tommysmommy

Yes, your symptoms give you every reason to consider celiac or even NCGS. And forget what others say, IMO gluten related disorders are the most misunderstood of all health issues and YES IT IS THAT BAD, for some it is way worse. Don't fear a diagnosis, it's good to have answers and even better to have an issue that doesn't require meds or treatments - it...

Wow, gluten and dairy together - you are a brave one! Ledge talk down time. It sounds to me like you are experiencing something that not everyone goes thru but plenty do - it's called gluten withdrawal. Google it (you may also find it under wheat withdrawal). Wheat/gluten can act like an opiate and when you eliminate it, some people go thru a rough time ...

Testing is not perfect, particularly with a young child. While a medical diagnosis is preferred, if your baby is obviously healthier on a gluten free diet.. make her gluten free (dairy and gluten problems often go hand in hand), it's only food. I suggest keeping a journal and note her reaction to foods, stool appearance & weight gain... I more than suspect...

Well done being your own advocate, it sounds like you found your answer (or at least part of it). You are not alone in your frustration with the medical community (I suggest you check out gluten dude's blog online for others doctor horror stories - so that you know you are not facing this frustration alone). The good news is, gluten free is working! Given...

Hey, this is a good thing! Yes, it is a hassle (especially at first when you are learning) but once you start feeling well again, it will all be worth it! There is a ton of great info on this site & on Facebook & twitter - those of us living the life tend to know better than our doctors! I would suggest new posts & pans (particularly the porous...

Good for you, it sounds like you have your answer! Sadly, it is all too common for real problems to be overlooked by doctors (it's all in your head) & anxiety/depression to be "treated" instead of finding the root cause. If all of your health problems vanished with a gluten free diet, it is probable that celiac or gluten intolerance is the problem. Its...

Another smart momma, sounds like you found your answer. Talk to your doctor - maybe they can try blood test before it's totally out of his system. You are not the first mom to try gluten free & see it work, then have to face the doctor (who missed the signs all along) telling you six more weeks on gluten! Follow your instincts, they are good ones.

Amazing. Glad you figured it out. Some days I feel like life is a jigsaw puzzle, if you keep looking - eventually the pieces will fit.

Sure sounds like you have reason to suspect gluten intolerance. Note in your daughter, there is evidence that celiac blood tests can produce false negatives in young children - and well, even if it's not celiac, gluten intolerance can show the same symptoms. Mucousy floating stools are a sign of a potential gluten problem (and definitely a malabsorbtion issue...

I meant Chrohns not Crowns...autospell drives me nuts! PS, you may want to call the GI who will see you in Jan, tell them you have celiac in the family & just went GO - ask them to order the blood work in advance of your appointment - they may not make you wait.

Wow, yet another doctor giving bad advice, it seems to be an epidemic! If celiac runs in your family & you are having so many possible symptoms - there is every reason to do the test (it's like a $300 blood test for godsake, not a big deal). Telling you to try eating gluten free first is wrong. If you so have celiac, it can easily take a year to start...

Add... Ice Pops (most) Goldfish Puffs Cheetos Fritos most potato chips (not pringles) Tostitos (not all tortilla chips are ok) Hershey Bars M&ms Reeses (except seasonal shapes)

Sure sounds like you are going through gluten withdrawl, which is a pretty good sign gluten is a problem for you. Google gluten withdrawl & you'll see it is not uncommon - for some of us gluten/wheat has an opiate like affect on the brain and detoxing can cause your body to freak out - the good news is it should only last a few days, week tops. It sounds...

It does such at first but I promise it will get easier. Eating out and convenience are a problem, but you'll figure it out and there is an active celiac community (here, fb, twitter) willing to help. We all get it. It's almost frightening to realize everything you always ate is now bad for you. Guess what, eating so much of that stuff is bad for everyone...

My 7yr son was the same - got much better on gluten-free diet but 6 months later was back to stomach pain, we eliminated most dairy & the pain & other issues (he was also having constipation & often had burning red ears) went away. We arent crazy strict as we are with gluten- he can tolerate a little now (8 months later) such as an occassional...