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Keshavdas

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Keshavdas

  1. Keshavdas
    I've been gluten free products for a few years, but symptoms of fatigue, constipation etc are returning after discontinuing consumption of special gluten free foods. I experimentally, stopped eating all the expensive, highly processed gluten free foods that I've been buying from the health food store. Low and behold, I'm experiencing pretty much the symptoms...
  2. Keshavdas
    I had the marker for possible celiac and three years ago - quit all gluten. I had such bad leaky gut that I'd been losing about a pound and a half a year over the last 27 years which nobody could explain. Since being gluten free I've regained some of my normal weight. But also in that time I've become really dairy intolerant; especially to any boiled dairy...
  3. Keshavdas
    Thanks.... having had chronic fatigue for years - I've had the thyroid checked - including the really extra sensitive fancy test.
  4. Keshavdas
    Thought I was done with this nonsense. I don't eat much dairy and try to limit my use of stuff like Rudi's gluten free products. I eat brown rice pasta once a week. So... I know others must have experienced this. Any and all suggestions are much appreciated. Thanks, Keshav
  5. Keshavdas
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  6. Keshavdas
    Having lived in India I'm always jonesing for Indian food but too lazy to cook it. But uttapam are really easy to make and very satisfying. You can experiment with adding all kinds of different vegetables. I like the tradtional ones. Once you make a quart of batter it keeps for a long time in the fridge. Great with a strong cup of coffee (if you go for...
  7. Keshavdas
    Haven't had them for a while - but recently got glutened while traveling. Someone turned me onto peppermint oil in enteric coated capsules. People were always suggesting pepermint tea - but it never really helped at all. But the oil in enteric-coated capsules really helps a lot.
  8. Keshavdas
    I wrote to Lawrence J. Brandt, MD, Professor of Medicine and Surgery at Albert Einstein College of Medicine and asked if anyone was doing trials for FMT as a treatment for Celiac and he said: At present, this is an area of interest but no one has submitted an IND to the FDA to get permission to do it. I know of no one doing this at present, but the...
  9. Keshavdas
    I went to see Eng yesterday and while he seems knowledgable - I felt rushed and if I wanted any info about treating my condition, I had to drag it out of him. He wasn't exactly volunteering to offer ways to cope with Celliac. I had the sense of being in a "mill" - get 'em in and get 'em out. He's no longer on 5th Ave. He's at 115 E. 23rd Street. But you can...
  10. Keshavdas
    One of my doctors confirmed that I have iron deficiency but gave very little in the way of constructive advice. Instinct tells me with a damaged gut - diet alone won't be sufficient to fix the problem. There are iron supplements around that are gentle and don't constipate but I keep hearing warnings about iron supplements being a big no no for males. I am...
  11. Keshavdas
    Months ago I did a blood panel because of fatigue. Tests came back with high numbers for gliaden. My idiot family doctor just said, "You've got celiac". Naturally I stopped eating gluten and got really sick. Meantime - was also seeing a chronic fatigue Dr. who pointed out my iron deficency. This guy is supposed to be one of the world's foremost authorities...
  12. Keshavdas
    When I went gluten free I experienced nausea, panic attacks and suicidal depression. I lost track of how long this went on. Eventually - I went to a psychopharmacologist and got on Zoloft and Valium. The Zoloft really got rid of the depression but had some side-effects including constipation and daily headaches. The doctor decided I should get off the Zoloft...
  13. Keshavdas
    I started getting floaters maybe 9 months ago. I've been glutin free for about 3 months now and they are pretty much non-existent. Cannot say for sure the two are connected. Often the brain compensates and learns to ignore them and they seem to go away on their own. Also since being gluten-free - I don't have the constant scaley dry skin all the time in...
  14. Keshavdas
    I experienced this a lot when I first went gluten free. I've seen some scholarly articles about how in essence gluten molecules attach themselves to endorphins and lessen their effect on mood. It's kind of like kicking dope for a while. I had terrible depression as well. It takes time but it does get better the longer you stay off gluten. I'm not completely...
  15. Keshavdas
    Yes... in the beginning it made "movements" more free. But then it did exactly the opposite. I suppose it's like the way that different foods are okay for different folks dealing with Celiac. I believe it has to do with the fact that anything that artificially takes water from your digestive system to move undigested food also tends to create a lot of gas...
  16. Keshavdas
    Don't be so sure about that. Remember - one of the number one issues with celiac disease is malabsorbtion. So not everything you eat will benefit you the way it does with folks with normal digestion. That is why so many folks here take B12 under the tongue rather than swallowing it. B12 pills never helped me. I went my doctor and had him teach me to do...
  17. Keshavdas
    Thanks - it was in fact my doctor who pointed out my iron deficiency. I've only been to see him twice and I haven't I think - fully conveyed to him the celiac aspect of my illness because we were mostly concentrating on viral levels of Epstein Barr and HHV 6. He's one of the most respected Chronic Fatigue doctors in the country and rather focused...
  18. Keshavdas
    From what I understand regular Iron supplements are not safe for men. If there are men on this forum who have safely used iron supplements for celiac caused anemia I would like to hear from you. I don't doubt the iron deficiency is largely responsible for my mood and fatigue. Thanks, K
  19. Keshavdas
    It's going on around 6 - 7 weeks now that I've been gluten free and my anxiety and depression have gotten much worse - to the point that I'm looking to make an appointment with a psychopharmacologist to inquire about anti-depressants. I have scanned a few early threads on this topic and will try Pepto at night and more fish oil - but I'm already taking ....
  20. Keshavdas
    Constipation and gas were my big indicators of Celiac disease. Haven't had it since going gluten free. Before going gluten-free - little things would set me off and couldn't move anything without stool softners for a month at a time. Stool softeners don't work overnight like Dulcolax etc but they are gentler and the GI system doesn't seem to become as...
  21. Keshavdas
    This is really helpful for me. Before getting the celiac diagnosis - my doctor was always saying I was dehydrated. I never knew whether he was right or not. I've be gluten free for about 4 or 5 weeks now and feeling terribly exhausted and my heart palpitations (which were gone) have come back and they leave me feeling weak, spaced out and anxious as hell...
  22. Keshavdas
    Yup! Started getting them once in a rare while in my 20s and they became progressively worse in my 40's and 50s till I finally got a celiac diagnosis. Used to go to India where all my friends had the runs and I'd be there for months at time unable to have a BM - having to take laxatives constantly. My doctor always told me I didn't drink enough water; nonsense...
  23. Keshavdas
    Actually - I like hearing this. It's not like I look sickly (I'm 5'10" + 150 lbs) - but the constant unexplained weight-loss over the last 23 years has always been a source of worry. I got tested for AIDS 5 times just to be sure - and of course they were negative, but no explanation ever was offered by any of my doctors.
  24. Keshavdas
    Only been about three weeks since going gluten free. I would kill be able to drink regular coffee again. I've been limiting myself to one cup decaf on Sundays for some time now. Like most folks whose posts I've read - I ain't cured. But have noted dramatic changes in digestion. No more bloating or constant gas. And no horrendous constipation. I lived in India...
  25. Keshavdas
    Another mystery solved. I started getting palpitations some years ago and my family doctor told me I was dehydrated and I thought he was crazy. The thing is - I am rarely thirsty. At a certain point I had to take it seriously and force myself to drink fluids. I HATE drinking water in any large amount. What helps is coconut water. I buy Vitacoco which I get...
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