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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by DogWalkerNYC
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ARCHIVED Diagnosed With 'gluten Sensitivity' & Gastritis. Help!
DogWalkerNYC replied to DogWalkerNYC's topic in Coping with Celiac Disease
Thank you both so much. The stomach pain was so bad last night I couldn't sleep. I finally fell asleep some time after 4am (last time I looked at the clock). I woke up feeling better. I took 2 150mg Zantac on an empty stomach as prescribed by my GI doctor and 15 minutes later I juiced 2 lbs of organic carrots, added 1 tsp Barleans flax oil and slowly drank... -
ARCHIVED Diagnosed With 'gluten Sensitivity' & Gastritis. Help!
DogWalkerNYC posted a topic in Coping with Celiac Disease
Really need some help. Several years ago I self-diagnosed myself with some sort of gluten issue after my stomach pain and reflux responded to a gluten-free diet. But I've been binge eating (gluten and non-gluten) on and off since then and totally out of control due to some stressful situations in my business, and the pain has come and gone accordingly. ... -
Actually intolerant makes more of a statement than merely being sensitive to something. I fully agree and so does my pain. I do hope intolerant wins out.
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Thanks Mushroom. My doctor called it 'probable non-celiac gluten sensitivity' so I guess that's it then. Well, it's good to finally have a diagnosis.
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No replies? I'm surprised. Maybe there's no answer and both are acceptable? But if so it seems to me that would cause even more confusion since so much confusion already exists about the difference between intolerance, allergy, sensitivity. Can anyone offer any feedback? Thanks.
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Hi, I don't know if it matters but is it Non-Celiac Gluten Intolerance (NGCI) or Non-Celiac Gluten Sensitivity (NGCS). Are they the same thing or 2 different conditions? Thanks.
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ARCHIVED Just Diagnosed 'probably Non-Celiac Gluten Sensitivity'
DogWalkerNYC replied to DogWalkerNYC's topic in Related Issues & Disorders
Thank you! Actually I'm happy to be in the club because it will force me to take better care of myself. I just called my younger brother and told him what's going on so he can keep an eye out for symptoms. One question though, is it NCGI (non-Celiac gluten intolerance) or NCGS (non-Celiac gluten sensitivity)? I've seen both online. Since I'm in the club I... -
ARCHIVED Just Diagnosed 'probably Non-Celiac Gluten Sensitivity'
DogWalkerNYC replied to DogWalkerNYC's topic in Related Issues & Disorders
OMG!! Thank you so much. Those articles are scary. By the way, is it NCGI (Non-Celiac Gluten Intolerance) or NCGS (Non-Celiac Gluten Sensitivity)? I didn't realize how serious this sensitivity can be. That's it!! Every crumb is the ENEMY!! -
ARCHIVED Just Diagnosed 'probably Non-Celiac Gluten Sensitivity'
DogWalkerNYC replied to DogWalkerNYC's topic in Related Issues & Disorders
Thank you! I just read that PPI's like Prilosec cause malabsorption issues and I've been on 2 Prilosec a day for 2 years! Some of the people mentioned deficiencies in Vitamin D and iron. Yikes!! I was able to stop the Prilosec in January due to the gluten-free diet, and a supplement I bought called Heartburn Stop by Renew Life. It's gluten free herbs and... -
ARCHIVED Just Diagnosed 'probably Non-Celiac Gluten Sensitivity'
DogWalkerNYC replied to DogWalkerNYC's topic in Related Issues & Disorders
Wow, you are so knowledgeable. This whole thing is new to me. It started with GERD 2 years ago and I just learned about gluten less than a year ago. According to the regular endoscopy and colonoscopy I had in August 2012, and the capsule endoscopy I had last week, there's no damage to my large or small intestines. The fact that I've been inconsistent has... -
ARCHIVED Just Diagnosed 'probably Non-Celiac Gluten Sensitivity'
DogWalkerNYC replied to DogWalkerNYC's topic in Related Issues & Disorders
Hi, thanks very much for responding. I am so glad there's a name for us! My concern is whether a sensitivity or intolerance can morph into celiac because I read that it can if you have the gene for it. I just read that online the other day and I don't know what's involved in getting tested. I guess if I found out I had the gene I would be militant about staying... -
ARCHIVED Just Diagnosed 'probably Non-Celiac Gluten Sensitivity'
DogWalkerNYC replied to DogWalkerNYC's topic in Related Issues & Disorders
Hi GFinDC, thank you so much!! Actually you got it wrong. I never had diverticulitis, I have diverticulosis which, I'm told, does not go away on a gluten-free diet. Once the diverticulosis pockets are formed they're there for life. That's what my gastroenterologist told me. What did go away on a gluten-free diet is the GERD, the bloating, the stomach pain... -
ARCHIVED Just Diagnosed 'probably Non-Celiac Gluten Sensitivity'
DogWalkerNYC replied to DogWalkerNYC's topic in Related Issues & Disorders
Hi Mushroom, you're right, I've been very inconsistent. I can't change the past but now that I have been through all this testing which, by the way, thankfully showed no damage to my small intestines, I'm ready to get serious. And yes, the reason does make that much difference because I read that gluten sensitivity (or intolerance) can morph into celiac disease... -
ARCHIVED Just Diagnosed 'probably Non-Celiac Gluten Sensitivity'
DogWalkerNYC posted a topic in Related Issues & Disorders
Hi, several months ago I joined this forum thinking I had dermatis herpetiformis. I was absolutely miserable. I had many of the gastro symptoms and an incredibly itchy, horrible rash on my arms. It turned out not to be DH but my gastro problems persisted. But when I ate gluten free, the gastro issues were virtually non-existent. I was not going back to... -
ARCHIVED Some gluten-free Bread May Not Be Gluten Free!
DogWalkerNYC replied to DogWalkerNYC's topic in Gluten-Free Foods, Products, Shopping & Medications
I agree. I have been trying to be helpful since I first posted this morning, and all I'm getting is sass and aggravation. I don't see anyone thanking me for spending this entire day on this sad topic. -
ARCHIVED Some gluten-free Bread May Not Be Gluten Free!
DogWalkerNYC replied to DogWalkerNYC's topic in Gluten-Free Foods, Products, Shopping & Medications
The ingredients do not tell you the product was manufactured in a facility that also manufactures non gluten free products. Read my last post. -
ARCHIVED Some gluten-free Bread May Not Be Gluten Free!
DogWalkerNYC replied to DogWalkerNYC's topic in Gluten-Free Foods, Products, Shopping & Medications
I bought a vitamin supplement last week that contained only gluten free ingredients but when I called the manufacturer to double check they told me it was manufactured in a facility that also manufactures non gluten free products. You cannot always tell from the ingredients. If I was running this forum I would add a note to the corn listing on the celiac... -
ARCHIVED Some gluten-free Bread May Not Be Gluten Free!
DogWalkerNYC replied to DogWalkerNYC's topic in Gluten-Free Foods, Products, Shopping & Medications
The ingredients do not tell you that the product was manufactured in a facility that also manufactures wheat products. -
ARCHIVED Some gluten-free Bread May Not Be Gluten Free!
DogWalkerNYC replied to DogWalkerNYC's topic in Gluten-Free Foods, Products, Shopping & Medications
Kareng, if a corn product may have gluten grain added to make a finished product that is a bad situation, don't you agree? If I am buying a product online, like from the mall I would appreciate a warning about the possibility of cross contamination, since it seems to be a common occurrence with corn products. If I am reading the acceptable list on the... -
ARCHIVED Some gluten-free Bread May Not Be Gluten Free!
DogWalkerNYC replied to DogWalkerNYC's topic in Gluten-Free Foods, Products, Shopping & Medications
Hi Janet, close but not exactly. I am saying that 'the product guy's' research says something different. If his research is garbage, that still leaves the fact that corn is easily contaminated in facilities that manufacturer wheat products. There should be a warning on the celiac site and the mall site about the possibility of cross contamination. Several... -
ARCHIVED Some gluten-free Bread May Not Be Gluten Free!
DogWalkerNYC replied to DogWalkerNYC's topic in Gluten-Free Foods, Products, Shopping & Medications
I completely understand what you're saying. First of all you're blowing off 'the product guy's' research, which may or may not be accurate. Assuming it is not accurate, you're saying corn by itself is gluten free but can easily be contaminated because it is often manufactured in facilities that also manufacturer wheat products. Great! I want to know that... -
ARCHIVED Some gluten-free Bread May Not Be Gluten Free!
DogWalkerNYC replied to DogWalkerNYC's topic in Gluten-Free Foods, Products, Shopping & Medications
We discussed that already, several pages back. There were 5 or 6 on the list that were the most obvious. If it is common knowledge (and it seems to be) that corn can easily be contaminated by wheat because they are often manufactured at the same plant, I want to know that..not by poisoning myself to find out. I want the celiac organization I trust with my... -
ARCHIVED Some gluten-free Bread May Not Be Gluten Free!
DogWalkerNYC replied to DogWalkerNYC's topic in Gluten-Free Foods, Products, Shopping & Medications
I'm not sure what your definition of controversial is, but I posted several articles from different authors who all used the word 'controversial' in regard to corn and celiac. In addition, the fact that the celiac.com website lists corn as acceptable, and the the authors I posted, as well as some of the people who posted on this forum, have problems with... -
ARCHIVED Some gluten-free Bread May Not Be Gluten Free!
DogWalkerNYC replied to DogWalkerNYC's topic in Gluten-Free Foods, Products, Shopping & Medications
I can't open the document, it's restricted. And I'm not going to buy the book for $34. Why don't you post what it says, as I posted the info I wanted you to see. -
ARCHIVED Some gluten-free Bread May Not Be Gluten Free!
DogWalkerNYC replied to DogWalkerNYC's topic in Gluten-Free Foods, Products, Shopping & Medications
True, but there's only a handful of known controversial products and that handful should be shoved in our face every chance they get by those calling themselves experts.