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DogWalkerNYC

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by DogWalkerNYC

  1. DogWalkerNYC
    How do you know corn alone does not cause a celiac reaction? If you know that for a fact please publish your research. Until then I prefer to avoid corn until I can check the research of 'the product guy".
  2. DogWalkerNYC
    As you probably know I am new to this whole thing. I'm coming to you as the newbie I described earlier. I am told to maintain a gluten-free diet and that it's OK to include corn in my diet. All this I understand. No problem. So I eat corn and do my best to only eat acceptable foods. Why am I not told, either on the celiac.com site or the mall site that...
  3. DogWalkerNYC
    This is from National Digestive Diseases Information Clearinghouse, updated January 27, 2012. Is this recent enough for you? "Some people with celiac disease show no improvement on the gluten-free diet. The most common reason for poor response to the diet is that small amounts of gluten are still being consumed. Hidden sources of gluten include additives...
  4. DogWalkerNYC
    If that's all you understand from my posts I'm very sorry for you. This is not a game.
  5. DogWalkerNYC
    I don't even understand what you just said. I'm just sitting here scratching my DH arms bloody. But the fact that I don't understand what you said solidifies my point. That when I come to a website called celiac.com, or glutenfreemall.com I expect all the noise in my head to somehow become quieter. I am coming to you for your expertise and experience. I want...
  6. DogWalkerNYC
    Especially since corn is such an iffy food with so much controversy surrounding it's safety for celiacs. How could a website, called celiac.com not mention that? I expected the celiac.com website to be the gold standard of current, up-to-date info and resources. I expected to find lists of safe foods, unsafe foods, controversial foods. Do you not believe...
  7. DogWalkerNYC
    Unfortunately, either you guys are just not understanding me, or choosing to ignore my point. When a newbie comes to the celiac website or The Gluten-Free Mall, before that newbie knows what works and what doesn't, it would be nice if the website or the store selling the food products had a disclaimer, or a welcome page, advising newbies about some of this...
  8. DogWalkerNYC
    Below is a blurb from an article by Dr. Manik G. Hiranandani about corn gluten. Dr. H. graduated in medicine from the Armed Forces in Pune India in 1980. He then trained in cardiology and internal medicine at Bombay University. To read the entire article go to: Open Original Shared Link For those of you still saying 'we are responsible, etc.' please...
  9. DogWalkerNYC
    I don't know if the GFS guy is the one who wants you to buy his products. All I did was sign up for a free newsletter. I don't know the organization or the guy. But if this info is correct, I don't care if this guy stands in the middle of Broadway spitting nickles to make a living. I am grateful to him for information that may finally help my hives resolve...
  10. DogWalkerNYC
    For those of you who are eating corn and feeling great, I read on this, and other forums, that if you are a true celiac even the smallest amount of gluten can cause damage to your intestines, whether or not you feel the damage. If corn contains gluten aren't you concerned about that? If not, why? To Jestgar, of course we are all responsible for our own...
  11. DogWalkerNYC
    I am discussing corn at this moment because I was in the supermarket several hours ago buying Schar bread when I received the email saying that some gluten free breads are damaging to celiacs. That is the reason I'm discussing corn at this very moment. When I arrived home I went online to the Gluten-Free Mall to see if they carry the same product, and if...
  12. DogWalkerNYC
    Exactly. This forum, and other similar forums and resources, are here to help people navigate through this situation. As a fellow sufferer wouldn't it have been helpful when you first started out if you were made aware of some of the innuendos of dealing with celiac? Do you really think the better way is to learn by (painful, damaging) trial and error...
  13. DogWalkerNYC
    I will try and find out.It did not say "ALL" research. You must admit, there are many (many) celiacs following all the rules and still suffering. You bother, as I do, to understand what affects us negatively and positively. You are correct, medical research recommends the gluten free diet. The question is, is corn gluten free?
  14. DogWalkerNYC
    In my opinion, the point is if corn affects even one celiac it may affect many. How many posts have I read from people saying they are sticking to the gluten free diet and still having symptoms? How many of those may be eating corn thinking it's a safe food, but for them it's not. Isn't it worth it for even one of those sufferers to be told that corn may...
  15. DogWalkerNYC
    Hi Pete, I was just about to answer that question. I was actually in the supermarket when I read the email from Gluten Free Society. Guess what I was buying? Dag has an entire gluten free section and I was stocking up on some items, including bread. Schar is the only manufacturer of gluten free bread and rolls sold in Dag. When I read the email I grabbed...
  16. DogWalkerNYC
    Here is the article. I don't know if this info is new or old, but I just received it by email at 8:30am this morning: Gluten Free Bread Damages Celiacs
  17. DogWalkerNYC
    I just called Gluten Free Society and left a voice message. I will follow up on Monday and track down the research on corn and celiac damage. If I track the research to reliable sources I will share that info here and I sure hope members on this forum will take note. The alternative, which is to ignore the info because it's from Gluten Free Society, and to...
  18. DogWalkerNYC
    Apparently I'm not able to link their name because the note says they spammed your forum and are banned. If their information is accurate why would you ignore it? I will do further research about the effects of corn on celiac disease. Isn't the idea here to share information so that we can all heal and feel better?
  19. DogWalkerNYC
    It may not bother you but it may bother others who are continuing to have symptoms despite strictly adhering to what they think is a gluten free diet. Are you saying The Gluten Free Society is not a reputable resource or do you not believe the study? Here's a link to their website: www.glutenfreesociety.oMy linkrg The issue is not that corn doesn't...
  20. DogWalkerNYC
    I received an email from Gluten Free Society at 8:30am this morning. The subject of the email is: Gluten Free Bread Causes Celiac Damage. Here is a blurb from the article: "A recent study found that patients with celiac disease can react to "gluten free" bread made with maize (corn) protein. Serum IgA was measured against the prolamine in corn. Previous...
  21. DogWalkerNYC
    P.S. Isn't the idea here to reduce the damage to the intestines? Does it make sense to start the healing process and then re-damage my intestines just to be tested, especially since the results are iffy at best? If eating gluten free is healing my intestines and making me feel good that's good enough for me, regardless of whether the initial damage was caused...
  22. DogWalkerNYC
    Hi Kareng, I'm not having the colonoscopy and endoscopy to test for gluten intolerance. I'm having those tests as a normal part of health care for a woman my age. I don't plan to get pregnant at 65 () and have no kids to test. I don't need a formal diagnosis and truthfully self-diagnosing based on symptom reduction seems to be the most reliable test out there...
  23. DogWalkerNYC
    I think the symptoms started before I increased the dose. Then I went off for a few months and went back on b/c of the migraines. I increased the dose myself as 2 did the job better than one and I did let my PCP know. I used to take Caffergot suppositories and they did a great job but Novartis took it off the market years ago. When I realized Ziac prevented...
  24. DogWalkerNYC
    It's me again, the woman who's glutened by cat litter and dog food. But maybe not? I take a beta blocker called Bisoprolol (Ziac) to prevent migraines. Been taking it for about 4 years. Developed some mild reactions (blurry vision, loose stool) after about a year and stopped it, but the migraines won out and I started taking it again about 3 years ago, as...
  25. DogWalkerNYC
    the 3rd photo is pretty much what mine look like. I was calling them hives but I guess not. To me this is as good as a blood test.
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