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DylansMom

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Everything posted by DylansMom

  1. DylansMom
    I am sorry to hear about your little guy. My son Dylan is 4 1/2 also and was dx this past August. I do not know anything about NAET, but I do know that my gastroenderologist said that this is the worst case he has seen, (not that I hold alot of faith in that. Maybe he has 2 cases... I think he has more than that,...) Anyway, he told me that for the next...
  2. DylansMom
    I hadn't thought of him needing glasses, but... He was 'glutened' about 2 weeks ago now and he seems to be having a hard time recovering. His tummy is just hurting and gurbling all the time. The swelling is back down, but he just seems to be struggling.
  3. DylansMom
    My little guy, Dylan has had a set back about 2 weeks ago and seems to be struggling more this time. Since then he has been complaining of headaches. Since he is 4, I am not too sure if I should be alarmed or is this common with Celiac's. He has been to his doctor for flu shot and they checked his ears and nothing, so it's not ear related. I just wondered...
  4. DylansMom
    Okay, we saw the Dr to go over the biopsy results and again he emphasized how bad Dylan's Celiac is. Ulcers, no villi, no mucus, something else but I can't remember what it was now, but also because of all the damage the Dr wants him off all dairy and occasionally using Lactate (or whatever they are called) tablets if I allow him to eat dairy, like ice cream...
  5. DylansMom
    thanks for the ideas. I thought heating pad too, but he wants nothing off it. Unfortunately it is midnight and we have been up for 2 hours with vomiting, abdominal pain and now liquid bowels which he can't control. As a tantrum (from me) my husband, who is their step-father is lying in bed totally disassociating himself to the situation. How can a grown person...
  6. DylansMom
    Dylan has been gluten-free for about 3 weeks I guess now and sure enough he is acting like he got gluten. I am just unsure where. I am retracing my steps and have a call into his preschool. I am betting it was cross contamination, not something he actually ate. My question is because he is only 4 and does not understand (and I even feel guilty cuz I am...
  7. DylansMom
    Just wandering if there are any others in my area. Either Celiac's themselves or parents of Celiac's. Hoping to get the community aware in my neck of the woods and even find freinds for Dylan to know he isn't alone in this.
  8. DylansMom

    ARCHIVED Question--

    DylansMom replied to jenvan's topic in Coping with Celiac Disease

    For myself (although it is my son who had the disease) I have learned to rely more on the Lord and trust Him. He knew all this long before the doctors found it and ultimatlly He knew Dylan would be able to handle this. As well as me as his Mom and reading all the lables and learning. There are so many things I am discovering also with what we put in our bodies...
  9. DylansMom
    Okay, I have the recipe for Gluten free Play doe but any idea where or how I find out what crayons, clay, pastes and paints are gluten-free? Need info for preschool...
  10. DylansMom
    In my son Dylan's case he had the colonoscopy ONLY because blood was found in his stool. We went ahead and had it done at the same time for 2 reasons...A) I have thought there was something "off" in Dylan for years...he had an enormous belly. Basically he looked liked an Ethiopian child who was malnourished, but the Dr's kept telling me "No no he is just...
  11. DylansMom
    This is new to us too, but Dlyan just had his endoscopy and colonoscopy Friday and the Dr found extensive damage in his small intestines (found ulcers) as well as micro-bacterial damage to his liver but ALL is REVERSABLE. It may take upwards of a year on a gluten-free diet, but he WILL heal. So hang in there, it is foreign to us too, but there is so much...
  12. DylansMom
    My Aunt told me about milk thistle and the effects of healing per say of the liver. Dylan does have liver as well as intestinal ulcers. (He had his colonoscopy and endoscopy Friday. Waiting for the biopsy result, but this is what we found out so far) Anyway, has anyone heard of or used milk thistle and do you think it helps. Thanks for any info
  13. DylansMom

    ARCHIVED Now What?

    DylansMom replied to Lanai's topic in Coping with Celiac Disease

    I am so sorry that you too are having to deal with this. My son, Dylan who is 4 has just been diagnosed with this and we saw a specialist Monday. He goes in for the biopsy this Friday and due to blood in his stool, we are having a colon oscopy as well. Our GI specialist said his is the worst case he has seen. Not something you really want to hear, but it...
  14. DylansMom
    Thanks Katie... I love your scripture quote. I have hung on to that one for many years. No sure why or what the Lord has in store for our family as we live with this but I am excited to see what His plans are. Thanks again. Jennifer
  15. DylansMom
    As I am still in the first week of my son’s diagnosis, I am confused about meds. I have downloaded a list of meds that are okay but for example Flinstone's vitamins are NOT on the list but I can't see anything that would be the problem. There are these mono dextins and what not...is that the problem? Any one out there more experienced who can tell me the f...
  16. DylansMom
    My son Dylan has just been diagnosed with this and we are just starting. He is 4 and I was just wanted any and all help/info from parents who have been through this and suggestions on handling it without becoming overwhelmed. Thanks for your suggestions and I look forward to getting to know several of you on the boards. Jennifer
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