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mars817

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Everything posted by mars817

  1. mars817
    I went gluten free for 3 weeks, I am pretty sure I didn't get any gluten during that time. My tummy problems never went away, stayed about the same really. I decided to test and had a slice of bread, assuming my stomach would get really upset but it didn't. So does that mean maybe I don't have an issue with gluten? Do I need to go longer than 3 weeks...
  2. mars817
    I was going to post something similar. I was gluten free for 3 weeks then decided to "test" (a piece of bread) and had no reaction. At least no tummy ones. I was really surprised since my tummy has still been really bad even without gluten so maybe I really don't have a gluten issue?
  3. mars817
    I guess I didn't state it right. I have been off gluten for 12 days now. My very bad tummy problem had nothing to do with gluten that day at least. All I had was ice tea before they started. That why I wonder. I'm still staying gluten free I just wonder how long I should expect to notice a difference if it is gluten that is bothering me. Like I said...
  4. mars817
    Ok I guess I had just seen a lot of, I stopped eatiing gluten this morning and I'm so much better. I think my tummy is a bit better but I still am having issues and running for the bathroom and wondering if it is something else or not.
  5. mars817
    I went gluten free 11 days ago. I'm feeling the same/worse possibly. I wonder how long it should take to feel better or at least a difference if gluten was my problem? I have had negative blood tests, inconclusive biopsy and a pill cam study that they said had nothing too concerning (whatever that means-they were looking for the source of my anemia), but...
  6. mars817
    We sound similar. I have horrible blood work(all my numbers pretty much are high or low the opposite of what they should be) plus I'm having horrible problems with my teeth. I've already had 3 fillings from pits in enamel and have 5 or 6 more to have done. No decay just nothing left, even with prescription toothpaste and calcium regeneration paste that...
  7. mars817
    Anybody understand these?
  8. mars817
    I apparently only got page 1 of 2 of my results. I'm not sure anything is on the second page. So this is what I have: tTg ANTIBODY, IgA 2.69 (<20 negative) DGP ANTIBODY IgA 2.28 (<20 negative) IgA 129 (says range 81-463, which I assume is normal?) So is it the IgA that you have to have a certain level of to trust the other results? And...
  9. mars817
    From what I can read though it seems like non celiac gluten sensitivity wouldn't cause anemia. Is that true or could it still cause anemia?
  10. mars817
    Personally I would like to have a diagnosis. I'm stubborn like that I guess but I'm a scientist and to me unless you can say that is what is wrong I'm having a hard time removing gluten.
  11. mars817
    My husband told me last night that he thinks I'm grabbing on this celiacs because I want an answer but he doesn't think I have it and am grasping at straws. No he is not a jerk really (most of the time anyway:). He even was the one who brought up the idea of celiacs again after seeing show about it and thinking I do have all the symptoms. My brother has...
  12. mars817
    Thanks! I am getting b12 shots weekly, they have talked iron infusions but I have not been refered to a hematologist yet, waiting on a pill cam study. My surgeon is convienced I have a bleed or something in part of my intestines they couldn't see, but doesn't think celiacs since my blood test was negative.
  13. mars817
    I'm pretty new to this, I just got my enterolab results yesterday but have been researching a lot of what they meant. Maybe someone else has better answers but it doesn't really look to me like you are showing gluten sensitivity since your test was less than 10. Also the genes you have are not indicitive of celiacs, so you could be gluten sensitive but...
  14. mars817
    What does that mean to be IGA and IGG deficient? How would I know that? I seem to be deficient on everything else!
  15. mars817
    My bloodwork was negative. It was my general surgeon, he did a colonoscopy and endoscopy and he only took one sample, so maybe it was incorrect? I don't know if he really knew what he was doing or just took a random sample because I asked about it. He did say everything looked fine to him. I got copy of the results but I need to find them, my husband...
  16. mars817
    If an endoscopy showed no damage to the villi could there still be deficiency problems? I'm wondering if I have celiacs because I have most of the symptoms and having very bad anemia and other vitamin deficiencies but my tests came back ok. Trying to figure out if the cause could still be celiacs without having the villi show damage?
  17. mars817
    My brother goes to the celiacs center at columbia and he tells me I really need to have an official diagnosis to help with the other stuff going on, but it's doubtful the testing from enterolabs would count for anything and even they won't give you a celiacs diagnosis. I am just confused if that is what it is why was I positve for milk, egg and soy as well...
  18. mars817
    Hello, My brother was diagnosed with Celiacs 3 or 4 years ago. I had similar symptoms (tummy problems, neuromuscular pains etc) so I had a blood test and it was negative, so we figured I was fine. Fast forward I've recently been having major anemia and vitamin deficiency problems that we can't figure out (bad enough that they are concerned I'm going...
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