jlaw

And also, since I am a new expert on lichen planus, I would suggest you do some image searching of that as well, because it is often associated with changes of the mucosa of the mouth as well.

Thankks Bartfull, but I guess I'm looking at it from the other side. What if it's a chance I don't have DH? I think it's worth it, given that it's such a huge, life long change. Lichen Planus clears up by itself after running its course, so it was not necessarily eating gluten-free that cleared my rash. I will always be eating low gluten regardless because...

Lyn is it possible that you could have lichens planus?? Adalaide I've not heard of gene tests being inaccurate. Have you heard of cases like this? I'm into day 3 now and still doing ok...

Hi friends, I have been in and out of this forum for a bit and now wanted to update you on the latest twist. After my skin biopsy, i have been gluten-free for nearly a year. After extremely extensive rash (scalp to soles) my skin is now nearly free of active lesions. Lots of the post-lesion marks though! We live in India but currently back home in Aus for...

Hi Krystal, just the description of what happens sounded exactly like how my DH started and felt. And I'm not sure about the combination of gluten+msg etc, but it is worth remembering that those of us with DH don't often get the severity of illness from the gut suddenly after ingesting gluten. Mine is definitely a gradual build up. Some people can tell straight...

heat, humidity and sweat...absolutely make the itch worse. I mean if you're sweating, the salt goes into any open lesions, you're automatically itching and stinging! Here in India, the heat and humidity are huge factors, over 100 for most of the year, and not much less than that at night. In fact, we're planning on going back home to Aus for the hot season...

lol!! You sound like my mum, and of course you are right. Hubby and I have decided to slowly start transitioning out, but it is not easy. We run a business here so need to sort that out. We're home in June(to be able to skip the hot season here) and already have the specialist appointments lined up, then back after that for another 18 months

Squirming did you look this up for me? Or are you just a dermatology whizz?? Either way you are so lovely. Thank you. Hmmm, I never thought about the face not being mentioned. I did think that it's often said DH is not on the face (although I know that to be untrue.) I just thought it was later in the DH lifespan that it appears on the face. Which now that...

although if you had a sympathetic doctor, the genetics test and your own observations may be enough for a diagnosis?? Ahh, I don't know. It really is a dilemma. But if it was me, I probably would continue the gluten. It's such a lifestyle change and particularly hard with children. I personally would need the formal diagnosis behind me. BUT that is only me...

*sigh*. Thanks. Hate the whole guessing game. Dr's visits not so straight forward here. Feel so often I'm on my own.

Grrrr. After having to figure out my son's skin and all that mental stress, my dear daughter (nearly 6) has popped up with her own variety of skin blisters. A few on her fingers, two on her face. One on the back of her leg near her foot, all within the last 3 days or so. I'm thinking maybe dyshidrosis (relying on google here...) Does anybody have any experience...

Mine only itched to the point of insanity while I was still consuming gluten. Once I stopped, it's like an itch that's constantly there in the background but not an acute, insatiable itch.

Hi friends, I have been sent an article on DH, written by a dermatologist who has coeliac disease himself and specialises in DH. Only problem is it is electronic (PDF) and I'm not sure how to make it available. If anyone wants it, perhaps email? Or can I attach things in private messages here? Anyway, let me know if you're interested in figuring it out....

Oh I have just started to notice this too...never occurred to me they were connected. Everytime I brush my hair, more and more is coming out. I thought maybe i'm just getting older...

Hi Jenn, my DH comes in many different forms all at once. Some of them are not blisters at all but still definitely DH, so I would say the answer is no.