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MsMarginalized

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by MsMarginalized

  1. MsMarginalized
    Is there any way to get a LIKE button for posts? (or is there one & I'm too thick to see it??) ;)
  2. MsMarginalized
    We have a mixed kitchen. I've color coded the gluten-free items RED. Mostly my husband eats gluten-free at home but he gets "real" sandwiches for lunch (sometimes). He did try the gluten-free bread (God bless him!) The only real "gluten eaters" in the house (besides husbands sometimes lunches) are my daughter & her hubby. But she does that cooking &...
  3. MsMarginalized
    Gee, "Let's order this test but not give the patient the results" Said NO conscientious Doctors office, EVER!!! Just curious, have you fired them? I have a unique perspective: the first GI Doctor I went to who told me "I will NOT diagnose you with Celiac Disease because I cannot treat Celiac Disease" and this moron is actually a graduate of 2 very...
  4. MsMarginalized
    DANG-NABBIT! I HATE BULLIES AND MEANIES! Into that category I put EVERYONE who seems to think it is THEIR job to judge me or make me have to justify myself. Be it the Celiac, Aspergers (a "defunct" form of Autism that I was diagnosed with mid-life) or this new problem [Ankylosing Spondylitis] my sisters and brothers have ALL been less than loving to...
  5. MsMarginalized
    {{{{{{Karen}}}}}} (those are hugs). I am so sorry that what should be a joy turns your life into such a tragedy! One other (possibly drastic) suggestion? What if you go visit the grandkids instead from now on? You know what you need to do for your health. Even now (3 years after my own diagnosis) my husband slips and tries to kiss me after work (and after...
  6. MsMarginalized
    This disease is SOOOO frustrating in so many ways: The sheer cost of "gluten free" alternative foods. The run around we get from family, friends and restaurant employees. The time we spend in the bathroom fighting cramps, in a darkened room fighting one of "those" headaches. The grieving we go through every time a Papa John's/Dunkin Donuts/Pillsbury/Keebler...
  7. MsMarginalized
    I know, in a *perfect* world, I would be able to have a gluten-free kitchen for my 19 y/old son (& me). But I'm married & our daughter and her s/o also live with us...so we have the oxymoron of a mixed kitchen. My Celiac isn't so bad. My son....he gets sick looking at their loaf of bread (or at least it SEEMS that way!) I've separated everything...
  8. MsMarginalized
    For what it's worth, both my son & I "washed out" of the Alvine phase III test of the new Celiac drug, what a pain it is to go through all that to be dropped because we are "TOO HEALTHY". Guess what? If you go look in depth on the U.S. government website that covers drug testing & see what they are testing...and read the labels on the commercially...
  9. MsMarginalized
    The U.S. Military is a bit of an anomaly. They say they want the best & will help their troops....but it ain't always so! I was in a Celiac Support group. One of our members was an Army reserve officer on active duty. He just got diagnosed and was having a dickens of a time with rations out in the field. Everything seems to rotate around WHEAT for...
  10. MsMarginalized
    Wow, y'all! I'm fortunate that I've not had the panic attacks you describe, but then again, I've had major depressive disorder for over 20 years. I just finished Jennifers Way by Jennifer Esposito. She describes her panic attacks and other issues that went hand-in-hand with her un-diagnosed (& then newly diagnosed) Celiac. I realize how Celiac...
  11. MsMarginalized
    Education is the best advice ever. Just be careful where you get it from. I just finished reading Jennifers Way by Jennifer Esposito. Another good author is Elizabeth Hasselbeck. Your public library probably has most (if not all) of Elizabeths books (she has a few). There is a lot here on line, too. Just be careful. My 2cents for your first little bit...
  12. MsMarginalized
    Burts Bees lip balms are all gluten-free as far as I know. I've also found that the higher end department store stuff is all going gluten-free now (but who can afford $35-$50 a tube for lipstick???) I had an extraordinarily BAD reaction to hair coloring right before my diagnosis. I used that as an excuse to stop coloring my hair. I'm glad I did, the money...
  13. MsMarginalized
    From my understanding, the alcohol does denature the bonds in the peptides. I do not remember where I learned that, so I cannot state any source, sorry.
  14. MsMarginalized
    I didn't have any re-checks....DS had one at 3 months, 6 months & 1 year. Yes, I know he is not eating outside of the house (he refuses to). About eating at school, what I meant was that he sits down the table from his friends, with space between them & him (but that is not very often, he usually waits to get home to eat.)
  15. MsMarginalized
    Beer contains alcohol/it is not pure alcohol. IIRC, depending on the beer, the alcohol content can be from 2% to 12%. The alcohol I am speaking of would be pure alcohol. Rubbing alcohol will denature gluten on cookware.
  16. MsMarginalized
    My son is 17 y/old. Whenever he does eat at school, it's a gluten-free pb&j made at home...and he eats separately from the other kids (to keep out of their crumbs). The jars of mayo/miracle whip are all considered glutened. I only use squeeze mayo for any gluten-free cooking. The tubs of "I can't believe it's not butter" are either unmarked (for...
  17. MsMarginalized
    Actually, alcohol DOES denature the protein bonds in gluten.
  18. MsMarginalized
    Afterwards, you have to wash the dishes. Now, when my DS & I were first diagnosed, the support group we were in encouraged me to get some dedicated cookware...so I bought a set of RED pots & pans. I thought that the glassware & glazed plates/bowls would be ok to share (I have to run a "mixed kitchen"). No one has ever been able to...
  19. MsMarginalized
    Bartfull-Thank you; yep--every label, every time (my new motto). I knew about the cat litter (actually saw some at Target the other day) but didn't think of the cat food. I will pop in to that 101 thread & see what I can see. NGCooties-Thank you for your reply,
  20. MsMarginalized
    Before you send it back, throw on some katsup or scoop something else off of someone elses plate (ask their permission firs) and plop it on top. Tell the server that you CANNOT have this bowl because you CANNOT pick all the gluten off. The katsup/sauce from other plate should act as a marker that this is the original/glutened problem plate. You can...
  21. MsMarginalized
    This restaurant is actually very close to my sons GI Dr's office. The 2 times we've gone in there have been disasters! And that's not even really about the gluten free we need. The first time the service was just soooo bad. Was told it was our waitress' 1st day. The next time (about 6 months later) I realized they only gave us the gluten-free menus...
  22. MsMarginalized
    Don't know if this is the right place/time for this question...but is a "mixed kitchen" really feasible? I'm at my wits end. My sons GI Dr actually said last month that the ONLY way to be Glutened was by ingestion through the mouth. I don't know that I believe that. (Both my son & I were diagnosed a year ago last fall)
  23. MsMarginalized
    Been there, done that! I was diagnosed in Oct. 2012 & started gluten-free right away. For the past 9 months or so everything was smooth (ish). In the last 3 months, I've found that sneaky little weasel we call gluten creeping in! First it was the WalMart brand of crinkle cut french fries. Has wheat. And their BBQ sauce & steak sauce...all...
  24. MsMarginalized
    I was diagnosed with Celiac in Oct. 2012 & joined here in Feb. of last year but never became active here because I found another Celiac Forum that I was involved with. It got shut-down last summer and now I find the need to re-connect. My (then) 16 y/old son was diagnosed with Celiac in Nov. 2012. We live in NE Florida & did join a local...
  25. MsMarginalized
    Walnuts in their natural state are gluten free. All nuts are. I found a problem with ROASTED nuts (including walnuts)...seems they "dust" (either) the machinery, utensils (and/or) the nuts themselves with wheat flour. I personally got very sick when I ate some Planters roasted mixed nuts over the Holidays.
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