door jams any more...
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