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KristenS

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by KristenS

  1. KristenS
    Diagnosed Celiac by biopsy 1.5 years ago. After diagnosis & gluten free diet my body started to go haywire. Everyone chalked it up to my gut was healing, and that it was a good sign. Just wait it out they said. It will get better they said... Then things didnt get better. Everything has persisted, and some things have gotten worse. Symptoms: Weight...
  2. KristenS
    Thank you all for your kind words! I couldnt have imagined going through all this alone, and without the community. We are all a shoulder to cry on, and a hand to life eachother up. I dont know how many times I came searching to find out if I was alone in a symptom or problem! Gemini: The options for gluten-free food (especially gluten-free bakerys at...
  3. KristenS
    Its been 5.5 months since diagnosis, and on a gluten-free diet. It has been a rocky journey. Pre-diagnosis my only symptom was iron deficiency. After giving up gluten I developed stiff joints, severe weight gain, red blotchy skin, acne, crazy food cravings, headaches, and very severe reactions to being glutened (projectile vomiting for 6+ hours). All this...
  4. KristenS
    I hate to tell you, but thats exactly the symptoms I get from CC now. The first time I thought it must have been stomach flu, then it happened again. If its a very light amount of cross contamination I get nausia. Moderate cc and I am vomiting. If I have consumed actual wheat I am deathly ill with stomach flu symptoms for hours. It's miserable. My body...
  5. KristenS
    I had iron infusions today, and waited several hours after to try to see my GI doc who was on rounds. Unfortunately I was turned away and the earliest booking for an appointment with her is in over a month. The attending in the GI ward told me to stick to my diet exactly as it is untill I see my doc, but the thing theyre the most worried about is the swelling...
  6. KristenS
    I dont regulatly eat any processed foods, and our kitchen/house is completely gluten-free. I am still eating dairy, no oats. Regular day subsists of coffee yogurt and 2 pieces of fresh fruit for breakfast, left over dinner for lunch, and home cooked meal for dinner. Ie baked salmon with quinoa and 2 veg. Snacks are fruit, yogurt and nuts (per my nutritionist...
  7. KristenS
    Thank you everyone for your responses. I hadn't even considered that I could have more than one thing wrong with me. I just feel so disheartened and alone. My family doctor told me it was all in my head and that I should consider anti depressants. It's just hard going from feeling fine to having my body revolt on all aspects. I have been anal retentive...
  8. KristenS
    I had NO gi symptoms prior to being diagnosed with Celiac. In fact, I had a rock solid stomach and never had tummy issues even when sick etc. I have been Gluten Free for 90 days and in those 90 days I have gained 15 lbs (have never been this fat in my life), have worse acne then when I was a teenager, have severe joint pain, wake with swollen hands face...
  9. KristenS
    I had my infusion today and it was easy as pie! I worried for nothing, and it went perfectly smooth. I brought juice coffee and snacks which were such a good idea, thanks guys! They had trouble getting the IV in, but the third time was the charm. They gave me 200ml of Venofer. They did a test dose of 20 over a half hour and took my vitals every ten minutes...
  10. KristenS
    Three years (I think?) my only symptom has been iron and nutrient dufficiencies. My doctors originally thought I had an eating disorder!
  11. KristenS
    I am scheduled for the first of my iron infusions on next Tuesday Feb 5th, and a bit worried. Have read horror stories of bad reactions. (but then again some people say its easy as pie!) From anyone whos had it done, can you advise any tips? Are you dopey at all from the benedryl? Can you go to work afterwards? Do I need to remove my nailpolish?...
  12. KristenS
    I would absolutely try a drug. I would love to be able to eat whatever I wanted again. I am a foodie, and this restrictive life long diet sucks. As I understand it, the IL-15 drug trials were fast tracked due to the sheer volume of people affected by celiac. I am hopefull they pass clinical trials, and is fast tracked to fda approval. If so, I will be travelling...
  13. KristenS
    I feel like I am STARVING all day every day! My iron infusions are in 3 weeks and you have given me hope that they may help aleviate this insatiable hunger.
  14. KristenS
    Hi Diana! Thanks for your reply. My B12 is non exhistant as well. My extreme fatigue didnt really start untill the B12 dropped (I lived with the anemia for almost 2 years before it really took its toll.) Theres quite a few things I am low on, and am waiting for my appointment with my deitition to discuss how to get the rest of my nutrients up. I wish my...
  15. KristenS
    I am q 29 year old female who has suffered from Iron Defency Anemia for 2+ years before finally being diagnosed with Celiac two weeks ago. My diagnosis was severe malnutrition due to Celiac. It has effected my B12, calcium and other nutrients as well. My only symptons of Celiac have been my nutritional defencies. No other GI symptoms. I am slated for a...
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