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CaveMum

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by CaveMum

  1. CaveMum
    Thanks for your reply, soy and corn were the next suspects on my list. It's good to know I am on the right track. During the week that the tummy aches flared up, my husband did the shopping and got soy milk instead of rice milk. He is back on rice milk, but the tummy aches are still present. Cross contamination is not likely at home, but I do wonder...
  2. CaveMum
    My son was diagnosed with Coeliac disease December 2012 (TTG 262 and positive biopsy). He was gluten free immediately after. Big improvement very quickly - bloating, tummy aches cleared up and normal, formed bowel motions. Around April, the bloating started to return occasionally. Saw a dietitian who suggested lactose intolerance (never tested him though...
  3. CaveMum
    According to Open Original Shared Link : ".....look for evidence of gluten harm: this is to make the diagnosis of gluten-sensitivity (reactions to gluten without the gut damage). Anti gliadin antibody IgG (Also called IgG-gliadin antibody) Anti gliadin antibody IgA (Also called IgA-gliadin antibody) A positive test shows that you have an immune reaction...
  4. CaveMum
    I did wonder why the blood tests were delayed, but am glad to hear that you are getting them done sooner. What will your next move be after the blood test results are back? If you need to go for a biopsy, you will need to keep her on gluten until then, unfortunately
  5. CaveMum
    Hi ampmomof3, bear with me, this turned out to be a much longer post than intended! "What made you test for celiac? Did you test after doing the elimination diet? " He was tested for coeliac antibodies as he started the elimination diet. Our dietitian was very clued up, noticed his big bloated tummy (which our GP just the week before said was...
  6. CaveMum
    The blood tests are not nice, but with a younger child, I found them easier to manage. My 9 month old was blood tested recently, by heel prick. He was pretty calm about it. My 3 year old has had two sets of blood tests for celiac antibodies, the first was a finger prick which took longer but was less traumatic, the second time they did venepuncture, and...
  7. CaveMum
    Not sure if this helps, but here goes: tTG antibodies are usually associated with coeliac disease, but can be elevated in other disease processes too. They are a marker of tissue inflammation usually involving the gut. endomysial antibodies (EMA) are highly specific to coeliac disease, and the skin manifestation of gluten intolerance, dermatitis herpetiformis...
  8. CaveMum
    We had to wait 2 months between my 3 year old son's first positive blood test (which was highly elevated) and his first biopsy. The biopsy turned out to be inconclusive, much to the surprise of the gastroenterologists. They fully expected to see damage, but just didn't. Their next step for us was a follow up biopsy, some three months later. All this time...
  9. CaveMum
    Yes, we did an elimination diet in June/July/August and cut out most food additives, as well as salicylates, amines and glutamates. Our diet was supervised by a dietitian and based on the Royal Prince Alfred Elimination diet. Similar to Sue Fengate's FAILSAFE diet. We saw some very striking results with reduced hyperactivity and better compliance also...
  10. CaveMum
    Thanks for your response. When we had our consultation in October with the gastroenterologist to discuss the positive TTG/negative biopsy, she mentioned that he had been tested for EMA as well, which is specific only to coeliac disease. I believe at the very least he has gluten intolerance; whether or not he has "coeliac disease" will depend on the biopsy...
  11. CaveMum
    Thanks for your response. Yes, it was the IgA TTG. Endoscopy/biopsy is on Friday, so I suppose there will be a chance then to talk with the Gastroenterologist about the situation. In the meantime, I will perhaps look into crohn's and other auto immune disorders
  12. CaveMum
    We wondered whether we'd changed his diet without realising, but in fact in the last three months, while waiting for the 2nd biopsy, we've made absolutely no restrictions on gluten (though it makes me feel sick thinking what gluten is doing to him). Is there anything else apart from gluten which influences TTG?
  13. CaveMum
    This is the background: 3 year old son has had symptoms of coeliac disease (bloating, tummy ache, diarrhoea) starting early 2012. *27 June 2012. Blood tests done. TTG was 262, DGP 170. *31 Aug 2012. Upper endoscopy carried out. Biopsy "normal" Marsh stage 1/2 *1 Sept-10 Sept 2012. Gluten free diet. Gastroenterologist contacts us with results...
  14. CaveMum
    Hi all, thanks for your replies. The specialist told us that he was their "one-child-a-year" who has positive blood test, but nothing conclusive on biopsy. I don't think that there were any faults with the technical aspects of the biopsy; there were 10 samples taken altogether and the scope went as far as the 3rd part of the duodenum. "My first thought...
  15. CaveMum
    We live in New Zealand. We have a family history auto-immune disorders, with one diagnosed celiac (my sister). My 3 year old son has had classical symptoms of celiac disease (bloating, diarrhoea, tummy pain, irritable, lethargic) since Feb this year. He was eventually blood tested in June and came back with positive antibodies, which were very high...
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