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MsMarginalized

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MsMarginalized last won the day on November 10 2015

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  1. Is there any way to get a LIKE button for posts? (or is there one & I'm too thick to see it??) ;)
  2. We have a mixed kitchen. I've color coded the gluten-free items RED. Mostly my husband eats gluten-free at home but he gets "real" sandwiches for lunch (sometimes). He did try the gluten-free bread (God bless him!) The only real "gluten eaters" in the house (besides husbands sometimes lunches) are my daughter & her hubby. But she does that cooking &...
  3. Gee, "Let's order this test but not give the patient the results" Said NO conscientious Doctors office, EVER!!! Just curious, have you fired them? I have a unique perspective: the first GI Doctor I went to who told me "I will NOT diagnose you with Celiac Disease because I cannot treat Celiac Disease" and this moron is actually a graduate of 2 very...
  4. DANG-NABBIT! I HATE BULLIES AND MEANIES! Into that category I put EVERYONE who seems to think it is THEIR job to judge me or make me have to justify myself. Be it the Celiac, Aspergers (a "defunct" form of Autism that I was diagnosed with mid-life) or this new problem [Ankylosing Spondylitis] my sisters and brothers have ALL been less than loving to...
  5. {{{{{{Karen}}}}}} (those are hugs). I am so sorry that what should be a joy turns your life into such a tragedy! One other (possibly drastic) suggestion? What if you go visit the grandkids instead from now on? You know what you need to do for your health. Even now (3 years after my own diagnosis) my husband slips and tries to kiss me after work (and after...
  6. This disease is SOOOO frustrating in so many ways: The sheer cost of "gluten free" alternative foods. The run around we get from family, friends and restaurant employees. The time we spend in the bathroom fighting cramps, in a darkened room fighting one of "those" headaches. The grieving we go through every time a Papa John's/Dunkin Donuts/Pillsbury/Keebler...
  7. I know, in a *perfect* world, I would be able to have a gluten-free kitchen for my 19 y/old son (& me). But I'm married & our daughter and her s/o also live with us...so we have the oxymoron of a mixed kitchen. My Celiac isn't so bad. My son....he gets sick looking at their loaf of bread (or at least it SEEMS that way!) I've separated everything...
  8. For what it's worth, both my son & I "washed out" of the Alvine phase III test of the new Celiac drug, what a pain it is to go through all that to be dropped because we are "TOO HEALTHY". Guess what? If you go look in depth on the U.S. government website that covers drug testing & see what they are testing...and read the labels on the commercially...
  9. The U.S. Military is a bit of an anomaly. They say they want the best & will help their troops....but it ain't always so! I was in a Celiac Support group. One of our members was an Army reserve officer on active duty. He just got diagnosed and was having a dickens of a time with rations out in the field. Everything seems to rotate around WHEAT for...
  10. Wow, y'all! I'm fortunate that I've not had the panic attacks you describe, but then again, I've had major depressive disorder for over 20 years. I just finished Jennifers Way by Jennifer Esposito. She describes her panic attacks and other issues that went hand-in-hand with her un-diagnosed (& then newly diagnosed) Celiac. I realize how Celiac...
  11. Education is the best advice ever. Just be careful where you get it from. I just finished reading Jennifers Way by Jennifer Esposito. Another good author is Elizabeth Hasselbeck. Your public library probably has most (if not all) of Elizabeths books (she has a few). There is a lot here on line, too. Just be careful. My 2cents for your first little bit...
  12. Burts Bees lip balms are all gluten-free as far as I know. I've also found that the higher end department store stuff is all going gluten-free now (but who can afford $35-$50 a tube for lipstick???) I had an extraordinarily BAD reaction to hair coloring right before my diagnosis. I used that as an excuse to stop coloring my hair. I'm glad I did, the money...
  13. From my understanding, the alcohol does denature the bonds in the peptides. I do not remember where I learned that, so I cannot state any source, sorry.
  14. I didn't have any re-checks....DS had one at 3 months, 6 months & 1 year. Yes, I know he is not eating outside of the house (he refuses to). About eating at school, what I meant was that he sits down the table from his friends, with space between them & him (but that is not very often, he usually waits to get home to eat.)
  15. Beer contains alcohol/it is not pure alcohol. IIRC, depending on the beer, the alcohol content can be from 2% to 12%. The alcohol I am speaking of would be pure alcohol. Rubbing alcohol will denature gluten on cookware.
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