Jump to content

troykm

Advanced Members
 View Profile  See their activity

  • Posts

    48

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by troykm

  1. troykm
    Hi all. Diagnosed in 2012 (biopsy and gene testing) and have been pretty fastidious about staying gluten free. Although over last 2 years I have branched out my list of places to eat where they do gluten-free meals. I have have been having what I think are exposures to gluten and symptoms but I’m not actually sure that is what i...
  2. troykm
    Here in Australia most specialists and GP's don't put much faith in the blood tests as i have been told by all of them (the ones i see or have seen) that they are all too inaccurate for a diagnosis. I have also read with regards to the biopsy, in Australia they now view no villi damage BUT hight lymphocyte levels as early celiac disease. The basis being while...
  3. troykm
    I have this issue at work. Over the last 2 years i have lost a lot of weight. (not celiac related, i chose to loose it) Because people at work only ever saw me fat, they dont realise that normal weight for me is quite thin, but because they are all overweight i now get waves of "oh your too thin" "you look ill" "are you sick?" And i want to punch them...
  4. troykm
    I use the peanut allergy thing now too. I tell people take celiac as seriously as you would a peanut allergy. I know that its not quite the same but at least they "get it" after that.
  5. troykm
    I was dx last june and have been hyper vigilant about everything that goes in my mouth since then. The labelling laws here in Australia do make this easy though which is good. However, last night i went shopping. I saw Greenseas flavoured tuna was on sale. I grabbed 4 tins and went on my merry way. This morning i gabbed one out and just started eating...
  6. troykm
    Thanks guys. I've had mood swings before like all people do but these swings are different. Its almost like I can't stop myself. And im also generally happy too. My mum told me this morning it was like she was talking to a crazy person yesterday.
  7. troykm
    Hey all. I've been gluten free for almost 6 months. A few times I think I have been glutened I get pain in stomach very quickly but the next day I get mood swings, rage and really crazy thoughts. Yesterday I was talking suicide to my mum she was freaking out. They funny thing is I had no intention of killing myself it was the rage talking. But by late last...
  8. troykm
    ok 3 months gluten free. diagnosed by biopsy and gene test. negative blood work. specialist says prob celiac. response to diet at this early stage is promising. BUT i can not stop focusing on the negative blood test. the blood test was for AGA IGG and TTG but no total IgA level test as the pathology believes its not needed with the high sensitivity...
  9. troykm
    Ok maybe my theory was a stretch lol but i want to know why my test was negative but the biopsy was clearly positive. I'm only asking because my specialist wont say 100% its celiac because of the negative test, but is at a loss to explain the positive biopsy and i have the HLA-DQ8 gene. Also, i am responding to the diet so thats a good sign. But after so...
  10. troykm
    This is just a thought i have been mulling over. Its not scientific by any means but would like opinions. I have celiac, positive biopsy - negative antibody test. One of my sisters since tested positive to anti body test. My other sister and my mother have both tested negative to antibody test BUT both have the same gene i do (DQ8) and the same symptom...
  11. troykm

    ARCHIVED Blood Test Interpretation

    troykm replied to Jovie100's topic in Doctors

    The Biopsy is easy! go to sleep for 10 min then feel great after. :-) its only sedation, not anaesthetic good luck.
  12. troykm
    Don't be sorry for the rant, we all need them now and again. I'm new to this too, only diagnosed 6 weeks ago. I understand your pain right now. Literally I'm on the loo in pain right now. TMI I know but this is life. My brain fog comes and goes but it's starting to lift. Hang in there. Just remember what your feeling now is your body trying to correct...
  13. troykm
    I dont know what country your in but if were you I would have the antibody test again. Use a different lab. Have the biopsy and the genetic tests as well. You need an answer none of us on here can give you. In Australia the antibody test is not used to diagnose celiac, it's seen as just one piece in the celiac diagnostic puzzle. Melbourne pathology did...
  14. troykm
    And I have stated over and and over and over and over that I'm passing on what my specialist said!!!! I have subsequently read it online with Google searches. I'll say it again. My specialist said to me "if the antibody test is positive, then it's most likely positive. But if it's negative it's only 70% accurate so about 30% of negative results are FALSE...
  15. troykm
    Google! Simply Google dermatitis herpetiformis negative celiac blood test and presto! 27000 results.
  16. troykm
    Most of the current research on celiac disease is coming from europe and scandinavia. In fact I think you're find most of the current research come from countries outside of america because most other countries are actually interested in health and are not driven by pharmaceutical companies. in France the research is so advanced they now think patient...
  17. troykm
    If you can't find what I can find on google then maybe you're not asking the right questions.
  18. troykm
    My specialist was the one who told me that around 25 percent of celiacs test negative in blood work. To qualify her, not only is she a practicing gastroenterologist, she is also a professor and lectures here in melbourne at monash university on the subject, she is also a on staff gastroenterologist at several private hospitals. Based on what she...
  19. troykm
    LOL idiot. Not quite the insight I was looking for :-P But you make a good point, I'm getting a coffee lol
  20. troykm
    I've just been reading that some research is showing that the protein in coffee is cross reacting with the gluten antibody in our intestines. As your intestines heal the antibody levels drop and so the cross reactions slow and eventually stop. Can this be true? I suppose it's possible. It would explain my mystery.
  21. troykm
    I would suggest your Dr starts investigating. There are other health concerns that can cause your TTG to be high, its not exclusive to celiac. Maybe a few tests to rule out other causes is needed. Good luck
  22. troykm
    and with your line of reasoning i should just accept that my blood test was negative and that i don't have celiac. seriously why did you come on to my thread in the first place? is it your goal to try and undermine my health? are you trying to sow the seeds of doubt in my diagnosis? all your posts are focusing on my blood test and nothing else. why do you...
  23. troykm
    look i don't want to keep going on about this so this is my final word LOL at the end of the day the antibodies to gluten are produced in the intestines, not in any other part of your body so there is a real situation where they just don't make it into the blood stream. In Finland they realise this and now test the mucosa when they do biopsies to check...
  24. troykm
    I'm sorry if I sound narky, its not my intention. This is something you don't seem to be grasping. There are two answers to an antibody test, positive and negative. A positive result has a 95-99% sensitivity, thus only 1-5% chance the positive diagnosis is wrong. It does NOT mean false negatives occur 1-5% of the time. If your result is negative it means...
  25. troykm
    your interested in my information? LOL heard of google? im only passing on what i have read and what my specialist told me. The antibody tests only test for antibodies to 33-mer gliadin. However this is only one fraction of gluten and celiacs can react to other sections of the gluten protein which of course wont show on current tests because we are not...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.