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carrielynn

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Everything posted by carrielynn

  1. carrielynn
    I'm going on a 100-mile bike ride this weekend. The last time I did this, a friend handed me a recovery drink concoction and "forced" me to drink it... it really helped and I didn't feel sore at all the next day. I don't remember the brand... I am now on a gluten-free and dairy-free diet and am wondering if there are any gluten-free/DF recovery drinks...
  2. carrielynn
    I know, I know. I really, really thought this woman had lost her marbles when she led me through this little tapping/singing/counting exercise. But it worked on my problem when nothing else did. I learned how to do it myself and have been able to mitigate some other extreme emotional responses that I've had. The testimonials are pretty amazing on the...
  3. carrielynn
    If you both are willing to try anything, you should take a look at Emotional Freedom Technique (EFT) -- see Open Original Shared Link which provides a ton of free information and instructions on how to do it. I saw a therapist who used this technique on me. This is a woman who I respect 100% and who has helped me tremendously with other issues using other...
  4. carrielynn
    What kind of thyroid tests did the doctors do? What were your results? I see a thyroid expert (nationally known, written a prominent book, etc.) and he says I probably have hashimoto's disease based on how my thyroid feels and also a sonogram. He can't say definitively without doing a biopsy. I've been taking thyroid medication for 4 years. The last...
  5. carrielynn
    My diet has been the same, except for no wheat or dairy. I haven't added anything new or exotic. I have lost 3 pounds though! When I took the enterolab test, I was drinking lattes, eating ice cream, cheese dip, etc. So my results were reflective of me eating quite a bit of dairy. I don't really feel differently, except for the "free-flowing"...
  6. carrielynn
    My husband was diagnosed with celiac disease about a year ago. I went gluten free for 2 months and didn't notice any difference in how I felt. I went ahead with the Enterolab testing and the results indicated I have 2 gluten intolerant genes and that I am having immune reactions to both gluten and dairy. The stool testing results were: Gluten sensitivity...
  7. carrielynn
    We went to Disneyworld about a month ago and had no problem at all with the Disney restaurants. At every single Disney restaurant we went to they brought the chef out who told my husband what he could and could not eat. At one of the restaurants they sent very hot (freshly made) gluten-free rolls to our table along with the meal. (We told every restaurant...
  8. carrielynn
    Thanks for these responses! Which leads me to my next question... and I know there's no one answer, but how long before I start feeling better if the gluten and dairy is bothering me? My husband, who is a true celiac, started feeling better pretty quickly. Of course he may have been feeling so bad before that any improvement was registered as feeling...
  9. carrielynn
    Hi everyone, I sent off a "sample" to Enterolab and recently got my results back. I had previously done the genetic test and found out I have two gluten sensitive genes. Here are my results: ********************** Gluten sensitivity Stool Panel Complete Fecal Antigliadin IgA 33 (Normal Range <10 Units) Fecal Antitissue Transglutaminase...
  10. carrielynn
    Thanks everyone for all the suggestions and thoughts. The interpretation on my Enterolab report said: "Interpretation Of HLA-DQ Testing: Although you do not possess the main genes predisposing to celiac sprue (HLA-DQ2 or HLA-DQ8), HLA gene analysis reveals that you have two copies of a gene that predisposes to gluten sensitivity (DQ1 or DQ3 not subtype...
  11. carrielynn
    I got my Enterolab genetic results and, like many people here, am confused. Here they are (drumroll....) ************* Gluten Sensitivity Gene Test HLA-DQB1 Molecular analysis, Allele 1 0301 HLA-DQB1 Molecular analysis, Allele 2 0602 Serologic equivalent: HLA-DQ 3,1 (Subtype 7,6) ************* My husband and I both got genetically tested...
  12. carrielynn
    Our son has celiac. We did the cheek swab genetic test with Enterolab and he has the HLA DQ 2 celiac gene and also a gluten sensitive gene. He's been gluten free as best as we can control for a year and he's doing much better with his mood and energy level. My husband and I did the genetic test after finding this out. My husband's side is the one who...
  13. carrielynn
    We see very good doctors who we trust who could not figure out what our (now) 6 year old was allergic to that was causing his severe eczema. We took our child to 4 doctors in our city and to one doctor in another city that has several medical hospitals with top doctors in the state. No-one could figure anything out. Then we went to see a PhD nutritionist...
  14. carrielynn
    My family will be going on vacation in Boothbay Harbor Maine. Does anyone have experience or information about gluten-free options there? Thanks!
  15. carrielynn
    Thanks for all your replies. I should add that he itches all the time anyway... that's been a constant for several years now. We hoped that would go away when he went gluten-free but it didn't. But it was weird that he woke up in the middle of the night with an itching "attack". My husband told me that the humidity is at 25%, so his skin is probably...
  16. carrielynn
    Hi. My 5-year-old was diagnosed with celiac disease last July. He didn't have any noticeable gastro-intestinal issues, but had horrific eczema with terrible itching and little sores. When he went gluten-free the little sores cleared up, but not the eczema. His mood and energy level were much better, though. He was not officially diagnosed with DH, but...
  17. carrielynn
    I have a decent relationship with my gynecologist. I told him that if he ever tried to prescribe an SSRI (or equivalent) to me, I'd kick his butt. (He's about my age and given the shape he's in, it would be a fair fight.) He said he wouldn't prescribe them to me ever (not that I'd take them if he did), but that he prescribed them to other patients "because...
  18. carrielynn
    Amen sister. Amen. I am so sorry you went through all that. It sounds like hell. I have found that when I check the "anxiety" box on the pre-appointment questionnaire, then the doctors just focus on that. It's taken me awhile to figure that out. Now I am not going to ever admit that I have had (or still have) anxiety problems. Every single doctor...
  19. carrielynn
    She said she's been tested and poked and prodded for years... been tested for everything BUT celiac. The doctors finally told her she had psychological issues and suggested she go on an anti-depressant. She doesn't seem depressed to me. I think her situation is getting her down, but she's not inherently depressed. (Don't get me started on doctors...
  20. carrielynn

    ARCHIVED Dry Hair

    carrielynn replied to lyoung2's topic in Dermatitis Herpetiformis

    I just posted this in the Dry Skin thread, but it seems to be relevant here: *************************************************** I was reading Dr. Whitaker's Health and Healing newsletter for this month and there was an item about supplementing with silicon in your diet. It says: "Although you get silicon in your diet, especially from whole grains...
  21. carrielynn
    Thanks for your message... I understand your pain. I don't have celiac; my son does -- recently diagnosed. (I am going to get tested, but I suspect this came from my husband's side because many of his undiagnosed family members have suspicious symptoms and they are all getting tested because of that.) But I had postpartum depression pretty bad -- lasted...
  22. carrielynn
    I think this will have to be a self-motivated endeavor. It's a big shock to be TOLD to go gluten-free. If you decide, on your own, "hey, what if I remove gluten and see what happens" it's not as big of a shock... you're in the driver's seat, so to speak. Thanks for your thoughts. Carrie
  23. carrielynn
    I suggested she try eliminating gluten, but I might as well tell her to go get a PhD in nutrition. If she's going to try that, then she needs to go the whole way and not do it half-heartedly. If she tries and doesn't do it right, then she'll deem the experiment a failure and probably claim she's not celiac. She's incredibly busy and as we all know...
  24. carrielynn
    I have a girlfriend who I have known for at least 10 years. The entire time she's had chronic gastro-intestinal problems. She's rail-thin and has chronic diarrhea. I know she used to see a gastro doc, years ago, and he had her on all sorts of medications. When she got pregnant, her gastro problems cleared up, but went right back to being bad after having...
  25. carrielynn
    My son also has flaky skin. I don't know if this is a result of going gluten-free or not... he may have had flaky skin before hand. But he definitely has it now, especially on his face. I was reading Dr. Whitaker's Health and Healing newsletter for this month and there was an item about supplementing with silicon in your diet. It says: "Although...
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