spirit-walk
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by spirit-walk
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Thanks. He did biopsies, but I'm not sure what all he is checking for. I'm pretty sure he was checking for Celiac's Disease even though I have been off gluten for 9 months. I know he really wanted to the procedures to see what he'd find. I have several of the symptoms listed for gastritis. -
I had an upper endoscopy and colonoscopy done Monday. They said it would be about a week before I received results. I've been to so many doctors over the last 2 years and been told that everything looks good, so I'm no longer optimistic that I'm going to get answers. But, since this is my first run-through with the gastroenterologist and biopsies, what should...
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ARCHIVED So Frustrated - Biopsy Report Hardly Says Anything
spirit-walk replied to greenbeanie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am currently feeling a lot like you. I haven't been suffering for 30 years, but the last two have been the worst of my life. I've gone through numerous doctors and put the family in a lot of debt to find answers only to be told every test is negative. I can't imagine feeling this way for the rest of my life, or worse, the symptoms progressing to more issues... -
Yes, big help Lisa! One of my fears is that I'm going to become intolerant to the little foods I have left. I'm already so restricted that it's difficult to eat a healthy amount. I was told to do the rotation diet and not eat foods more than once over a four day period. That's impossible for me. I try to eat them once or twice and then not eat them again...
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Thanks for the advice Karen. I haven't had a burger in almost a year, b/c I tried to cut out red meat. Same with white potatoes (nightshades). I have done sweet potatoes and chicken breasts in the oven with olive oil though. I love avocado. Haven't had bacon in quite a while either, but I miss it. I just bought my wife and I New York Strips. We'll see how...
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I'll also add that these food sensitivities came on rapidly. One day I was eating any and everything in front of me. Within a few weeks the joint pain started and became almost unbearable. I saw the nutritionists about 3-4 months later and she did the bloodwork. Whatever happened in the gut, it came on like wildfire and I suddenly couldn't eat so many foods...
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Yes, I have had many inflammation blood tests done through rheumatologists. All have come back negative. Couldn't understand how it never showed up in my blood when I was feeling it all the time. So, if you're correct about it not ruling out inflammation caused by food, that would make a lot of sense for me. I saw a nutritionist that did a food sensitivities...
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Thanks Lisa, I have been gluten free for the last 9 months. There may have been a handful of times that I accidentally ate something with gluten in it, and I have eaten stuff like Nut-Thins that say they are wheat and gluten free but have a disclaimer (produced in a facility that also makes products containing wheat). I've had many blood tests done including...
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My wife said the doctor told her my stomach was more red that usual and said it could be gastritis. Also said I had a polyp in my esophagus that he removed. He took biopsies of the polyp and stomach and I believe they are testing for celiac and not sure what else. My symptoms are just like what I would read for celiac, except instead of major stomach...
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I look forward to your post and any others who could shed some light. I am highly concerned about the persistent popping in the shoulders and wrists. Also if anyone has any ideas on how to add calories for someone who can't have gluten, dairy or eggs, that would be helpful. Had an upper endoscopy and colonoscopy today. I'll get results within the next...
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Thanks. I think I actually looked that site up and read it a couple of weeks ago. Dr. Alessio Fasano, one of the leading Celiac Doctor's speaks about Leaky Gut here: http://www.(Company Name Removed - They Spammed This Forum and are Banned)/gluten-free-society-blog/dr-fasano-on-leaky-gut-syndrome-and-gluten-sensitivity/ This is part of the frustration...
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Thanks for all the advice and information nvsmom. I've had my thyroid and hormones checked, but I still wonder about my thyroid. My hands get very cold when they aren't feeling feverish and hurting. I'll ask my gastro doctor about my genetic testing for Celiac. Do you have any thoughts on "leaky gut?" I've read about it on the web and was told I likely...
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nvs, It's too late for me to cancel my appointment (scheduled for Monday morning). I'm not sure what the genetic test was called. It was a blood test. It's labeled Gluten Sensitivity AG, then says "permissive genes absent. Celiac Disease extremely unlikely." Another page reads, "Celiac gene pairs present --- No (method: Low to Medium or High Resolution...
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Yeah, I guess I should add that I'm back home in Texas now. Couldn't afford to stay at Mayo for weeks, so I'm back home and going to get the endoscopy and colonoscopy here in Austin. It also might help to add that I am a 39 year-old male. I didn't mention that in the original post.
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Hello, I finally made the trip I've been looking forward to for quite some time. I'd been to 7 different doctors, and none could tell me what is wrong with me or what is causing my symptoms. I thought the Mayo Clinic might finally provide the answer, but once again, no answers. A brief history: Two years ago, I ate whatever I wanted (very poor...
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Thank you for the response nvsmom. I have had my thyroid checked, and again results came back negative. I had my thyroid checked because my hands began to get very cold at work, and I've never experienced this before. My rheumatoid doctor originally told me that my testosterone was low but my thyroid came back okay. I then saw an endocrinologist, and all...
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Hello board, I am looking for a GI doctor that specializes in Celiac's Disease. I'm not sure if this is the best place to ask or if anyone would have knowledge, but I thought I would try. I live in the South Austin area in Texas. I found a doctor named Dr. Luban in Austin, but he does not take my insurance (BCBS). Does anyone have any recommendations on...
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ARCHIVED Joint Pain Caused By Gluten Intolerance?
spirit-walk replied to spirit-walk's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The last two days my wrists and hands have been hurting pretty badly. My wrists pop constantly. I didn't realize that the cashews I've been eating from the self bins, the organic oatmeal, and the granola bars could have gluten in them. Again, I don't have stomach pain other than gas and bloating sometimes. But, I eat a lot of beans and rice. Anyway, I'm going... -
ARCHIVED Joint Pain Caused By Gluten Intolerance?
spirit-walk replied to spirit-walk's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Same question for these supplements as above? Can I buy these supplements at any grocery store with a pharmacy, or should I look elsewhere? -
ARCHIVED Joint Pain Caused By Gluten Intolerance?
spirit-walk replied to spirit-walk's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for the advice. Where is a good place to find the chelated manganese and zinc, and how many mgs of each? -
ARCHIVED Joint Pain Caused By Gluten Intolerance?
spirit-walk replied to spirit-walk's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
First, let me say thanks to all the replies. This is interesting b/c I've always been very thin as well. I guess it might help to tell a little more about myself. I'm 38, male, and have been experiencing joint pain for the last 4-5 years. After seeing doctors this year, I'm thinking that the aches and pains I've had in my hips and shoulders (popping) over... -
ARCHIVED Joint Pain Caused By Gluten Intolerance?
spirit-walk posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Howdy, I'm new to the forum, and I'm hoping to get some answers for my symptoms over the past year. I've been having joint pain in my hands, wrist, hips, knees, and most recently in my shoulders. Over the last six months I've been to five different doctors (two rheumatologists). They've checked RA factor, uric acid levels, Vitamin D levels, blood sugar...