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carrielynn

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Everything posted by carrielynn

  1. carrielynn
    Is the tetracycline something you take constantly? I'm not sure I want to put him on that. Will his itching subside eventually the longer he's off of gluten? Or are we going to have to deal with this even after being gluten free for a long time? Regarding the sunlight, I don't know what to do about that. He's in school and they have recess and I don...
  2. carrielynn
    We've currently got him on benedry. We've tried Zyrtec, Claritan and Allegra and it seems like they don't help as much as benedryl does. We also spent a ton of money (not covered by insurance) on extensive IGG and IGE allergy testing and discovered he's allergic to all dairy, eggs, beef, lamb pineapple, blueberry and grapes. We have removed all of this...
  3. carrielynn
    We have tried lots of things to deal with the itching. You all should see our medicine cabinet. It's maddening and heartbreaking to watch him scratch. We just got back from a pool party and he scratched the entire time. There were a lot of well-meaning (and very clueless about celiac) people there offering advice, but I frankly didn't want to talk about...
  4. carrielynn
    Hi Everyone, I guess I need some reassurance here. Our 5 year old son was diagnosed with celiac about 6 weeks ago and we removed gluten and dairy and eggs from his diet. We've noticed a change in his mood... he seems to be more energetic and less moody. He's happier. But his skin still looks awful. I should say that his skin did improve in the...
  5. carrielynn
    Just an update. I ended up making gluten-free/DairyFree/EggFree gingerbread dough and sending that with my son. The teacher helped him make his cookie first so there wouldn't be cross-contamination with the other kids. I also sent already-baked gluten-free gingerbread men in case something went wrong on her end. Everything went extremely well and...
  6. carrielynn
    Thanks.... just feeling a bit sensitive about the whole thing. It's hard being a parent! We deal with a peanut allergy with our other child and all the emotional issues attached to that. Sometimes I have to allow a more "risky" activity there too (not ingesting peanuts of course), but I always assess the risk before making a decision. So far we've had...
  7. carrielynn
    Whole Foods has some Gluten Free Pantry mixes. I'll check that out. Thank you for the pointer. --Carrie
  8. carrielynn
    I completely agree with you about food in the classroom. We also have a child with a peanut allergy and it's a constant struggle. Everywhere I go we are offered candy and treats by "well-meaning" people. Even in church Sunday school, which we cannot do anymore. (Why do they serve snacks an hour before lunchtime? Anybody? Anybody?) And everyone wonders...
  9. carrielynn
    Yikes! I just got a notice from my son's kindergarten teacher that they are making Gingerbread cookies this Wednesday! We just found out about my son's celiac situation about 6 weeks ago, so I haven't figured out how to make these kinds of cookies. I'm pretty sure they are going to roll them out in gingerbread men shapes. To complicate matters, my son...
  10. carrielynn
    I found a Wild Oats rice milk product that is gluten free, so I'll be buying that in the future. My husband accidentally fed my son sausage two days ago that had traces of wheat starch in it. We will have accidents, I know. We're learning. Carrie
  11. carrielynn
    I went back and rechecked that Rice Milk label. It does say .002% trace of barley. I bet you inhale that amount of flour when you walk through the grocery store or go into a restaurant or sit next to someone eating sandwiches. With the prevalence of wheat products, there's no way to avoid it. Just a thought. (Don't everyone jump on me. I realize...
  12. carrielynn
    The doctor who we saw, the only person to know anything about celiac disease and who other celiacs talk to, said it was okay if he had minute traces. His blood work indicated there was no intestinal damage so far. (I know only a biopsy can tell for sure, though.) Seeing as how he's had this problem for several years and was quite the wheat addict, I think...
  13. carrielynn
    Thank you so much for all your help! I do have a question about exposure. I have several celiac friends who aren't worried about cross contamination and they do just fine. (They'll just remove the meat from a sandwich and eat it and they haven't had problems.) And the doctor we saw, whose own daughter had to go gluten-free, said that if our son got trace...
  14. carrielynn
    We have just received a diagnosis celiac disease for my 5-year old. He's had horrible eczema that has just gotten worse and worse over the past year. The eczema has not been identified as DH and I'm not qualified to make that determination myself. Complicating matters is he appears to be very reactive to all dairy and eggs, according to his IgG and IgE...
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