Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

Invictus

Advanced Members
  • Posts

    16
  • Joined

  • Last visited

3 Followers

  • RonSchon
  • kaki-clam
  • ianm

Invictus's Achievements

  1. Everyone hates when someone +1 ups your concerns or issues with an: " I completely understand why you feel that way." Most of the time, people have no clue. I think I might be able to relate - in some sense - to the pain you might be going through; aside from your daily symptoms.

    My family refuses to believe that there is anything wrong with me; apparently I am totally making up the fact that I suffer - like all of us do - from a myriad of symptoms. The funny thing is: I don't think they'd care either way and would find any opportunity to downplay my daily pain. In this process I have suffered financially. I lost my job and my condo; I am unemployed and living out of my car. I am going to get back into school somehow - I'd give anything to go right now, if finances weren't as bad as they are.

    The only way to get through the: family NOT caring or showing the least bit of consideration part - is to stop caring what they think; and stop trying to sell them on how horrible this condition is. I had to do this for my own sanity. Either way, they see me as a lazy person. I don't care what anyone thinks anymore. I'm tired of arguing and fighting, when that energy could be focused on recovery. :)

  2. Krystal K. --

    As unsupportive the following statement may seem - It's refreshing to hear of someone battling the same issues; mainly due to the fact that I can relate to you.

    I am 29 years old and have been dealing with hair color change - as one of the myriad of celiac symptoms. I noticed a change in the tint of my facial hair color 5 years ago. I have dark brown hair normally however one day I

  3. Agree with bartfull on this one. I had a doctor literally laugh at me for demanding a celiac blood panel. He said: "You're too fat to have celiacs; do you even know what celiacs is?"

    Had I not been energy deprived - there would have literally been a physical a** whooping served to his pretentious/condescending a**. I wanted him to feel every ounce of pain that I felt over the years of being misdiagnosed.

    If he/she doesn't take you seriously, fire him - no questions asked! Don't be afraid to tell him/her why you're severing them as your health care provider.

  4. First off --

    Let me begin by saying: YOU are an awesome mother! You seem to be going above and beyond to help your son heal from this pestering condition. It is absolutely possible that her is reacting to a diet exempt from gluten. Being the young age he is, he will heal a thousand times quicker than any adult.

    In young children you can literally see the healing process take hold within a matter of days or even weeks. Adults on the other hand, often take 6 months - 2 years or more to heal from the cummulitive damage over a lifetime.

    I'm certain that the rest of this forum can attest: YOU are a GREAT mom. Don't be so hard on yourself. I only wish my parents caught mine at that young of an age.

  5. Did any stressful event seem to trigger the onset of your sensitivity or full-blown celiac?

    Has anyone consequently lost a job, a house, or even a marriage - due to depression or symptoms related to celiac disease?

    My story:

    I married my high school sweetheart at the young age of 23. Little did I know - in retrospect - my full-blown gluten allergy was triggered at the age of 22 - even though it was somewhat dormant in me since I was a baby. Long story short -- I went into a deep clinical depression - that was unresponsive to medications - and subsequently my wife left two years later.

    Fast forward to present day -- I have been let go by various employers because of my lethargy, frequent Doctor visits, and work performance. I had to move out of my condo and and am currently seeking refuge in my car.

    Please share your story :) And remember, have an AWESOME weekend :D

  6. I have been gluten free for about 10 months now. I am still experiencing pain; a deep - hot knife twisting-like pain - in my lower upper left quadrant - a few inches above and to the left of my navel. This is usually subsequent to a primary pain - that comes and goes - in the upper right quadrant localized to where the gallbladder would be. It feels as though it's inflamed and I am sure it's borderline non-functioning - as this has been going on for years...

    This condition has literally cost me everything I own; I have been living out of my car for nearly 3 months. I am educated and strict when it comes to my diet- unless CC sneaks in. Can someone please tell me if this is similar to what they experienced? Any experienced celiacs that can help, I would greatly appreciate it!

×
×
  • Create New...