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robbiesmom

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    Ice Skating<br />Moms & Tots<br />Walking, Painting<br />Hanging out with my 3 yr old son Robbie

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  1. I was thrilled to turn on this new show and discover they were talking about celiac! I taped the second showing so I could have documentation of this when we have to switch doctors or a second child has atypical symptoms. Anyone know when the House celiac episode is to be aired? I hope I didn't miss it!
  2. Sorry about your teeth! That is worse than giving birth-I hate the dentist but go religously every six months. right now at age 34 I have one root canal with a crown and 4 other teeth with crowns because of cracked fillings that were too large to repair-I also have TMJ from grinding. I have always had very bad teeth no matter how much I brush and floss-something...
  3. Cool! I am so glad they listen and care about us! We love her pizza too! I ate the brown rice & veggies one last night and feel fine-it probably was just that batch-let us know what they find out from the testing. It is nice to know what causes these reactions.
  4. That is so odd! I love her meals-my favorite is the brown rice bowl with veggies-I did fine with it. Do the mac -n- cheese and terriayaki say gluten free in the corner? I don't buy the one's that don't say that. I am going to look again to see if the label mentions a wheat warning-I didn't think I would need to look!
  5. My Son just turned 3 at the end of August. I did not even try to potty train until now when I knew his poop was solid 95% of the time-and it back fired! He did pretty well in the underwesr until the explosion came from nowhere! I found out the next day he had been accidentally glutened at school the day prior to our potty training attempt. He was so scared...
  6. Sorry-I forgot to mention that my Grandmother also died from cancer of the stomach lining! This is why it has been soooo important that I do this thing for me and my Son the right way! Even though my blood work was negative the gluten-free diet is working well for me so I will stick with it!
  7. I had my appendix out at age 13 and my tonsils were just removed in April at age 33. I diagnosed myself 2 months ago with celiac disease and went gluten free-I feel much better! We think my Grandma was celiac-she also had her tonsils and appendix removed. My Brother may have a gluten issue also-he had a ruptured appendix at age 9-still has tonsils...
  8. I would write the companies-the broth used to flavor the meat might have gluten in it.
  9. That sucks! I would just make other people eat what we eat-the pastas we've tried are very good-I have a tendency to lick my figers when cooking also! eyes: I was stupid the other night at a birthday party-It was at my neighbors and my son and husband went back home I stayed and ate a piece of cake thinking it was worth it to deal with being sick for 2 days...
  10. I used pepcid complete the other night & it was okay I think-can anyone else confirm this? Thanks!
  11. He ran the igg and iga again and it was the igg that was positive. I have a 3 year appointment for Robbie on Thursday and I will run this by her again and look at the numbers and what tests were actually done initially. I thought the igg was just for intolerance rather than actual celiac. I will ask about the cheek swab test for the gene.
  12. Thank you all so much! I don't think any of us could get through this without such great support! I am crying right now because I am finally relieved that we have "figured this out". I have been so worried and preoccupied. My marriage has been somewhat strained as I am always researching on the computer and I just haven't cared about me lately-I'm up late...
  13. Thanks for the input. So do you think we need to do the gene testing? He has responded well on the gluten-free diet so I am going to continue with it-I am just trying to see if we can relieve some of the anxiety with cross contamination issues-I would love to be able to just order a hotdog without the bun or fries that are maybe cooked in the same oil as...
  14. We received the results a couple of days ago-the biopsies of the small intestine showed negative! They took four samples none of which had damage. The doctor seems pretty sure this means he doesn't have celiac-he did say that he definitely has a wheat & gluten allergy due to the blood test being positive and to keep him on the diet-at least if we have...
  15. I am so sorry you have so many dietary restricyions-I have enough trouble with just the gluten! I think to gat an accurate blood test you will need to keep him on the wheat until after the test-mine came back negative and I am pretty sure it was because I was wheat/gluten free for 2 weeks before-I am feeling much better so I know I have some sort of issue...
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